BSOC/STS 2051 Discussion Section

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# BSOC/STS 2051 Discussion Section
## Week 11, Disc 10
### Xuewen Yan
### 2021-11-04

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# Housekeeping

Check in now: [Attendance sheet](https://forms.gle/WcnhQ2VEQ8LpqK9y5)

Section slides: [https://rpubs.com/xwueyan](https://rpubs.com/xwueyan)

Final paper

- Outline due: Nov 23th

- Grading rubric on the guidelines

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# Art project

- Intro from students who already submitted the assignment

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# Activity: Reading discussions

[google doc collaboration](https://docs.google.com/document/d/1IZGl0dweVAtPYFlAxTw9toMOKCS4DOxk4uXe52gn0LA/edit?usp=sharing)

Ethical Issues in Genetic Research (Diekema 2018)

Embracing Genetic Diversity to improve Black Health (Akinyemi et al. 2021)

The "All of Us" Research program (Fox 2020)

Genomics, Health Disparities, and Missed Opportunities for the Nation’s Research Agenda (West et al. 2017)

- To what extent shall we encourage or embrace the study of genome variations among minority subpopulations? What are the ethical concerns and controversies entailed? Do you feel that the collection of minority groups' DNA will enhance health equity? Why or why not? 
- To what extent do you support the proposal of financial subsidies and/or control over data access/use if indigenous people's DNA data are to be collected?
- What are the problems with informed consent in genetic research in medicine? What do you think are the potential causes and do you see a ways to alleviate these problems?
- Any other observations you want to share with your group mates regarding genetic research in medicine and ethics in medical research?

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# Activity 2: Altruistic kidney donation

1. Is it ethically justifiable to allow or even encourage the solicitation of organs? What kinds of conditions may make this practice less versus more problematic?

2. How do you like the kidney chain solution to shortage in organ transplantation?

3. Can you think of some policies or practices to address fairness and utility of organ donation?

Sources

- Hanto DW. Ethical Challenges Posed by the Solicitation of Deceased and Living Organ Donors. NEJM 2007;356(10):1062-1066.

- PBS video (~ 10 min) [Altruistic kidney donation and kidney chain donation](https://www.pbs.org/newshour/show/how-an-economists-idea-to-create-kidney-transplant-chains-has-saved-lives)