Row

Total 80+ Normal or Super

316

SuperAgers

208 (66%)

Currently Active

132 (42%)

Autopsies/Death

91/135 (67%)

Row

Cohorts & Consents

N

%

Participants 80+ & Normal Control or Super

316

100%

Consented to ADRC

313

99%

Consented to R01 or U19

202

65%

Consented U19

60

30%

Consented R01

142

70%

Consented Only to ADRC

111

35%

Not Consented to ADRC

3

<1%

Consented R01

3

100%

Cohorts & Consents

Row

Subtypes

N

%

Participants 80+ & Normal Control or Super

316

100%

Super

208

66%

Consented to R01 or U19

146

70%

Consented U19

42

29%

Consented R01

104

71%

Consented Only to ADRC

62

30%

Normal

83

26%

Consented to R01 or U19

56

67%

Consented U19

18

32%

Consented R01

38

68%

Consented Only to ADRC

27

33%

Unknown

25

8%

Consented to R01 or U19

3

12%

Consented R01

3

100%

Consented Only to ADRC

22

88%

Row

Status

N

%

Participants 80+ & Normal Control or Super

316

100%

Actively Followed

132

42%

Consented to R01 or U19

88

67%

Consented U19

48

55%

Consented R01

40

45%

Consented Only to ADRC

44

33%

Deceased

135

43%

Consented to R01 or U19

87

64%

Consented U19

8

9%

Consented R01

79

91%

Consented Only to ADRC

48

36%

Discontinued

45

14%

Consented to R01 or U19

26

58%

Consented U19

4

15%

Consented R01

22

85%

Consented Only to ADRC

19

42%

Deaths

N

%

Deceased Participants

135

100%

Deceased With Autopsy

91

67%

Consented to R01 or U19

57

63%

Consented U19

4

7%

Consented R01

53

93%

Consented Only to ADRC

34

37%

Row

Demographics

Total

USG

N

%

N

%

Participants 80+ & Normal Control or Super

316

100%

72

100%

Female

218

69%

58

81%

Consented to R01 or U19

142

65%

34

59%

Consented U19

43

30%

10

29%

Consented R01

99

70%

24

71%

Consented Only to ADRC

76

35%

24

41%

Male

98

31%

14

19%

Consented to R01 or U19

63

64%

7

50%

Consented U19

17

27%

2

29%

Consented R01

46

73%

5

71%

Consented Only to ADRC

35

36%

7

50%

Row

Participation

N

%

Consented to R01 or U19

205

100%

Active on Sept 1, 2023

121

59%

Completed Visit Since or Currently Scheduled

105

87%

Consented U19

53

50%

Consented R01

52

50%

Discontinued Since

5

4%

Consented U19

3

60%

Consented R01

2

40%

Deceased Since

9

7%

Consented U19

3

33%

Consented R01

6

67%

Minimal Contact

1

<1%

Consented R01

1

100%

Pursuing Visit Scheduling

1

<1%

Consented U19

1

100%

Inactive Before Sept 1, 2023

81

40%

Never Co-Enrolled in ADRC

3

1%

Pursuing Visit Scheduling

3

100%

Consented R01

3

100%

Row

Participation

N

%

Consented to R01 or U19

109

100%

Active on Sept 1, 2023

109

100%

Completed Visit Since or Currently Scheduled

101

93%

Consented U19

53

52%

Consented R01

48

48%

Discontinued Since

3

3%

Consented U19

3

100%

Deceased Since

3

3%

Consented U19

3

100%

Minimal Contact

1

<1%

Consented R01

1

100%

Pursuing Visit Scheduling

1

<1%

Consented U19

1

100%

Row

Participant Feedback

N

%

Consented to R01 or U19 & Active on Sept 1, 2023

121

100%

Contacted

43

36%

Consented U19

26

60%

Confusion about transition

4

15%

Confusion about transition & Preference for NU

2

8%

No clear concerns, agreed to NUSAP

16

62%

No clear concerns, agreed to NUSAP & No clear concerns, agreed to NUSAP

1

4%

Preference for NU

2

8%

Wants to participate in both, agreed to NUSAP

1

4%

Consented R01

17

40%

Confusion about transition

2

12%

No clear concerns, agreed to NUSAP

4

24%

Preference for NU

2

12%

Wants to participate in both, agreed to NUSAP

2

12%

Confusion about brain donation

2

12%

Confusion about transition & Confusion about transition

1

6%

Confusion about transition & Confusion about transition & Confusion about transition

2

12%

Confusion about transition & No clear concerns

1

100%

Confusion about transition & No clear concerns, agreed to NUSAP

1

100%

Not Contacted

78

64%

Consented U19

34

44%

Consented R01

44

56%