Demographics

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Uploaded videos as of 2019-04-23

141

Completed surveys as of 2019-04-23

132

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Table 1. Storyteller characteristics

level Overall
n 132
age (mean (sd)) 50.08 (12.42)
sex (%) Male 37 (28.2)
Female 94 (71.8)
race2 (%) American Indian or Alaska Native 3 ( 2.3)
Asian Indian 1 ( 0.8)
Black 15 (11.4)
Chinese 1 ( 0.8)
Filipino 1 ( 0.8)
Multiracial 4 ( 3.0)
Other 6 ( 4.5)
White 101 (76.5)
hispanic (%) Non-Hispanic 119 (91.5)
Hispanic 11 ( 8.5)
education (%) 8th grade or less 0 ( 0.0)
Some high school 0 ( 0.0)
High school diploma or GED 6 ( 4.6)
Some college or vocational school 19 (14.6)
College or vocational school degree 57 (43.8)
Some professional or graduate school 10 ( 7.7)
Professional or graduate degree 38 (29.2)
Prefer not to answer 0 ( 0.0)
status2 (%) Kidney Recipient 34 (25.8)
Living Kidney Donor 80 (60.6)
Other 18 (13.6)
living_donor (%) someone I know 59 (72.0)
someone I don’t know 18 (22.0)
chain of transplants 5 ( 6.1)

for abstract update

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age

Gender

Education

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Hispanics

Race in general

adult or a child?

Motivation of storytelling

motivation

motivation count percent
I think it’s important to educate the public about living donation 125 94.7
I want to help others looking for information on living donor kidney transplant 106 80.3
I want to dispel myths about living donation 100 75.8
I want to tell the real story of what being a living donor or receiving a living donor kidney was like 89 67.4
I want to show how living donation can make a difference in both the recipient’s and donor’s lives 105 79.5
I want to share the challenges of living donor kidney transplant, so that others are informed 41 31.1
I want to help more people become living donors 103 78.0
Another reason 14 10.6

benefits

risks

Ethical reviewers

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Identifiers, did storyteller reveal any PHI about themselves?

IDed OTHERS,did storyteller reveal PHI about other people?

Pressure, language and overgeneralization, job titles

level Overall
n 124
pressure (%) 0 107 (87.7)
1 15 (12.3)
language (%) 0 121 (99.2)
1 1 ( 0.8)
overgeneralization (%) 0 110 (90.9)
1 11 ( 9.1)
category (%) Transplant Physician 25 (20.2)
Psychologist 97 (78.2)
Educator 1 ( 0.8)
Other 1 ( 0.8)

Web analytics (In development)

Most visited pages/videos

pagePath Freq
/videos/?gender=&location=&ethnicity=&segment= 269
/videos/?gender=2-female&ethnicity=1-white&segment=1-donor-stories 86
/videos/type/1-donor-stories/ 57
/videos/?gender=2-female&ethnicity=1-white&segment=2-recipient-stories 23
/videos/jennifer/ 19
/videos/type/2-recipient-stories/ 18
/videos/?gender=1-male&ethnicity=1-white&segment=1-donor-stories 17
/videos/type/1-donor-stories/?gender=2-female&ethnicity=1-white 17
/videos/type/1-donor-stories/?gender=2-female&ethnicity=9-other 15
/videos/?gender=&ethnicity=&segment= 11
/videos/kabir/ 11
/videos/?gender=&ethnicity=&segment=1-donor-stories 9
/videos/?gender=2-female&ethnicity=1-white&segment=3-friends-family 8
/videos/?gender=2-female&ethnicity=&segment= 7
/videos/?gender=2-female&ethnicity=2-black&segment=2-recipient-stories 7
/videos/?gender=2-female&ethnicity=&segment=1-donor-stories 6
/videos/type/3-friends-family/ 6
/videos/?gender=&ethnicity=&segment=2-recipient-stories 5
/videos/?gender=&ethnicity=&segment=3-friends-family 5
/videos/?gender=1-male&ethnicity=1-white&segment=2-recipient-stories 5
/videos/?gender=2-female&ethnicity=3-hispanic&segment=1-donor-stories 5
/videos/alex/ 5
/videos/type/1-donor-stories/?gender=&ethnicity= 5
/videos/type/4-in-need/ 5
/videos/?gender=&ethnicity=&segment=4-in-need 4
/videos/?gender=1-male&ethnicity=1-white&segment=4-in-need 4
/videos/?gender=2-female&ethnicity=&segment=2-recipient-stories 4
/videos/?gender=2-female&ethnicity=1-white&segment= 4
/videos/martha/ 4
/videos/type/2-recipient-stories/?gender=2-female&ethnicity=3-hispanic 4
/videos/?gender=&ethnicity=4-asian&segment= 3
/videos/?gender=1-male&ethnicity=1-white&segment= 3
/videos/?gender=2-female&ethnicity=3-hispanic&segment= 3
/videos/?gender=2-female&ethnicity=3-hispanic&segment=2-recipient-stories 3
/videos/?gender=2-female&ethnicity=4-asian&segment=2-recipient-stories 3
/videos/art/ 3
/videos/emily/ 3
/videos/grace/ 3
/videos/type/2-recipient-stories/?gender=2-female&ethnicity=1-white 3
/videos/type/4-in-need/?gender=&ethnicity= 3
/videos/type/4-in-need/?gender=2-female&ethnicity=3-hispanic 3
/videos/?gender=&ethnicity=2-black&segment= 2
/videos/?gender=1-male&ethnicity=3-hispanic&segment=2-recipient-stories 2
/videos/?gender=1-male&ethnicity=9-other&segment=1-donor-stories 2
/videos/?gender=2-female&ethnicity=1-white&segment=4-in-need 2
/videos/?gender=2-female&ethnicity=9-other&segment=3-friends-family 2
/videos/?gender=3-trans-male&ethnicity=&segment= 2
/videos/?gender=5-non-binary-afab&ethnicity=&segment= 2
/videos/type/1-donor-stories/?gender=1-male&ethnicity=1-white 2
/videos/type/1-donor-stories/?gender=2-female&ethnicity= 2
/videos/type/2-recipient-stories/?gender=1-male&ethnicity=1-white 2
/videos/?gender=&ethnicity=1-white&segment= 1
/videos/?gender=&ethnicity=3-hispanic&segment= 1
/videos/?gender=1-male&ethnicity=&segment=1-donor-stories 1
/videos/?gender=1-male&ethnicity=1-white&segment=3-friends-family 1
/videos/?gender=1-male&ethnicity=2-black&segment=3-friends-family 1
/videos/?gender=1-male&ethnicity=3-hispanic&segment=1-donor-stories 1
/videos/?gender=2-female&ethnicity=1-white&segment=1-donor-stories&fbclid=IwAR0CxC6yPVeppNQUeoSo88N_yFDoxzcblXKns5A6soozwPs6ql1fAk91SpE 1
/videos/?gender=2-female&ethnicity=9-other&segment=1-donor-stories 1
/videos/?gender=2-female&ethnicity=9-other&segment=2-recipient-stories 1
/videos/?gender=4-trans-female&ethnicity=&segment= 1
/videos/?gender=4-trans-female&ethnicity=1-white&segment=2-recipient-stories 1
/videos/?gender=7-agender-gender-neutral&ethnicity=&segment= 1
/videos/?gender=8-intersex&ethnicity=&segment= 1
/videos/?gender=9-other&ethnicity=&segment= 1
/videos/?gender=9-other&ethnicity=&segment=1-donor-stories 1
/videos/?gender=9-other&ethnicity=&segment=3-friends-family 1
/videos/?gender=9-other&ethnicity=1-white&segment=1-donor-stories 1
/videos/alex/?fbclid=IwAR12AjxOD7ieLosKVknNkEkVOToAzLmXSv5WlzZrg19RRiP–IlVCEyZOlE 1
/videos/andrea-2/ 1
/videos/art/?fbclid=IwAR04a6bV-71vMHCbp1QB05yYol1lLtjjA59PyNNHg4jwLzLDML3VQ8T9Sn4 1
/videos/elizabeth/ 1
/videos/martha/?fbclid=IwAR02zKvulR30MCYvkC-KOomu4C-F0Z8CU5IJEPn5hbTjayyXyBe0Dykf0Io 1
/videos/martha/?fbclid=IwAR1bSOeFWV9ntCzsyMyiBH27JO312Qrdlv2Lzr9bKuUMuTYhgrL4U9y8dGg 1
/videos/martha/?fbclid=IwAR1FvBdW-y0keYsre-UHlJQkvSKwz3VP9T7B7PAb83F–RoWP_MFv-lGj-o 1
/videos/martha/?fbclid=IwAR1l8Gfu_aSB26jEtKhd33oWCwPh5xKbkqoxes5kzAs0Sm3JMgkJV111EVI 1
/videos/martha/?fbclid=IwAR24LNkpiuYVfsXtDFWyzcLzL0MIKTVGz4EeKCeWO6Nb4brP11ldIUm_3ik 1
/videos/martha/?fbclid=IwAR2ZkePXRKTiCumYZJw3cQ7-5s9eYsFxR2MIDd8CvHrjXN_j_B2M6BPkmuU 1
/videos/randi/ 1
/videos/rechelle/ 1
/videos/type/1-donor-stories/?gender=1-male&ethnicity= 1
/videos/type/1-donor-stories/?gender=1-male&ethnicity=2-black 1
/videos/type/2-recipient-stories/?gender=&ethnicity= 1
/videos/type/2-recipient-stories/?gender=1-male&ethnicity=2-black 1
/videos/type/2-recipient-stories/?gender=1-male&ethnicity=3-hispanic 1
/videos/type/2-recipient-stories/?gender=2-female&ethnicity= 1
/videos/type/2-recipient-stories/?gender=7-agender-gender-neutral&ethnicity=3-hispanic 1
/videos/type/3-friends-family/?gender=2-female&ethnicity=1-white 1
/videos/type/4-in-need/?gender=1-male&ethnicity=2-black 1
/videos/type/4-in-need/?gender=2-female&ethnicity=2-black 1