SPARK: Research Match
Return of Results

Personalized results for Jane Doe

Results

Overview

You are receiving this because your child was one of —children that participated in a Research Match in 2022 by researchers at the University of Iowa. You provided data on your child’s seizures and seizure related behaviors. This data was analyzed and the results published in a scientific publication in a peer-reviewed journal and can be read online at this link: —–. The data from the publication is anonymized. The researchers are not medical doctors, and your results are not diagnostic.

Based off of your child’s responses to the questions below researchers have been able to predict the likelihood of seizures in your child.

Your child’s seizure related behavior score
What is this seizure score?
Researchers used the data to predict the probability your child could be diagnosed with seizures relative to the other —– participants. This is the distribution of seizure scores for all participants, with the 90th percentile shown by a red line. Further towards the right indicates your child has eating patterns that are similar to other children that have been diagnosed with seizures.
Your child’s score is shown with the dashed black line.
If your child’s line is above the red 90th percentile line, it is worth considering an evaluation for seizures or seizure related disorder from a medical doctor.

Questions

If you have questions about the research, please contact the lead investigator Dr. Jacob Michaelson:
If you have questions about how SPARK Research Matches work, please contact SPARK:
If you have questions or concerns about behaviors related to seizures in your child, please contact your medical doctor.

Questions

  1. Has your child ever unexpectedly stared and not responded when you attempted to alert him/her?
  2. Has your child ever unexpectedly lost consciousness or awareness?
  3. Has your child ever unexpectedly lost her/his ability to talk or respond?
  4. Has your child ever unexpectedly lost the ability to move?
  5. Has your child ever unexpectedly had abnormal twitches, jerks, trembles, or shakes of the arms, legs, head, face, or body?
  6. Has your child ever unexpectedly stiffened or tightened the arms, legs, face, or body?
  7. Has your child ever unexpectedly slumped over, collapsed, or become limp?
  8. Has your child ever unexpectedly had a period of confusion lasting minutes to an hour or two?
  9. Has your child ever unexpectedly lost the ability to hold his/her head up when not appearing to be tired?
  10. Has your child ever seen a doctor who diagnosed your child with one of the following:
  1. epilepsy? b. seizure or seizure disorder? c. febrile seizures or seizures with fever? d. fits? e. attacks? f. spells? g. convulsions?
  1. Has your child ever had an EEG (also called a brain wave test) during which wires were pasted to the scalp to record brain waves?
  2. Does he/she lose awareness, become unresponsive, or lose consciousness?
  3. Does he/she stare or get a glazed look?
  4. Does he/she suddenly become still or unresponsive?
  5. Does he/she suddenly stop what he/she is doing?
  6. During an episode, does your child have a change in his/ her ability to communicate?
  7. During an episode, does your child have a change in his/ her ability to follow commands?
  8. During an episode, does your child have a change in his/ her ability to walk?
  9. During an episode, does your child have a change in his/ her ability to follow people purposefully with his/her eyes?
  10. During an episode did you ever notice that his/her head and/or eyes are stuck to the left or right side?
  11. During an episode did you ever notice that he/she has rhythmic or jerking eye movements to one side?
  12. During an episode did you ever notice that he/she arches his/her back, arches his/her neck, or bends backward?
  13. During an episode did you ever notice that he/she suddenly bends at the waist?
  14. During an episode did you ever notice that he/she suddenly stiffens, jerks, twitches, or shakes only one side of the body?
  15. During or after this type of episode did you ever notice that he/she stiffens, jerks, twitches, or shakes on both sides of the body?
  16. During an episode, does he/she suddenly slump over, collapse, or go limp?
  17. During an episode, does he/she ever gurgle or froth at the mouth?
  18. During or after an episode, does he/she drool more than usual?
  19. During or after an episode, does he/she ever look dusky or blue in the face and/or lips?
  20. During or after an episode, does he/she ever have trouble breathing or stop breathing?
  21. During or after an episode, does he/she wet or soil himself/herself?
  22. After an episode, does he/she become more sleepy than usual?
  23. After an episode, does he/she become more tired or slower to respond?
  24. After an episode, does he/she have less energy or seem less active than usual?
  25. After an episode, does he/she appear confused?
  26. After an episode, does he/she have difficulties talking or communicating?
  27. After an episode, does he/she have trouble understanding what is said?
  28. After an episode, does he/she become weak or have more trouble than usual moving only one side of the body?
  29. Does this type of episode occur only when he/she is upset, mad, or in pain?
  30. Does this type of episode occur only with fever?
  31. Does this type of episode occur without fever?