| I am a caregiver of an adult with epilepsy. (N=250) |
I am a person with epilepsy and a caregiver of an adult with epilepsy. (N=11) |
I am an adult with epilepsy. (N=250) |
Overall (N=511) |
|
|---|---|---|---|---|
| TBI | ||||
| No_TBI | 49 (19.6%) | 1 (9.1%) | 51 (20.4%) | 101 (19.8%) |
| Yes | 201 (80.4%) | 10 (90.9%) | 199 (79.6%) | 410 (80.2%) |
| TBI_LOC | ||||
| mild | 62 (24.8%) | 5 (45.5%) | 68 (27.2%) | 135 (26.4%) |
| moderate | 9 (3.6%) | 0 (0%) | 14 (5.6%) | 23 (4.5%) |
| No_LOC | 179 (71.6%) | 6 (54.5%) | 162 (64.8%) | 347 (67.9%) |
| severe | 0 (0%) | 0 (0%) | 6 (2.4%) | 6 (1.2%) |
| TBI_AMS | ||||
| mild | 66 (26.4%) | 5 (45.5%) | 84 (33.6%) | 155 (30.3%) |
| No_AMS | 180 (72.0%) | 6 (54.5%) | 158 (63.2%) | 344 (67.3%) |
| severe | 4 (1.6%) | 0 (0%) | 8 (3.2%) | 12 (2.3%) |
| TBI_subgroup | ||||
| mild | 74 (29.6%) | 6 (54.5%) | 90 (36.0%) | 170 (33.3%) |
| moderate | 2 (0.8%) | 0 (0%) | 6 (2.4%) | 8 (1.6%) |
| No_TBI | 49 (19.6%) | 1 (9.1%) | 51 (20.4%) | 101 (19.8%) |
| Subconcussive | 125 (50.0%) | 4 (36.4%) | 98 (39.2%) | 227 (44.4%) |
| severe | 0 (0%) | 0 (0%) | 5 (2.0%) | 5 (1.0%) |
Q6.9 If ‘Other’, please specify in a few words:
##
##
## 428
## Alcohol Intake intake
## 1
## All natural birth with Chiari 1 Malformation.
## 1
## Anxiety
## 1
## birth
## 1
## Boy hitting me in head with concrete wall
## 1
## Brain surgery
## 1
## brain surgery for epileptic seizures. Right hemisphere craniotomy
## 1
## Brain Tumor removed
## 1
## Bumping into solid objects with head(cupboards/doors)
## 1
## Emotional experience death in family
## 1
## Falling
## 1
## Fighting
## 1
## Fights
## 1
## From a seizure
## 1
## good
## 1
## got sick when younger and was in a coma
## 1
## Great
## 1
## head butt, DIY projects, hit on low overhead framework of bed
## 1
## Hit a cabinet door.
## 1
## Hit by a ladder
## 1
## Hit my head on still object
## 1
## Hit my own head against the wall while having an anxiety crisis
## 1
## hit on head by a horse
## 1
## Hitting it on something.
## 1
## I fell and split my chin open on a china cabinet.
## 1
## I fell out of a truck when i was a child
## 1
## I had an anuresym stroke, where two blood vessel burst and sent me into a stroke and eventually caused seizures
## 1
## I have got hit in the head several times from playing softball and baseball
## 1
## I ran into a weight bench and got a concussion.
## 1
## I was a very active child and always clumsy hitting my head
## 1
## I was thrown from a horse as a teenager and lost consciousness
## 1
## Im quite clumsy
## 1
## It's been a long time since I feel down with a seizure but when I did I always hit my head..I also have episodes where I won't recognize where I am and alot of different kinds of lights and especially strobe lights make me want to go down...not all of the time I mostly always wear sunglasses when I go out be it a sunny day or cloudy ..glares really bother me ..anxiety doesn't help at all and that's been worse ever in my whole life in the past years ..terrible
## 1
## Meningitis as a baby
## 1
## My horse fell over on me and I was knocked unconscience
## 1
## N/a
## 1
## N/A
## 2
## Never happened
## 1
## No
## 5
## No brain problems
## 1
## no head injury
## 1
## No more reasons
## 1
## no response needed
## 1
## non
## 1
## none
## 1
## None
## 4
## None
## 1
## Nonr
## 1
## Not applicable
## 1
## Nothing
## 3
## other
## 1
## Othwrs
## 1
## Playing games
## 1
## Ran into wall
## 1
## Scare on brain from birth
## 1
## Seizure
## 1
## Self abuse
## 1
## self done
## 1
## Self harm
## 1
## Self inflicted
## 1
## Several times from seizures
## 1
## slipped and fell on the ice and my head went back and hit the ice
## 1
## Slipping on slick floor and hitting my head hard
## 1
## Some times I want to die cause Iâ\200\231m depressed and nobody cares about me
## 1
## Sports such as MMA
## 1
## Stress
## 1
## There is no other.
## 1
## There was no â\200œotherâ\200\235.
## 1
## There was one other head injury, but I have now forgotten how it happened.
## 1
## theres actually quite a few reasons
## 1
## Things have fallen from up above onto my head
## 1
## Understanding
## 1
## when I was a babe had a very high fever
## 1Please fill out the following table to the best of your ability. - How many times did you experience a blow to the head in this way? - 7. Other: [QID123-ChoiceTextEntryValue] - # of Times
##
## 0 1 10 13 15 2 20 3 4 5 6 70
## 447 8 22 6 1 1 10 3 5 1 4 2 1In what year(s) did this occur? - 1. Vehicle accident - Year(s)
##
## 0 1 17
## 358 2 5 1
## 1953 1959 1971 1975
## 1 1 1 1
## 1983 1985 1986 1988
## 1 1 1 3
## 1989 1990 1990, 1998,2006 1992
## 1 3 1 2
## 1993 1994 1995 1995,2006
## 1 2 3 1
## 1996 1996, 2009 1997 1998
## 2 1 1 5
## 1999 1999 & 1998 2 20
## 7 1 1 1
## 2000 2001 2002 2004
## 4 2 3 1
## 2004 2017 2005 2006 2006 2012
## 1 1 4 1
## 2007 2007, 2010 2008 2009
## 4 1 1 2
## 2009/2010 2010 2011 2012
## 1 7 1 7
## 2013 2014 2015 2016
## 2 3 3 5
## 2017 2018 2018-19 2018-19-20
## 8 6 1 1
## 2018 and 2019 2019 2020 3
## 1 13 13 1
## 39 44 57 94
## 1 1 1 1Please fill out the following table to the best of your ability. - In what year(s) did this occur? - 3. Falling - Year(s)
##
## 0000 1
## 271 1 2
## 1960 1978 1979
## 1 1 1
## 1980 1982 1984
## 2 1 1
## 1985 - 2020 1987 1987 1996
## 1 1 1
## 1988 1989 1989-2011
## 1 1 1
## 1990 1991 1992
## 3 3 2
## 1993 1994 1996
## 1 1 2
## 1996-2004 1997 1998
## 1 2 1
## 1998,2001,2009,2019 1999 1999 2005
## 1 3 1
## 199l 2 2, 8
## 1 6 1
## 2000 2000 2002 2008 2017 2020 2000, 2006,, 2014
## 5 1 1
## 2000, 2012, 2019, 2020 2001 2001 & 05
## 1 1 1
## 2002 2002-2020 2003
## 2 1 3
## 2003-2015 2004 2005
## 1 2 11
## 2005-2008 2006 2006 2007
## 1 4 1
## 2006, 2017, 2020 2007 2008
## 1 4 7
## 2009 2010 2011, 2014, 2015
## 5 9 1
## 2012 2012 & 2015 2012& 2015
## 7 1 1
## 2013 2014 2014-2020
## 3 13 1
## 2015 2016 2017
## 10 11 10
## 2017 2019 2017, 2018, 2019, 2020 2018
## 1 1 18
## 2018 2019 2018,2019 2018/19
## 1 1 1
## 2019 2019 2017 2019. 2005
## 22 1 1
## 2020 4 9
## 21 1 1
## 94 to present Don't remember Every year
## 1 1 1
## Multiple Not sure
## 1 1If you answered Yes to ‘Loss of Consciousness’, please fill out the following table to the best o… - How many times did you lose consciousness from a blow to the head in this way? - 5. Physical abuse/assault - # of Times
##
## 0 1 10 100 15 2 3 30 33 4 5 6 7 8 9
## 446 3 18 8 1 1 14 6 1 1 4 4 1 1 1 1