Total Number of Survey Responses Prior to Deduplication and Cleaning
Metric Count
Total Survey Responses Before Deduplication 3625
Duplicate Submissions BEFORE Deduplication (n = 168 unique duplicated values)
Field Value Number of Submissions
IP Address 108.205.171.174 4
IP Address 72.192.72.107 4
IP Address 75.182.92.102 4
IP Address 107.138.187.161 3
IP Address 107.77.234.232 3
IP Address 138.43.171.67 3
IP Address 172.74.28.201 3
IP Address 23.127.69.109 3
IP Address 23.226.173.120 3
IP Address 64.178.232.163 3
IP Address 66.148.36.217 3
IP Address 71.207.14.94 3
IP Address 72.47.39.120 3
IP Address 73.40.99.88 3
IP Address 99.114.156.254 3
IP Address 104.151.215.179 2
IP Address 104.178.89.224 2
IP Address 107.134.11.214 2
IP Address 107.196.78.150 2
IP Address 107.77.201.68 2
IP Address 107.77.203.79 2
IP Address 107.77.206.60 2
IP Address 107.77.207.66 2
IP Address 107.77.233.42 2
IP Address 107.77.236.141 2
IP Address 108.185.225.206 2
IP Address 108.216.32.210 2
IP Address 108.243.155.150 2
IP Address 130.45.136.95 2
IP Address 135.84.224.37 2
IP Address 137.119.54.85 2
IP Address 138.207.188.215 2
IP Address 154.73.221.120 2
IP Address 155.4.54.179 2
IP Address 156.146.74.196 2
IP Address 162.194.112.237 2
IP Address 162.245.50.28 2
IP Address 166.137.83.8 2
IP Address 166.182.86.80 2
IP Address 166.196.110.19 2
IP Address 170.199.182.183 2
IP Address 170.199.186.70 2
IP Address 170.52.178.154 2
IP Address 172.11.253.41 2
IP Address 172.56.58.11 2
IP Address 173.242.245.200 2
IP Address 173.25.6.226 2
IP Address 174.223.140.44 2
IP Address 174.226.132.95 2
IP Address 174.24.170.62 2
IP Address 174.57.89.18 2
IP Address 174.66.24.27 2
IP Address 184.105.1.62 2
IP Address 184.155.49.129 2
IP Address 184.20.116.43 2
IP Address 192.240.53.52 2
IP Address 198.133.9.30 2
IP Address 204.111.133.170 2
IP Address 206.246.24.87 2
IP Address 207.174.224.76 2
IP Address 208.118.207.116 2
IP Address 208.86.8.112 2
IP Address 208.95.65.85 2
IP Address 213.205.241.255 2
IP Address 216.105.185.233 2
IP Address 216.14.159.196 2
IP Address 216.222.140.121 2
IP Address 220.236.163.217 2
IP Address 23.122.4.123 2
IP Address 23.226.163.185 2
IP Address 24.107.71.116 2
IP Address 24.126.14.149 2
IP Address 24.145.113.12 2
IP Address 24.15.157.4 2
IP Address 24.159.77.155 2
IP Address 24.189.245.94 2
IP Address 24.244.102.220 2
IP Address 24.245.102.146 2
IP Address 24.254.26.117 2
IP Address 24.255.254.47 2
IP Address 24.44.42.108 2
IP Address 24.88.4.99 2
IP Address 32.211.10.132 2
IP Address 47.132.177.155 2
IP Address 47.134.45.242 2
IP Address 47.214.52.54 2
IP Address 47.232.118.211 2
IP Address 47.40.12.191 2
IP Address 47.44.49.212 2
IP Address 50.55.60.104 2
IP Address 64.130.186.133 2
IP Address 64.15.81.186 2
IP Address 64.250.68.168 2
IP Address 65.245.183.66 2
IP Address 65.28.67.224 2
IP Address 66.186.109.226 2
IP Address 66.196.1.34 2
IP Address 66.38.29.119 2
IP Address 66.86.45.22 2
IP Address 67.187.106.94 2
IP Address 67.187.80.40 2
IP Address 67.45.32.29 2
IP Address 67.6.169.164 2
IP Address 67.81.1.214 2
IP Address 67.83.2.89 2
IP Address 68.186.171.227 2
IP Address 68.193.136.245 2
IP Address 68.33.48.251 2
IP Address 69.10.111.142 2
IP Address 69.10.118.1 2
IP Address 69.10.120.186 2
IP Address 69.10.96.213 2
IP Address 69.141.224.163 2
IP Address 69.244.193.69 2
IP Address 69.248.222.40 2
IP Address 69.255.102.49 2
IP Address 69.71.12.132 2
IP Address 69.8.168.193 2
IP Address 70.161.175.147 2
IP Address 70.178.126.157 2
IP Address 70.178.248.78 2
IP Address 71.1.99.201 2
IP Address 71.153.14.149 2
IP Address 71.214.68.167 2
IP Address 71.217.191.142 2
IP Address 71.62.240.131 2
IP Address 71.69.181.253 2
IP Address 72.192.86.27 2
IP Address 72.204.100.183 2
IP Address 72.206.8.232 2
IP Address 72.224.178.101 2
IP Address 72.45.14.70 2
IP Address 73.104.219.114 2
IP Address 73.12.44.29 2
IP Address 73.12.54.149 2
IP Address 73.134.191.236 2
IP Address 73.134.39.6 2
IP Address 73.177.249.58 2
IP Address 73.185.226.92 2
IP Address 73.187.131.250 2
IP Address 73.195.49.221 2
IP Address 73.217.140.115 2
IP Address 73.226.196.54 2
IP Address 73.31.112.217 2
IP Address 73.31.161.171 2
IP Address 73.33.39.97 2
IP Address 73.42.57.51 2
IP Address 73.99.43.32 2
IP Address 74.51.1.54 2
IP Address 74.81.111.54 2
IP Address 74.96.106.111 2
IP Address 75.105.194.239 2
IP Address 75.107.232.246 2
IP Address 75.186.107.150 2
IP Address 75.189.131.81 2
IP Address 75.23.158.45 2
IP Address 76.119.76.211 2
IP Address 76.20.246.39 2
IP Address 76.23.83.168 2
IP Address 76.251.41.93 2
IP Address 96.67.90.173 2
IP Address 97.88.201.59 2
IP Address 98.166.202.17 2
IP Address 98.186.117.133 2
IP Address 98.187.134.183 2
IP Address 99.179.114.237 2
IP Address 99.197.253.84 2
IP Address 99.98.82.144 2

Confirmed: No duplicate IP Addresses remain after deduplication. ## 186 duplicated IP Addresses were removed keeping only the first response entered using Start Date

Total Number of Survey Responses After Deduplication and Cleaning
Metric Count
Total Survey Responses After Deduplication 3437

Data Validation by Year

Deduplicated survey data







Chi-Square Test Results for Survey Responses by Year (2019 - 2024)
Statistic DF P_Value
X-squared 325.14 5 < 1e-05
  1. X-squared = 325.61
  1. df = 5 (Degrees of Freedom)
  1. p-value < 1e-05

Conclusion - There is a significant difference in the number of survey responses between years. - The differences are not due to random variation. - Some years had much higher or much lower response counts than expected.




Percenteage of respondents who were willing to be contacted for additional research (using unfilitered AGS_SURVEY Data/not deduplicated)

Counts and Percentages for Column 354 in AGS_SURVEY
Response Count Percent
No 695 100










X axis capped to show less than 100 kU/L

n = 1594 displayed | 45 values above 100 kU/L excluded from chart Total n = 1639

Year Response Bin Count Percentage (%)
2024 0-9 132 12.8
2023 0-9 258 25.1
2022 0-9 253 24.6
2021 0-9 64 6.2
2020 0-9 147 14.3
2019 0-9 175 17.0
2024 10-19 17 10.1
2023 10-19 31 18.3
2022 10-19 34 20.1
2021 10-19 15 8.9
2020 10-19 34 20.1
2019 10-19 38 22.5
2024 20-29 6 5.8
2023 20-29 21 20.2
2022 20-29 30 28.8
2021 20-29 11 10.6
2020 20-29 20 19.2
2019 20-29 16 15.4
2024 30-39 8 10.5
2023 30-39 23 30.3
2022 30-39 15 19.7
2021 30-39 4 5.3
2020 30-39 6 7.9
2019 30-39 20 26.3
2024 40-49 3 5.8
2023 40-49 14 26.9
2022 40-49 12 23.1
2021 40-49 3 5.8
2020 40-49 11 21.2
2019 40-49 9 17.3
2024 50-59 6 13.0
2023 50-59 8 17.4
2022 50-59 10 21.7
2021 50-59 4 8.7
2020 50-59 12 26.1
2019 50-59 6 13.0
2024 60-69 2 6.7
2023 60-69 5 16.7
2022 60-69 10 33.3
2020 60-69 5 16.7
2019 60-69 8 26.7
2024 70-79 5 17.2
2023 70-79 10 34.5
2022 70-79 6 20.7
2021 70-79 1 3.4
2020 70-79 5 17.2
2019 70-79 2 6.9
2024 80-89 1 4.3
2023 80-89 4 17.4
2022 80-89 5 21.7
2021 80-89 2 8.7
2020 80-89 3 13.0
2019 80-89 8 34.8
2024 90-99 4 13.8
2023 90-99 9 31.0
2022 90-99 3 10.3
2021 90-99 3 10.3
2020 90-99 4 13.8
2019 90-99 6 20.7

n = 1587

Distribution of AG IgE at First Test

Response Bin Count Percentage (%)
<0.1 13 0.8
0.1-1.9 590 36.0
2.0-9.9 433 26.4
>10 603 36.8

n = 1639




Summary for AG IgE at Last Test:

Statistic Value
Mean 18.78
Median 3.33
Mode 0.1
Standard Deviation 58.63
Range 0 - 896
n = 1462 displayed 34 values above 100 kU/L excluded from chart

Total n = 1496




n = 1442





Distribution of AG IgE at Last Test

Response Bin Count Percentage (%)
<0.1 30 2.0
0.1-1.9 583 38.8
2.0-9.9 410 27.3
>10 480 31.9








Descriptive Statistics for GENDER:

Summary for GENDER
GENDER Count Percentage
FEMALE 1885 81.53
MALE 427 18.47




n= 2312







Descriptive Statistics for RACE:

Summary for RACE
RACE Count Percentage
WHITE 2174 95.81
AMERICAN INDIAN OR ALASKA NATIVE 48 2.12
UNKNOWN 21 0.93
BLACK OR AFRICAN AMERICAN 10 0.44
ASIAN 9 0.40
NATIVE HAWAIIAN OR OTHER PACIFIC ISLANDER 7 0.31




n= 2269


Descriptive Statistics for ETHNICITY:

Summary for ETHNICITY
ETHNICITY Count Percentage
NOT HISPANIC OR LATINO 2105 93.64
UNKNOWN 96 4.27
HISPANIC OR LATINO 47 2.09




n= 2248


Descriptive Statistics for EDUCATION:

Summary for EDUCATION
EDUCATION Count Percentage
BACHELORS 622 27.56
SOME COLLEGE 427 18.92
MASTERS 365 16.17
ASSOCIATES 245 10.86
HIGHSCHOOL OR EQUIVALENT 230 10.19
TRADE/TECHNICAL/VOCATIONAL 172 7.62
DOCTORATE 73 3.23
PROFESSIONAL DEGREE 67 2.97
SOME HIGHSCHOOL 56 2.48




n= 2257


Descriptive Statistics for AGE_RANGE:

Summary for AGE_RANGE
AGE_RANGE Count Percentage
55-64 653 28.70
45-54 639 28.09
65+ 390 17.14
35-44 384 16.88
25-34 154 6.77
18-24 55 2.42




n= 2275


Descriptive Statistics for HOUSEHOLD_INCOME:

Summary for HOUSEHOLD_INCOME
HOUSEHOLD_INCOME Count Percentage
BETWEEN $100,000 AND $150,000 450 22.08
BETWEEN $50,000 AND $74,999 409 20.07
BETWEEN $75,000 AND $99,999 338 16.58
OVER $150,000 307 15.06
BETWEEN $30,000 AND $49,999 288 14.13
BETWEEN $15,000 AND $29,999 163 8.00
UNDER $15,000 83 4.07




n= 2038


AGE_AT_FIRST_ALLERGIC_REACTIONS



Summary of AGE_AT_FIRST_ALLERGIC_REACTIONS
Statistic Value
Mean 45.26
Standard Deviation 15.96
Range 0 - 85




Age_Group Count
10-19 9
20-29 241
30-39 378
40-49 652
50-59 580
60-69 397
70-79 102
80-89 11



n = 2370

AGE_AT_DIAGNOSIS



Summary of AGE_AT_DIAGNOSIS
Statistic Value
Mean 49.57
Standard Deviation 13.84
Range 3 - 86



Age Count Percentage (%)
60 90 2.62
52 89 2.59
50 82 2.39
59 78 2.27
47 77 2.24
48 74 2.15
49 74 2.15
45 72 2.10
55 71 2.07
46 70 2.04
54 69 2.01
58 69 2.01
57 67 1.95
63 65 1.89
65 65 1.89
42 64 1.86
53 64 1.86
43 63 1.83
62 63 1.83
51 61 1.78
40 59 1.72
44 59 1.72
56 59 1.72
61 52 1.51
38 50 1.46
39 50 1.46
41 48 1.40
64 47 1.37
36 44 1.28
66 41 1.19
69 41 1.19
37 39 1.14
35 37 1.08
67 33 0.96
70 30 0.87
34 28 0.81
71 28 0.81
29 24 0.70
68 24 0.70
27 23 0.67
32 23 0.67
72 22 0.64
30 20 0.58
33 20 0.58
28 18 0.52
25 16 0.47
31 16 0.47
24 15 0.44
74 14 0.41
21 12 0.35
26 12 0.35
73 12 0.35
75 11 0.32
22 10 0.29
23 10 0.29
19 7 0.20
20 6 0.17
76 6 0.17
77 6 0.17
79 3 0.09
80 3 0.09
83 3 0.09
78 2 0.06
82 2 0.06
85 2 0.06
81 1 0.03
86 1 0.03



n = 2516



ADDITIONAL_TB_DIAGNOSIS



Additional Tickborne Diagnosis Count Percentage
NONE 2010 75.17
LYME (BORRELIA BURGDORFERI) 321 12.00
RICKETTSIAS AND/OR ROCKY MOUNTAIN SPOTTED FEVER 204 7.63
EHRLICHIOSIS 55 2.06
BABESIA 45 1.68
STARI (SOUTHERN TICK-ASSOCIATED RASH ILLNESS) 25 0.93
ANAPLASMOSIS 5 0.19
HEARTLAND VIRUS 4 0.15
BORRELIA MAYONNI 3 0.11
BORRELIA MIYAMOTOI 2 0.07



n = 2257



TYPE_OF_HEALTHCARE_PROVIDER_DIAGNOSIS



Type of Healthcare Provider Diagnosis Count Percentage
ALLERGIST 1227 53.60
PRIMARY CARE PROVIDER (MD OR DO) 702 30.67
NURSE PRACTITIONER 154 6.73
GASTROENTEROLOGIST 109 4.76
IMMUNOLOGIST 45 1.97
PHYSICIAN ASSISTANT 36 1.57
OBSTETRICIAN/GYNECOLOGIST 5 0.22
CARDIOLOGIST 3 0.13
ENDOCRINOLOGIST 3 0.13
PEDIATRICIAN 3 0.13
DENTIST 2 0.09



n = 2362



MAMMAL_INGREDIENT_REACTION



Mammal Ingredient Reaction Count Percentage
BEEF 2423 97.70
PORK 2163 87.22
DAIRY 1656 66.77
GELATIN (FOOD OR MEDICINE E.G. GEL CAPS) 1519 61.25
PERSONAL CARE PRODUCTS (E.G. TAMPONS, COSMETICS, SHAMPOO, LOTIONS) 1042 42.02
PRESCRIPTION MEDICATIONS 1024 41.29
OVER-THE-COUNTER MEDICATIONS 903 36.41
LAMB 841 33.91
HOUSEHOLD PRODUCTS (E.G. CLEANING PRODUCTS, LAUNDRY DETERGENT, OR DRYER SHEETS) 798 32.18
VENISON 772 31.13
VACCINATIONS 384 15.48
DENTAL/SURGICAL MEDICAL SUPPLIES 323 13.02
TEXTILES 309 12.46



n = 2558






NUMBER_REACTIONS_PRIOR_TO_DIAGNOSIS



Non-empty values: 39 Unique values: NA, NONE Total responses after filtering: 37
Number of Reactions Prior to Diagnosis Count Percentage
NONE 37 100

n = 37



n = 37



MEDICAL_INTERVENTIONS_FOR_ALPHA_GAL_SYNDROME



Medical Intervention Count Percentage (%)
NONE OF THE ABOVE 1878 54.66
VISITED THE EMERGENCY ROOM 935 27.21
VISITED AN URGENT CARE FACILITY 257 7.48
SELF-ADMINISTERED AN EPI-PEN 159 4.63
ADMITTED TO THE HOSPITAL 153 4.45
ADMITTED TO THE INTENSIVE CARE UNIT (ICU) 54 1.57



n = 3436

ADDITIONAL_ALLERGIES



Additional Allergy Count Percentage (%)
NONE OF THE ABOVE 2116 61.58
MEATS 833 24.24
DAIRY (COW/SHEEP/GOAT MILK, CHEESE, YOGURT, ETC.) 722 21.01
WHEAT (GLUTEN) 276 8.03
CARAGEENAN 264 7.68
SHELLFISH 194 5.65
EGG 181 5.27
PEANUT 164 4.77
TREE NUTS 164 4.77
FRUITS 115 3.35
SOY 115 3.35
SESAME/SESAME SEEDS 87 2.53
VEGETABLES 87 2.53
CEREALS & GRAINS 74 2.15
BEANS, LEGUMES, PULSES 65 1.89
FINNED FISH 43 1.25



n = 3436



EXPOSURE



Exposure Count Percentage (%)
HOME 2224 64.73
RESTAURANT/EATING OUT 1926 56.05
WORK 1001 29.13
NONE OF THE ABOVE 893 25.99
SCHOOL 160 4.66
COLLEGE 98 2.85
DAYCARE 8 0.23



n = 3436



POST_EXPOSURE_TIME



Post-Exposure Time Count Percentage (%)
4-6 HOURS 1291 49.77
6-8 HOURS 742 28.60
3 HOURS (180-239 MINUTES) 681 26.25
1 TO 2 HOURS (61-120 MINUTES) 569 21.94
6 TO 30 MINUTES 472 18.20
2 HOURS (120-179 MINUTES) 471 18.16
8 HOURS OR MORE 425 16.38
31 TO 60 MINUTES 403 15.54
0 TO 5 MINUTES 328 12.64
UNSURE 159 6.13



n = 3436



OTHER_FAMILY_MEMBERS_DIAGNOSED_WITH_AGS



Other Family Members Diagnosed with AGS Count Percentage (%)
NO 2063 79.53
NOT SURE 137 5.28
CHILD 46 1.77
SPOUSE 44 1.70
MOTHER 39 1.50
DAUGHTER 28 1.08
BROTHER 27 1.04
HUSBAND 25 0.96
SISTER 22 0.85
SON 21 0.81
FATHER 16 0.62
COUSIN 12 0.46
NEPHEW 11 0.42
SIBLING 11 0.42
AUNT 10 0.39
NIECE 8 0.31
BROTHER IN LAW 7 0.27
GRANDDAUGHTER 6 0.23
UNCLE 6 0.23
WIFE 6 0.23
3 CHILDREN 5 0.19
MOM 5 0.19
COUSINS 4 0.15
FATHER IN LAW 4 0.15
MY HUSBAND 4 0.15
2 DAUGHTERS 3 0.12
DAUGHTER IN LAW 3 0.12
GRANDSON 3 0.12
SISTER IN LAW 3 0.12
ADULT CHILD 2 0.08
DAD 2 0.08
GRANDCHILD 2 0.08
MOTHER AND SISTER IN LAW 2 0.08
MY NIECE 2 0.08
MY SISTER 2 0.08
NEICE 2 0.08
STEP FATHER 2 0.08
STEP SISTER 2 0.08
TWO DAUGHTERS 2 0.08
2 CHILDREN 1 0.04
3 COUSINS 1 0.04
3RD COUSIN 1 0.04
A COUSIN 1 0.04
ADOPTED BROTHER (NOT GENETICALLY RELATED) 1 0.04
AND MY SISTER WHO IS 54 1 0.04
AND NOW HE HAS NO PROBLEM. 1 0.04
AND POSSIBLY FATHER 1 0.04
AND SISTER 1 0.04
BUT MY LIVE-IN GIRLFRIENDS OLDEST SISTER WHO IS NOW 70 1 0.04
BUT RECENTLY FOUND OUT SHE CAN EAT BEEF AGAIN. 1 0.04
CHILD (DAUGHTER) 1 0.04
DAD AND MOM BOTH GOT DIAGNOSED AFTER ME 1 0.04
DAUGHTER & SPOUSE 1 0.04
DAUGHTER-IN-LAW 1 0.04
DIFFERENT HOUSEHOLD 1 0.04
FIRST COUSIN 1 0.04
GRAND DAUGHTER 1 0.04
GRANDCHILDREN 1 0.04
GRANDMOTHER 1 0.04
GRANDSONS 1 0.04
GREAT AUNT 1 0.04
GREAT NEPHEW 1 0.04
GREAT UNCLE 1 0.04
HUSBAND AND TWO ADULT CHILDREN ARE AG POSTIVE 1 0.04
HUSBAND IS NOW BEING TESTED 1 0.04
I BELIEVE SPOUSE HAS BUT NOT TESTED 1 0.04
I HAVE A COUSIN WHO MIGHT HAVE IT 1 0.04
INLAWS 1 0.04
KIDS 1 0.04
MATERNAL COUSINS 1 0.04
MAYBE SON 1 0.04
ME 1 0.04
MOM WHO LIVES NEXT DOOR 1 0.04
MOTHER 1 0.04
MOTHER AND MAYBE OTHER FAMILY MEMBERS 1 0.04
MOTHER AND DAUGHTER 1 0.04
MOTHER AND MATERNAL GRANDFATHER 1 0.04
MOTHER AND SISTER 1 0.04
MOTHER AND SISTERS 1 0.04
MOTHER AND TWO SONS 1 0.04
MOTHER I CARE FOR 1 0.04
MOTHER IN LAW AND GRANDMOTHER IN LAW 1 0.04
MOTHER IN-LAW 1 0.04
MOTHER-IN-LAW 1 0.04
MY 12 YEAR OLD SON WAS DIAGNOSED RIGHT AFTER ME 1 0.04
MY 9 YEAR OLD DAUGHTER 1 0.04
MY BROTHER WHO IS 58 1 0.04
MY CHILD 1 0.04
MY DAUGHTER HAD IT FOR 8 YEARS 1 0.04
MY HALF-SISTER ON MY FATHERS SIDE 1 0.04
MY HUSBAND’S UNCLE HAS ALSO BEEN DIAGNOSED. (NOT A BLOOD RELATIVE TO ME) 1 0.04
MY MOTHER AND MY NIECE 1 0.04
MY NEPHEW 1 0.04
MY OLDEST SON WAS DIAGNOSED DECEMBER 2019 1 0.04
MY SON 1 0.04
MY SON HAD IT 8 YEARS 1 0.04
MY SPOUSE IS CURRENTLY BEING TESTED. WE HIGHLY SUSPECT HIS RESULTS WILL BE POSITIVE. 1 0.04
NEPHEW IN MONTANA 1 0.04
NIECE NIRVE GREAT NIECE NEPHEW GREAT NEPHEW 1 0.04
NIECE THAT DOES NOT LIVE WITH US 1 0.04
NINE CHILDREN 1 0.04
NOT FAMILY 1 0.04
NOT RELATED 1 0.04
OLDEST SON 1 0.04
PARENT 1 0.04
PATERNAL AUNT 1 0.04
RECENTLY DIAGNOSED. 1 0.04
SAME TOWN 1 0.04
SIBLING. BROTHER 1 0.04
SISTER 73 1 0.04
SISTER AND NIECE 1 0.04
SISTER-IN-LAW 1 0.04
SISTERINLAW 1 0.04
SISTERS-IN-LAW 1 0.04
SON 1 0.04
SPOUSE AND CHILD 1 0.04
SPOUSE. DAUGHTER. 1 0.04
SPOUSE; HE HAS GI SYMPTOMS 1 0.04
STEP-BROTHER 1 0.04
STEPSON 1 0.04
TWO OF MY CHILDREN 1 0.04



n = 2594



AGS_SYMPTOMS



AGS Symptoms Count Percentage (%)
GASTROINTESTINAL 2236 86.20
SKIN 2165 83.46
RESPIRATORY 1551 59.79
CARDIOVASCULAR 1072 41.33
EMOTIONAL 990 38.16
MOTOR (MUSCLES) 614 23.67
NERVOUS SYSTEM (REFLEXES) 603 23.25
NOT SURE 72 2.78
3 0.12



n = 2591



AGS_SYMPTOMS by Year



AGS Symptoms Breakdown by Year - Counts and Percentages
YEAR AGS_SYMPTOMS Count Total Percentage
2019 GASTROINTESTINAL 396 2236 17.7
2020 GASTROINTESTINAL 378 2236 16.9
2021 GASTROINTESTINAL 180 2236 8.1
2022 GASTROINTESTINAL 507 2236 22.7
2023 GASTROINTESTINAL 517 2236 23.1
2024 GASTROINTESTINAL 258 2236 11.5
2019 SKIN 414 2165 19.1
2020 SKIN 410 2165 18.9
2021 SKIN 197 2165 9.1
2022 SKIN 493 2165 22.8
2023 SKIN 490 2165 22.6
2024 SKIN 161 2165 7.4
2019 RESPIRATORY 297 1551 19.1
2020 RESPIRATORY 310 1551 20.0
2021 RESPIRATORY 141 1551 9.1
2022 RESPIRATORY 331 1551 21.3
2023 RESPIRATORY 356 1551 23.0
2024 RESPIRATORY 116 1551 7.5
2019 CARDIOVASCULAR 185 1072 17.3
2020 CARDIOVASCULAR 202 1072 18.8
2021 CARDIOVASCULAR 94 1072 8.8
2022 CARDIOVASCULAR 234 1072 21.8
2023 CARDIOVASCULAR 268 1072 25.0
2024 CARDIOVASCULAR 89 1072 8.3
2019 EMOTIONAL 181 990 18.3
2020 EMOTIONAL 162 990 16.4
2021 EMOTIONAL 70 990 7.1
2022 EMOTIONAL 228 990 23.0
2023 EMOTIONAL 261 990 26.4
2024 EMOTIONAL 88 990 8.9
2019 MOTOR (MUSCLES) 107 614 17.4
2020 MOTOR (MUSCLES) 110 614 17.9
2021 MOTOR (MUSCLES) 48 614 7.8
2022 MOTOR (MUSCLES) 135 614 22.0
2023 MOTOR (MUSCLES) 158 614 25.7
2024 MOTOR (MUSCLES) 56 614 9.1
2019 NERVOUS SYSTEM (REFLEXES) 109 603 18.1
2020 NERVOUS SYSTEM (REFLEXES) 112 603 18.6
2021 NERVOUS SYSTEM (REFLEXES) 44 603 7.3
2022 NERVOUS SYSTEM (REFLEXES) 125 603 20.7
2023 NERVOUS SYSTEM (REFLEXES) 158 603 26.2
2024 NERVOUS SYSTEM (REFLEXES) 55 603 9.1
2019 NOT SURE 13 72 18.1
2020 NOT SURE 21 72 29.2
2021 NOT SURE 3 72 4.2
2022 NOT SURE 11 72 15.3
2023 NOT SURE 17 72 23.6
2024 NOT SURE 7 72 9.7



SKIN



Skin-Related Issues Count Percentage (%)
ITCHING 2080 80.19
HIVES (WELTS, URTICARIA) 1840 70.93
RASH (REDNESS OF SKIN) 1492 57.52
FLUSHING 1486 57.29
SWELLING (ANGIOEDEMA) 1173 45.22
HOT FLASH, HOT SKIN 1170 45.10
RED, ITCHY OR WATERY EYES 1028 39.63
NONE 152 5.86
UNSURE 39 1.50
23 0.89



n = 10483
Skin-Related Issues Count Percentage (%)
ITCHING 2080 80.19
HIVES (WELTS, URTICARIA) 1840 70.93
RASH (REDNESS OF SKIN) 1492 57.52
FLUSHING 1486 57.29
SWELLING (ANGIOEDEMA) 1173 45.22
HOT FLASH, HOT SKIN 1170 45.10
RED, ITCHY OR WATERY EYES 1028 39.63
NONE 152 5.86
UNSURE 39 1.50



RESPIRATORY



Respiratory Issues Count Percentage (%)
NASAL CONGESTION/STUFFY OR RUNNY NOSE 1318 50.81
TROUBLE BREATHING (SHORTNESS OF BREATH) 1203 46.38
CHEST TIGHTENING 1126 43.41
COUGHING 1126 43.41
ANAPHYLAXIS 905 34.89
HOARSE VOICE 877 33.81
WHEEZING 730 28.14
SNEEZING 646 24.90
CHEST PAIN 557 21.47
NONE 352 13.57
UNSURE 133 5.13
32 1.23



n = 9005



GASTROINTESTINAL



Gastrointestinal Issues Count Percentage (%)
DIARRHEA 1891 72.90
STOMACH PAIN/CRAMPS 1868 72.01
BLOATING 1516 58.44
NAUSEA 1488 57.36
ITCHY THROAT/EAR CANAL 1152 44.41
VOMITING 916 35.31
REFLUX 896 34.54
TONGUE SWELLING/THROAT TIGHTNESS 880 33.92
DIFFICULTY SWALLOWING 706 27.22
TINGLING MOUTH 691 26.64
CONSTIPATION 648 24.98
ODD TASTE IN MOUTH/METALLIC TASTE 549 21.16
BLOODY STOOLS 167 6.44
NONE 103 3.97
UNSURE 51 1.97
19 0.73



n = 13541



[1] 146

Number of Rows with AGS_SYMPTOMS == ‘GASTROINTESTINAL’
Symptom Count
GASTROINTESTINAL 146



CARDIOVASCULAR



Cardiovascular Issues Count Percentage (%)
LIGHTHEADEDNESS/DIZZINESS 1338 51.58
RAPID HEARTBEAT (TACHYCARDIA) 1022 39.40
LOW BLOOD PRESSURE 738 28.45
IRREGULAR HEART RATE 712 27.45
CHEST PAIN 501 19.31
NONE 481 18.54
A WEAK PULSE 280 10.79
UNSURE 279 10.76
SLOW HEARTBEAT (BRADYCARDIA) 167 6.44
TURNING BLUE 60 2.31
45 1.73
CARDIAC ARREST 24 0.93



n = 5647



EMOTIONAL_BEHAVIORAL



Emotional/Behavioral Issues Count Percentage (%)
ANXIETY 1696 65.38
FATIGUE 1476 56.90
SLEEP DISTURBANCES 1130 43.56
HEADACHE/MIGRAINES 1065 41.06
WITHDRAWAL FROM SOCIAL AND RECREATIONAL ACTIVITIES 998 38.47
IRRITABILITY 986 38.01
FEELING OF “IMPENDING DOOM” 872 33.62
MEMORY RECALL 833 32.11
DEPRESSION 823 31.73
PANIC 793 30.57
CONFUSION 715 27.56
NONE 229 8.83
UNSURE 112 4.32
18 0.69



n = 11746



NERVOUS_SYSTEM



Nervous System Issues Count Percentage (%)
ABNORMAL SWEATING 768 29.61
DRY SKIN 599 23.09
NONE 560 21.59
DEHYDRATION 557 21.47
WEIGHT GAIN 524 20.20
WEIGHT LOSS 436 16.81
FAINTING OR LOSS OF CONSCIOUSNESS 430 16.58
UNSURE 396 15.27
URINARY DYSFUNCTION 265 10.22
SEXUAL DYSFUNCTION 213 8.21
UTERINE CONTRACTIONS 103 3.97
89 3.43



n = 4940



MOTOR



Motor Issues Count Percentage (%)
NONE 916 35.31
MUSCLE CRAMPING 889 34.27
LEG WEAKNESS 599 23.09
ARM WEAKNESS 529 20.39
NOT SURE 426 16.42
MUSCLE WASTING 177 6.82
CLAWING OF TOES 155 5.98
128 4.93



n = 3819



CO-OCCURRING



Comorbid Diagnosis Count Percentage (%)
ALLERGIC RHINITIS (HAY FEVER) 927 35.74
VITAMIN D DEFICIENCY 923 35.58
HEARTBURN (ACID REFLUX) 896 34.54
DRUG ALLERGY 794 30.61
HIGH BLOOD PRESSURE (HYPERTENSION) 768 29.61
ANAPHYLAXIS 687 26.48
ASTHMA 631 24.33
MIGRAINE HEADACHES 599 23.09
IRRITABLE BOWEL SYNDROME 513 19.78
THYROID DISEASE 393 15.15
OSTEOARTHRITIS 378 14.57
BEE STING ALLERGY 353 13.61
HYPERTENSION 339 13.07
LACTOSE INTOLERANCE 328 12.64
CONTACT DERMATITIS 312 12.03
MENTAL HEALTH DISORDER 310 11.95
ATOPIC DERMATITIS (ECZEMA) 309 11.91
GLUTEN SENSITIVITY 280 10.79
LATEX ALLERGY 272 10.49
TYPE 2 DIABETES 227 8.75
NONE 199 7.67
ATTENTION-DEFICIT/HYPERACTIVITY DISORDER (ADHD) 196 7.56
CANCER 188 7.25
MAST CELL DISEASE 185 7.13
ARRHYTHMIAS 172 6.63
RHEUMATOID ARTHRITIS 118 4.55
HEART DISEASE 105 4.05
ORAL ALLERGY SYNDROME (OAS)/POLLEN-FOOD SYNDROME 92 3.55
CONNECTIVE TISSUE DISORDER 86 3.32
HEART DEFECTS 74 2.85
INFLAMMATORY BOWEL DISEASE (CROHN’S DISEASE/ULCERATIVE COLITIS) 57 2.20
CELIAC DISEASE 47 1.81
STROKE 47 1.81
EOSINOPHILIC ESOPHAGITIS 36 1.39
UNSURE 35 1.35
HISTAMINE TOXICITY (SCOMBROID POISONING) 23 0.89
16 0.62
HYPER-IGE SYNDROME (HIE) 15 0.58
AUTISM 12 0.46
FOOD PROTEIN-INDUCED ENTEROCOLITIS SYNDROME (FPIES) 12 0.46
TYPE 1 DIABETES 11 0.42



n = 11965



OUTGROWN_OR_TOLERANT_TO_MAMMALIAN_INGREDIENTS



Outgrown or Tolerant to Mammalian Ingredients Count Percentage (%)
NO 1865 71.90
UNSURE 546 21.05
YES 183 7.05



n = 2594




Response Rate

Question N Total N Answered Response Rate
Please provide any additional input, comments, opinions, or suggestions below. Please feel free to share advice or feedback for healthcare providers, other AGS patients, or other affected individuals. 3437 1666 48.5%
Besides avoidance of mammalian ingredients, are there other therapies or interventions you have discovered that help reduce the severity and frequency of Alpha-gal reactions or symptoms? Please Explain. 3437 2199 64.0%
Ethnicity: 3437 2248 65.4%
Have you ever been diagnosed with any of the following tick-borne conditions? Please check all that apply. 3437 2257 65.7%
Education: 3437 2257 65.7%
Race (Select all that apply): 3437 2269 66.0%
Household Income: 3437 2272 66.1%
PREVENTION_METHOD 3437 2273 66.1%
Zip Code: 3437 2291 66.7%
When was your MOST RECENT AGS blood test performed and what was your Alpha-gal IgE value? 3437 2294 66.7%
Gender: 3437 2312 67.3%
Age Range: 3437 2317 67.4%
This concludes our survey. THANK YOU for your participation. Do you want to be contacted by TBC United with information about future clinical trials or research studies?: 3437 2323 67.6%
MENTAL_HEALTH_CONCERNS 3437 2344 68.2%
What, if any, financial impacts (positive or negative) have you experienced due to Alpha-gal Syndrome? 3437 2348 68.3%
What type of doctor or healthcare provider first made the Alpha-gal syndrome diagnosis? 3437 2363 68.8%
What, if any, social impacts (positive or negative) have you experienced due to Alpha-gal Syndrome (e.g. ability to go out, spend time with family and friends, etc)? 3437 2402 69.9%
Has the participant ever been diagnosed by a doctor as allergic to any of the following foods or food groups? (Check all that apply.) 3437 2467 71.8%
Choose the MOTOR (muscle) symptoms that you experience after exposure to mammalian ingredients. (Select all that apply.) 3437 2467 71.8%
Choose the NERVOUS SYSTEM (reflexes) symptoms that you experience after exposure to mammalian ingredients. (Select all that apply.) 3437 2506 72.9%
Do you currently use products that have been genetically modified? 3437 2510 73.0%
Indicate your willingness to consume a food product such as steak, bacon, or lamb that is a product of animal biotechnology. 3437 2510 73.0%
Indicate your willingness to use OVER-THE-COUNTER MEDICATIONS with mammal ingredients that have had the alpha-gal carbohydrate removed and verified to be Alpha-gal free. 3437 2510 73.0%
Indicate your willingness to use PRESCRIPTION MEDICATIONS with mammal ingredients that have had the alpha-gal carbohydrate removed and verified to be Alpha-gal free. 3437 2510 73.0%
Indicate your willingness to use VACCINATIONS with mammal ingredients that have had the alpha-gal carbohydrate removed and verified to be Alpha-gal free. 3437 2510 73.0%
Indicate your willingness to use FOOD PRODUCTS such as steak, bacon, or lamb that have had the alpha-gal carbohydrate removed and verified to be Alpha-gal free. 3437 2510 73.0%
Indicate your willingness to use PERSONAL CARE PRODUCTS such as shampoo or cosmetics with mammal ingredients that have had the alpha-gal carbohydrate removed and verified to be Alpha-gal free. 3437 2510 73.0%
Indicate your willingness to use HOUSEHOLD PRODUCTS such as cleaning products or laundry detergent with mammal ingredients that have had the alpha-gal carbohydrate removed and verified to be Alpha-gal free. 3437 2510 73.0%
ACCESS_INFORMATION 3437 2536 73.8%
When was your FIRST AGS blood test performed and what was your Alpha-gal IgE value? 3437 2543 74.0%
Where have you had exposures that caused reactions to occur? Check all that apply. 3437 2544 74.0%
Choose the CARDIOVASCULAR (heart) symptoms you experience from a reaction to mammalian ingredients. (Select all that apply.) 3437 2550 74.2%
At what age did you first begin experiencing allergic reactions (e.g. eczema, hives, itching) to mammalian ingredients? 3437 2554 74.3%
What mammalian ingredients/items have you reacted to? Check all that apply. 3437 2559 74.5%
Choose the RESPIRATORY (lungs/breathing) symptoms you experience from a reaction to mammalian ingredients (Select all that apply.) 3437 2563 74.6%
How easy is it to identify Alpha-gal free vaccines? 3437 2567 74.7%
How easy is it to identify Alpha-gal free household items? Examples include cleaning products, laundry detergent, and dryer sheets. 3437 2568 74.7%
How easy is it to identify Alpha-gal free personal care products? Examples include shampoo, cosmetics, and soap. 3437 2569 74.7%
How easy is it to identify Alpha-gal free over-the-counter medications? 3437 2570 74.8%
How easy is it to identify Alpha-gal free prescription medications? 3437 2570 74.8%
Choose the SKIN symptoms you experience from a reaction to mammalian ingredients. (Select all that apply.) 3437 2572 74.8%
Would you use an Alpha-gal free valve replacement that was from a pig or other mammal that has been genetically modified? 3437 2572 74.8%
Choose the GASTROINTESTINAL (digestive tract) symptoms you experience from a reaction to mammalian ingredients. (Select all that apply.) 3437 2576 74.9%
Choose the EMOTIONAL/BEHAVIORAL symptoms you experience due to the Alpha-gal Syndrome diagnosis (Select all that apply.) 3437 2577 75.0%
COMORBID_DIAGNOSIS 3437 2579 75.0%
How many reactions did you experience prior to diagnosis? 3437 2581 75.1%
How easy is it to identify Alpha-gal free food products? (Likeart scale 1-10) 3437 2586 75.2%
If you needed a heart valve replacement and it were available, would you ask your healthcare provider to use an Alpha-gal free heart valve? 3437 2588 75.3%
Would you eat Alpha-gal free pork, beef, or lamb? 3437 2589 75.3%
What type of symptoms do you have? (Select all that apply.) 3437 2592 75.4%
Do you remember being bitten by a tick prior to symptoms of Alpha-gal Syndrome? 3437 2595 75.5%
At what age were you diagnosed with Alpha-gal Syndrome? 3437 2595 75.5%
Before you developed Alpha-gal Syndrome, what was your primary dietary preference? Please select the best option. 3437 2595 75.5%
Since your Alpha-gal Syndrome diagnosis, how many reactions do you have per year? 3437 2595 75.5%
Which of the following medical interventions have you experienced because of Alpha-gal Syndrome? 3437 2595 75.5%
How soon after exposure to mammalian ingredients do your reactions occur? Check all that apply. 3437 2595 75.5%
Do you have other family members diagnosed with AGS? 3437 2595 75.5%
OUTGROWN_OR_TOLERANT_TO_MAMMALIAN_INGREDIENTS 3437 2595 75.5%
You are invited to participate 3437 3418 99.4%
Respondent ID 3437 3437 100.0%
Collector ID 3437 3437 100.0%
Start Date 3437 3437 100.0%
End Date 3437 3437 100.0%
IP Address 3437 3437 100.0%
Have you been diagnosed with Alpha-gal Syndrome? 3437 3437 100.0%



Bias Rate



Question N Total N Answered N Non-response N Opt-out Response Rate Non-response Rate Opt-out Rate High Non-response? High Opt-out?
Please provide any additional input, comments, opinions, or suggestions below. Please feel free to share advice or feedback for healthcare providers, other AGS patients, or other affected individuals. 3437 1666 1771 433 48.5% 51.5% 12.6% TRUE TRUE
Besides avoidance of mammalian ingredients, are there other therapies or interventions you have discovered that help reduce the severity and frequency of Alpha-gal reactions or symptoms? Please Explain. 3437 2199 1238 338 64.0% 36.0% 9.8% TRUE TRUE
Ethnicity: 3437 2248 1189 0 65.4% 34.6% 0.0% TRUE FALSE
Education: 3437 2257 1180 239 65.7% 34.3% 7.0% TRUE TRUE
Have you ever been diagnosed with any of the following tick-borne conditions? Please check all that apply. 3437 2257 1180 5 65.7% 34.3% 0.1% TRUE FALSE
Race (Select all that apply): 3437 2269 1168 55 66.0% 34.0% 1.6% TRUE FALSE
Household Income: 3437 2272 1165 88 66.1% 33.9% 2.6% TRUE FALSE
PREVENTION_METHOD 3437 2273 1164 1357 66.1% 33.9% 39.5% TRUE TRUE
Zip Code: 3437 2291 1146 0 66.7% 33.3% 0.0% TRUE FALSE
When was your MOST RECENT AGS blood test performed and what was your Alpha-gal IgE value? 3437 2294 1143 43 66.7% 33.3% 1.3% TRUE FALSE
Gender: 3437 2312 1125 0 67.3% 32.7% 0.0% TRUE FALSE
Age Range: 3437 2317 1120 0 67.4% 32.6% 0.0% TRUE FALSE
This concludes our survey. THANK YOU for your participation. Do you want to be contacted by TBC United with information about future clinical trials or research studies?: 3437 2323 1114 82 67.6% 32.4% 2.4% TRUE FALSE
MENTAL_HEALTH_CONCERNS 3437 2344 1093 0 68.2% 31.8% 0.0% TRUE FALSE
What, if any, financial impacts (positive or negative) have you experienced due to Alpha-gal Syndrome? 3437 2348 1089 343 68.3% 31.7% 10.0% TRUE TRUE
What type of doctor or healthcare provider first made the Alpha-gal syndrome diagnosis? 3437 2363 1074 0 68.8% 31.2% 0.0% TRUE FALSE
What, if any, social impacts (positive or negative) have you experienced due to Alpha-gal Syndrome (e.g. ability to go out, spend time with family and friends, etc)? 3437 2402 1035 278 69.9% 30.1% 8.1% TRUE TRUE
Has the participant ever been diagnosed by a doctor as allergic to any of the following foods or food groups? (Check all that apply.) 3437 2467 970 264 71.8% 28.2% 7.7% TRUE TRUE
Choose the MOTOR (muscle) symptoms that you experience after exposure to mammalian ingredients. (Select all that apply.) 3437 2467 970 0 71.8% 28.2% 0.0% TRUE FALSE
Choose the NERVOUS SYSTEM (reflexes) symptoms that you experience after exposure to mammalian ingredients. (Select all that apply.) 3437 2506 931 265 72.9% 27.1% 7.7% TRUE TRUE
Do you currently use products that have been genetically modified? 3437 2510 927 0 73.0% 27.0% 0.0% TRUE FALSE
Indicate your willingness to consume a food product such as steak, bacon, or lamb that is a product of animal biotechnology. 3437 2510 927 0 73.0% 27.0% 0.0% TRUE FALSE
Indicate your willingness to use OVER-THE-COUNTER MEDICATIONS with mammal ingredients that have had the alpha-gal carbohydrate removed and verified to be Alpha-gal free. 3437 2510 927 0 73.0% 27.0% 0.0% TRUE FALSE
Indicate your willingness to use PRESCRIPTION MEDICATIONS with mammal ingredients that have had the alpha-gal carbohydrate removed and verified to be Alpha-gal free. 3437 2510 927 0 73.0% 27.0% 0.0% TRUE FALSE
Indicate your willingness to use VACCINATIONS with mammal ingredients that have had the alpha-gal carbohydrate removed and verified to be Alpha-gal free. 3437 2510 927 0 73.0% 27.0% 0.0% TRUE FALSE
Indicate your willingness to use FOOD PRODUCTS such as steak, bacon, or lamb that have had the alpha-gal carbohydrate removed and verified to be Alpha-gal free. 3437 2510 927 0 73.0% 27.0% 0.0% TRUE FALSE
Indicate your willingness to use PERSONAL CARE PRODUCTS such as shampoo or cosmetics with mammal ingredients that have had the alpha-gal carbohydrate removed and verified to be Alpha-gal free. 3437 2510 927 0 73.0% 27.0% 0.0% TRUE FALSE
Indicate your willingness to use HOUSEHOLD PRODUCTS such as cleaning products or laundry detergent with mammal ingredients that have had the alpha-gal carbohydrate removed and verified to be Alpha-gal free. 3437 2510 927 0 73.0% 27.0% 0.0% TRUE FALSE
ACCESS_INFORMATION 3437 2536 901 0 73.8% 26.2% 0.0% TRUE FALSE
When was your FIRST AGS blood test performed and what was your Alpha-gal IgE value? 3437 2543 894 11 74.0% 26.0% 0.3% TRUE FALSE
Where have you had exposures that caused reactions to occur? Check all that apply. 3437 2544 893 0 74.0% 26.0% 0.0% TRUE FALSE
Choose the CARDIOVASCULAR (heart) symptoms you experience from a reaction to mammalian ingredients. (Select all that apply.) 3437 2550 887 0 74.2% 25.8% 0.0% TRUE FALSE
At what age did you first begin experiencing allergic reactions (e.g. eczema, hives, itching) to mammalian ingredients? 3437 2554 883 0 74.3% 25.7% 0.0% TRUE FALSE
What mammalian ingredients/items have you reacted to? Check all that apply. 3437 2559 878 1200 74.5% 25.5% 34.9% TRUE TRUE
Choose the RESPIRATORY (lungs/breathing) symptoms you experience from a reaction to mammalian ingredients (Select all that apply.) 3437 2563 874 1726 74.6% 25.4% 50.2% TRUE TRUE
How easy is it to identify Alpha-gal free vaccines? 3437 2567 870 0 74.7% 25.3% 0.0% TRUE FALSE
How easy is it to identify Alpha-gal free household items? Examples include cleaning products, laundry detergent, and dryer sheets. 3437 2568 869 0 74.7% 25.3% 0.0% TRUE FALSE
How easy is it to identify Alpha-gal free personal care products? Examples include shampoo, cosmetics, and soap. 3437 2569 868 0 74.7% 25.3% 0.0% TRUE FALSE
How easy is it to identify Alpha-gal free over-the-counter medications? 3437 2570 867 0 74.8% 25.2% 0.0% TRUE FALSE
How easy is it to identify Alpha-gal free prescription medications? 3437 2570 867 0 74.8% 25.2% 0.0% TRUE FALSE
Choose the SKIN symptoms you experience from a reaction to mammalian ingredients. (Select all that apply.) 3437 2572 865 0 74.8% 25.2% 0.0% TRUE FALSE
Would you use an Alpha-gal free valve replacement that was from a pig or other mammal that has been genetically modified? 3437 2572 865 0 74.8% 25.2% 0.0% TRUE FALSE
Choose the GASTROINTESTINAL (digestive tract) symptoms you experience from a reaction to mammalian ingredients. (Select all that apply.) 3437 2576 861 1845 74.9% 25.1% 53.7% TRUE TRUE
Choose the EMOTIONAL/BEHAVIORAL symptoms you experience due to the Alpha-gal Syndrome diagnosis (Select all that apply.) 3437 2577 860 998 75.0% 25.0% 29.0% TRUE TRUE
COMORBID_DIAGNOSIS 3437 2579 858 688 75.0% 25.0% 20.0% TRUE TRUE
How many reactions did you experience prior to diagnosis? 3437 2581 856 0 75.1% 24.9% 0.0% TRUE FALSE
How easy is it to identify Alpha-gal free food products? (Likeart scale 1-10) 3437 2586 851 0 75.2% 24.8% 0.0% TRUE FALSE
If you needed a heart valve replacement and it were available, would you ask your healthcare provider to use an Alpha-gal free heart valve? 3437 2588 849 0 75.3% 24.7% 0.0% TRUE FALSE
Would you eat Alpha-gal free pork, beef, or lamb? 3437 2589 848 0 75.3% 24.7% 0.0% TRUE FALSE
What type of symptoms do you have? (Select all that apply.) 3437 2592 845 2310 75.4% 24.6% 67.2% TRUE TRUE
Do you have other family members diagnosed with AGS? 3437 2595 842 7 75.5% 24.5% 0.2% TRUE FALSE
Do you remember being bitten by a tick prior to symptoms of Alpha-gal Syndrome? 3437 2595 842 0 75.5% 24.5% 0.0% TRUE FALSE
At what age were you diagnosed with Alpha-gal Syndrome? 3437 2595 842 0 75.5% 24.5% 0.0% TRUE FALSE
Before you developed Alpha-gal Syndrome, what was your primary dietary preference? Please select the best option. 3437 2595 842 0 75.5% 24.5% 0.0% TRUE FALSE
Since your Alpha-gal Syndrome diagnosis, how many reactions do you have per year? 3437 2595 842 0 75.5% 24.5% 0.0% TRUE FALSE
Which of the following medical interventions have you experienced because of Alpha-gal Syndrome? 3437 2595 842 0 75.5% 24.5% 0.0% TRUE FALSE
How soon after exposure to mammalian ingredients do your reactions occur? Check all that apply. 3437 2595 842 0 75.5% 24.5% 0.0% TRUE FALSE
OUTGROWN_OR_TOLERANT_TO_MAMMALIAN_INGREDIENTS 3437 2595 842 0 75.5% 24.5% 0.0% TRUE FALSE



BIAS

Explanation of values

Count = number of those respondents who selected that specific category from AGS_SYMPTOMS

YearN = number of respondents in that year who gave a nonblank answer to AGS_SYMPTOMS

Total = Count of respondents across all years who selected that specific symptom category

AGS Major Symptom Categories by Year - Counts and Percentages
YEAR AGS_SYMPTOMS Count YearN Percentage Total
2019 GASTROINTESTINAL 396 467 84.8 2236
2020 GASTROINTESTINAL 378 470 80.4 2236
2021 GASTROINTESTINAL 180 221 81.4 2236
2022 GASTROINTESTINAL 507 584 86.8 2236
2023 GASTROINTESTINAL 517 580 89.1 2236
2024 GASTROINTESTINAL 258 269 95.9 2236
2019 SKIN 414 467 88.7 2165
2020 SKIN 410 470 87.2 2165
2021 SKIN 197 221 89.1 2165
2022 SKIN 493 584 84.4 2165
2023 SKIN 490 580 84.5 2165
2024 SKIN 161 269 59.9 2165
2019 RESPIRATORY 297 467 63.6 1551
2020 RESPIRATORY 310 470 66.0 1551
2021 RESPIRATORY 141 221 63.8 1551
2022 RESPIRATORY 331 584 56.7 1551
2023 RESPIRATORY 356 580 61.4 1551
2024 RESPIRATORY 116 269 43.1 1551
2019 CARDIOVASCULAR 185 467 39.6 1072
2020 CARDIOVASCULAR 202 470 43.0 1072
2021 CARDIOVASCULAR 94 221 42.5 1072
2022 CARDIOVASCULAR 234 584 40.1 1072
2023 CARDIOVASCULAR 268 580 46.2 1072
2024 CARDIOVASCULAR 89 269 33.1 1072
2019 EMOTIONAL 181 467 38.8 990
2020 EMOTIONAL 162 470 34.5 990
2021 EMOTIONAL 70 221 31.7 990
2022 EMOTIONAL 228 584 39.0 990
2023 EMOTIONAL 261 580 45.0 990
2024 EMOTIONAL 88 269 32.7 990
2019 MOTOR (MUSCLES) 107 467 22.9 614
2020 MOTOR (MUSCLES) 110 470 23.4 614
2021 MOTOR (MUSCLES) 48 221 21.7 614
2022 MOTOR (MUSCLES) 135 584 23.1 614
2023 MOTOR (MUSCLES) 158 580 27.2 614
2024 MOTOR (MUSCLES) 56 269 20.8 614
2019 NERVOUS SYSTEM (REFLEXES) 109 467 23.3 603
2020 NERVOUS SYSTEM (REFLEXES) 112 470 23.8 603
2021 NERVOUS SYSTEM (REFLEXES) 44 221 19.9 603
2022 NERVOUS SYSTEM (REFLEXES) 125 584 21.4 603
2023 NERVOUS SYSTEM (REFLEXES) 158 580 27.2 603
2024 NERVOUS SYSTEM (REFLEXES) 55 269 20.4 603
2019 NOT SURE 13 467 2.8 72
2020 NOT SURE 21 470 4.5 72
2021 NOT SURE 3 221 1.4 72
2022 NOT SURE 11 584 1.9 72
2023 NOT SURE 17 580 2.9 72
2024 NOT SURE 7 269 2.6 72

Percentage answered yes by year (checking my math from the last chart)

YearN = count of those answered records within each year (Denomenator)

Count= respondent answered yes, (numerator)

AGS Major Symptom Categories by Year - Counts and % of Respondents Who Answered the Top-Level Symptom Question
YEAR AGS_SYMPTOMS Count YearN Percentage
2019 GASTROINTESTINAL 396 467 84.8
2020 GASTROINTESTINAL 378 470 80.4
2021 GASTROINTESTINAL 180 221 81.4
2022 GASTROINTESTINAL 507 584 86.8
2023 GASTROINTESTINAL 517 580 89.1
2024 GASTROINTESTINAL 258 269 95.9
2019 SKIN 414 467 88.7
2020 SKIN 410 470 87.2
2021 SKIN 197 221 89.1
2022 SKIN 493 584 84.4
2023 SKIN 490 580 84.5
2024 SKIN 161 269 59.9
2019 RESPIRATORY 297 467 63.6
2020 RESPIRATORY 310 470 66.0
2021 RESPIRATORY 141 221 63.8
2022 RESPIRATORY 331 584 56.7
2023 RESPIRATORY 356 580 61.4
2024 RESPIRATORY 116 269 43.1
2019 CARDIOVASCULAR 185 467 39.6
2020 CARDIOVASCULAR 202 470 43.0
2021 CARDIOVASCULAR 94 221 42.5
2022 CARDIOVASCULAR 234 584 40.1
2023 CARDIOVASCULAR 268 580 46.2
2024 CARDIOVASCULAR 89 269 33.1
2019 EMOTIONAL 181 467 38.8
2020 EMOTIONAL 162 470 34.5
2021 EMOTIONAL 70 221 31.7
2022 EMOTIONAL 228 584 39.0
2023 EMOTIONAL 261 580 45.0
2024 EMOTIONAL 88 269 32.7
2019 MOTOR (MUSCLES) 107 467 22.9
2020 MOTOR (MUSCLES) 110 470 23.4
2021 MOTOR (MUSCLES) 48 221 21.7
2022 MOTOR (MUSCLES) 135 584 23.1
2023 MOTOR (MUSCLES) 158 580 27.2
2024 MOTOR (MUSCLES) 56 269 20.8
2019 NERVOUS SYSTEM (REFLEXES) 109 467 23.3
2020 NERVOUS SYSTEM (REFLEXES) 112 470 23.8
2021 NERVOUS SYSTEM (REFLEXES) 44 221 19.9
2022 NERVOUS SYSTEM (REFLEXES) 125 584 21.4
2023 NERVOUS SYSTEM (REFLEXES) 158 580 27.2
2024 NERVOUS SYSTEM (REFLEXES) 55 269 20.4
2019 NOT SURE 13 467 2.8
2020 NOT SURE 21 470 4.5
2021 NOT SURE 3 221 1.4
2022 NOT SURE 11 584 1.9
2023 NOT SURE 17 580 2.9
2024 NOT SURE 7 269 2.6

Overview of Analysis table “Overall Logistic Regression Tests by Major Symptom Category”

This code analyzes whether the major AGS symptom categories changed by year.

It uses the AGS_SYMPTOMS field, which contains the main symptom categories each respondent selected. The code first identifies respondents who answered that symptom question, then splits the multi-select responses into individual categories such as Skin, Gastrointestinal, and Respiratory.

For each category, the code creates a yes/no flag for whether that respondent selected it and runs a logistic regression by year. This tests whether the likelihood of selecting each symptom category was significantly different across survey years.

Overall Logistic Regression Tests by Major Symptom Category
Symptom N Events LR_Stat DF P_Value Converged Note P_Adjusted Significant
SKIN 2591 2165 106.277754 5 0.0000000 TRUE NA 0.0000000 TRUE
GASTROINTESTINAL 2591 2236 49.482478 5 0.0000000 TRUE NA 0.0000000 TRUE
RESPIRATORY 2591 1551 45.170971 5 0.0000000 TRUE NA 0.0000001 TRUE
EMOTIONAL 2591 990 21.783906 5 0.0005755 TRUE NA 0.0028775 TRUE
CARDIOVASCULAR 2591 1072 14.972715 5 0.0104796 TRUE NA 0.0419182 TRUE
NERVOUS SYSTEM (REFLEXES) 2591 603 8.868989 5 0.1144052 TRUE NA 0.3432157 FALSE
NOT SURE 2591 72 8.266810 5 0.1421313 TRUE NA 0.3432157 FALSE
MOTOR (MUSCLES) 2591 614 5.952049 5 0.3109128 TRUE NA 0.3432157 FALSE

Overview of Analysis for table “Odds Ratios by Major Symptom Category vs Reference Year”

The reference year used in the logistic regression is 2019, so each odds ratio compares a given year against 2019.

ex: Compared with the reference year(2019), the odds of reporting gastrointestinal symptoms were significantly higher in 2023 (OR = 1.55, 95% CI: 1.08 to 2.23, p = 0.017), indicating approximately 55% higher odds of selecting gastrointestinal symptoms.

Odds Ratios by Major Symptom Category vs Reference Year
Symptom Term OR CI_Lower CI_Upper P_Value
SKIN YEAR2020 0.8747987 0.5887327 1.2966200 0.5056762
SKIN YEAR2021 1.0508253 0.6370742 1.7786625 0.8492438
SKIN YEAR2022 0.6935552 0.4799859 0.9934046 0.0481768
SKIN YEAR2023 0.6969941 0.4820535 0.9991100 0.0517403
SKIN YEAR2024 0.1908436 0.1303020 0.2765657 0.0000000
RESPIRATORY YEAR2020 1.1090067 0.8481657 1.4506018 0.4495887
RESPIRATORY YEAR2021 1.0088384 0.7243221 1.4103125 0.9586765
RESPIRATORY YEAR2022 0.7488588 0.5829776 0.9606637 0.0231717
RESPIRATORY YEAR2023 0.9096922 0.7067181 1.1699397 0.4615257
RESPIRATORY YEAR2024 0.4339693 0.3189899 0.5886924 0.0000001
GASTROINTESTINAL YEAR2020 0.7366601 0.5230824 1.0338655 0.0782573
GASTROINTESTINAL YEAR2021 0.7871397 0.5178533 1.2088620 0.2673032
GASTROINTESTINAL YEAR2022 1.1805392 0.8324457 1.6723307 0.3502435
GASTROINTESTINAL YEAR2023 1.4713404 1.0232129 2.1201820 0.0373795
GASTROINTESTINAL YEAR2024 4.2052337 2.2769605 8.5298299 0.0000167
CARDIOVASCULAR YEAR2020 1.1489310 0.8857566 1.4909568 0.2957941
CARDIOVASCULAR YEAR2021 1.1282401 0.8144684 1.5603599 0.4665647
CARDIOVASCULAR YEAR2022 1.0191197 0.7949737 1.3071482 0.8812817
CARDIOVASCULAR YEAR2023 1.3093555 1.0231880 1.6773195 0.0324875
CARDIOVASCULAR YEAR2024 0.7536937 0.5491107 1.0304352 0.0780031
EMOTIONAL YEAR2020 0.8310971 0.6366026 1.0843138 0.1730759
EMOTIONAL YEAR2021 0.7325016 0.5200754 1.0254140 0.0719640
EMOTIONAL YEAR2022 1.0119809 0.7885973 1.2993577 0.9254871
EMOTIONAL YEAR2023 1.2928177 1.0094964 1.6574439 0.0422386
EMOTIONAL YEAR2024 0.7682305 0.5591148 1.0513564 0.1014163
MOTOR (MUSCLES) YEAR2020 1.0280374 0.7587497 1.3932488 0.8583156
MOTOR (MUSCLES) YEAR2021 0.9334990 0.6309051 1.3665455 0.7266087
MOTOR (MUSCLES) YEAR2022 1.0115938 0.7580976 1.3522293 0.9377116
MOTOR (MUSCLES) YEAR2023 1.2596891 0.9504878 1.6741412 0.1096204
MOTOR (MUSCLES) YEAR2024 0.8845597 0.6112598 1.2697642 0.5100665
NERVOUS SYSTEM (REFLEXES) YEAR2020 1.0275229 0.7598318 1.3898582 0.8599766
NERVOUS SYSTEM (REFLEXES) YEAR2021 0.8164619 0.5467571 1.2034057 0.3127176
NERVOUS SYSTEM (REFLEXES) YEAR2022 0.8944454 0.6683263 1.1982603 0.4535004
NERVOUS SYSTEM (REFLEXES) YEAR2023 1.2297056 0.9287694 1.6324028 0.1503337
NERVOUS SYSTEM (REFLEXES) YEAR2024 0.8441224 0.5827068 1.2123461 0.3638265
NOT SURE YEAR2020 1.6333733 0.8174264 3.3859533 0.1718676
NOT SURE YEAR2021 0.4805932 0.1093656 1.5095032 0.2562714
NOT SURE YEAR2022 0.6704256 0.2918170 1.5130325 0.3346583
NOT SURE YEAR2023 1.0545156 0.5087713 2.2361752 0.8870751
NOT SURE YEAR2024 0.9330593 0.3468406 2.3077276 0.8840707

Pairwaise Year Table shows the odds ratio of the response from one year to another as listed in the contrast column

Pairwise Year Contrasts for Significant Major Symptom Categories
Symptom Contrast OddsRatio CI_Lower CI_Upper P_Value
SKIN YEAR2019 / YEAR2020 1.1431201 0.6337377 2.0619314 1.0000000
SKIN YEAR2019 / YEAR2021 0.9516330 0.4425914 2.0461431 1.0000000
SKIN YEAR2019 / YEAR2022 1.4418462 0.8372084 2.4831579 0.4817682
SKIN YEAR2019 / YEAR2023 1.4347324 0.8321910 2.4735391 0.4817682
SKIN YEAR2019 / YEAR2024 5.2398922 2.9849749 9.1982248 0.0000000
SKIN YEAR2020 / YEAR2021 0.8324873 0.3919896 1.7679935 1.0000000
SKIN YEAR2020 / YEAR2022 1.2613252 0.7453438 2.1345066 1.0000000
SKIN YEAR2020 / YEAR2023 1.2551020 0.7408508 2.1263137 1.0000000
SKIN YEAR2020 / YEAR2024 4.5838509 2.6558107 7.9115916 0.0000000
SKIN YEAR2021 / YEAR2022 1.5151285 0.7393250 3.1050137 0.7134761
SKIN YEAR2021 / YEAR2023 1.5076531 0.7350837 3.0921888 0.7134761
SKIN YEAR2021 / YEAR2024 5.5062112 2.6479346 11.4498150 0.0000000
SKIN YEAR2022 / YEAR2023 0.9950662 0.6189248 1.5998012 1.0000000
SKIN YEAR2022 / YEAR2024 3.6341547 2.2143601 5.9642874 0.0000000
SKIN YEAR2023 / YEAR2024 3.6521739 2.2227413 6.0008667 0.0000000
RESPIRATORY YEAR2019 / YEAR2020 0.9017078 0.6034349 1.3474146 1.0000000
RESPIRATORY YEAR2019 / YEAR2021 0.9912390 0.6021320 1.6317932 1.0000000
RESPIRATORY YEAR2019 / YEAR2022 1.3353652 0.9188329 1.9407231 0.2085456
RESPIRATORY YEAR2019 / YEAR2023 1.0992730 0.7537891 1.6031023 1.0000000
RESPIRATORY YEAR2019 / YEAR2024 2.3043103 1.4567855 3.6449059 0.0000013
RESPIRATORY YEAR2020 / YEAR2021 1.0992908 0.6664655 1.8132075 1.0000000
RESPIRATORY YEAR2020 / YEAR2022 1.4809290 1.0163457 2.1578786 0.0220146
RESPIRATORY YEAR2020 / YEAR2023 1.2191011 0.8338060 1.7824381 0.7549086
RESPIRATORY YEAR2020 / YEAR2024 2.5554957 1.6121597 4.0508135 0.0000000
RESPIRATORY YEAR2021 / YEAR2022 1.3471677 0.8349317 2.1736637 0.5399717
RESPIRATORY YEAR2021 / YEAR2023 1.1089888 0.6854698 1.7941799 1.0000000
RESPIRATORY YEAR2021 / YEAR2024 2.3246767 1.3450475 4.0177927 0.0000723
RESPIRATORY YEAR2022 / YEAR2023 0.8232002 0.5798978 1.1685829 0.7217384
RESPIRATORY YEAR2022 / YEAR2024 1.7256031 1.1150824 2.6703911 0.0026950
RESPIRATORY YEAR2023 / YEAR2024 2.0962131 1.3505863 3.2534828 0.0000101
GASTROINTESTINAL YEAR2019 / YEAR2020 1.3574782 0.8156097 2.2593491 0.3912863
GASTROINTESTINAL YEAR2019 / YEAR2021 1.2704225 0.6743738 2.3932920 0.8952026
GASTROINTESTINAL YEAR2019 / YEAR2022 0.8470706 0.5028371 1.4269603 0.8952026
GASTROINTESTINAL YEAR2019 / YEAR2023 0.6796524 0.3942749 1.1715869 0.2616563
GASTROINTESTINAL YEAR2019 / YEAR2024 0.2377989 0.0892970 0.6332615 0.0002177
GASTROINTESTINAL YEAR2020 / YEAR2021 0.9358696 0.5075357 1.7256949 0.8952026
GASTROINTESTINAL YEAR2020 / YEAR2022 0.6240031 0.3802613 1.0239797 0.0415494
GASTROINTESTINAL YEAR2020 / YEAR2023 0.5006728 0.2978166 0.8417034 0.0011126
GASTROINTESTINAL YEAR2020 / YEAR2024 0.1751770 0.0666893 0.4601480 0.0000018
GASTROINTESTINAL YEAR2021 / YEAR2022 0.6667629 0.3579670 1.2419377 0.3347062
GASTROINTESTINAL YEAR2021 / YEAR2023 0.5349814 0.2816931 1.0160172 0.0378302
GASTROINTESTINAL YEAR2021 / YEAR2024 0.1871810 0.0663951 0.5277001 0.0000291
GASTROINTESTINAL YEAR2022 / YEAR2023 0.8023563 0.4716493 1.3649453 0.8952026
GASTROINTESTINAL YEAR2022 / YEAR2024 0.2807309 0.1061894 0.7421632 0.0013785
GASTROINTESTINAL YEAR2023 / YEAR2024 0.3498831 0.1306979 0.9366501 0.0174641
CARDIOVASCULAR YEAR2019 / YEAR2020 0.8703743 0.5894303 1.2852265 1.0000000
CARDIOVASCULAR YEAR2019 / YEAR2021 0.8863362 0.5449363 1.4416215 1.0000000
CARDIOVASCULAR YEAR2019 / YEAR2022 0.9812390 0.6762667 1.4237431 1.0000000
CARDIOVASCULAR YEAR2019 / YEAR2023 0.7637345 0.5275511 1.1056568 0.4131932
CARDIOVASCULAR YEAR2019 / YEAR2024 1.3267989 0.8284717 2.1248709 0.7020278
CARDIOVASCULAR YEAR2020 / YEAR2021 1.0183392 0.6275949 1.6523632 1.0000000
CARDIOVASCULAR YEAR2020 / YEAR2022 1.1273759 0.7794226 1.6306641 1.0000000
CARDIOVASCULAR YEAR2020 / YEAR2023 0.8774783 0.6080340 1.2663241 1.0000000
CARDIOVASCULAR YEAR2020 / YEAR2024 1.5244005 0.9542138 2.4352999 0.1155386
CARDIOVASCULAR YEAR2021 / YEAR2022 1.1070732 0.6919054 1.7713563 1.0000000
CARDIOVASCULAR YEAR2021 / YEAR2023 0.8616759 0.5394965 1.3762560 1.0000000
CARDIOVASCULAR YEAR2021 / YEAR2024 1.4969477 0.8623660 2.5984936 0.4131932
CARDIOVASCULAR YEAR2022 / YEAR2023 0.7783369 0.5495119 1.1024480 0.4131932
CARDIOVASCULAR YEAR2022 / YEAR2024 1.3521669 0.8587541 2.1290790 0.5109442
CARDIOVASCULAR YEAR2023 / YEAR2024 1.7372515 1.1053582 2.7303754 0.0050468
EMOTIONAL YEAR2019 / YEAR2020 1.2032289 0.8076843 1.7924822 0.8653795
EMOTIONAL YEAR2019 / YEAR2021 1.3651848 0.8215975 2.2684216 0.6476763
EMOTIONAL YEAR2019 / YEAR2022 0.9881610 0.6799829 1.4360099 1.0000000
EMOTIONAL YEAR2019 / YEAR2023 0.7735043 0.5336812 1.1210978 0.4749755
EMOTIONAL YEAR2019 / YEAR2024 1.3016926 0.8115575 2.0878419 0.7099144
EMOTIONAL YEAR2020 / YEAR2021 1.1346011 0.6805321 1.8916371 1.0000000
EMOTIONAL YEAR2020 / YEAR2022 0.8212577 0.5625597 1.1989202 0.7595019
EMOTIONAL YEAR2020 / YEAR2023 0.6428571 0.4415081 0.9360311 0.0083582
EMOTIONAL YEAR2020 / YEAR2024 1.0818329 0.6720479 1.7414868 1.0000000
EMOTIONAL YEAR2021 / YEAR2022 0.7238294 0.4425259 1.1839512 0.5386287
EMOTIONAL YEAR2021 / YEAR2023 0.5665931 0.3470924 0.9249056 0.0093389
EMOTIONAL YEAR2021 / YEAR2024 0.9534919 0.5388772 1.6871130 1.0000000
EMOTIONAL YEAR2022 / YEAR2023 0.7827715 0.5520011 1.1100182 0.4749755
EMOTIONAL YEAR2022 / YEAR2024 1.3172880 0.8353255 2.0773314 0.6476763
EMOTIONAL YEAR2023 / YEAR2024 1.6828512 1.0694547 2.6480675 0.0097732
Number of Respondents Providing a Nonblank Response by Question
Question RespondentCount
ADDITIONAL_ALLERGIES 2594
AGE_AT_DIAGNOSIS 2594
DIAGNOSED_WITH_ALPHA_GAL_SYNDROME 2594
EXPOSED 2594
MEDICAL_INTERVENTIONS_FOR_ALPHA_GAL_SYNDROME 2594
OTHER_FAMILY_MEMBERS_DIAGNOSED_WITH_AGS 2594
OUTGROWN_OR_TOLERANT_TO_MAMMALIAN_INGREDIENTS 2594
POST_EXPOSURE_TIME 2594
PRIMARY_DIETARY_PREFERENCE_PREDIAGNOSIS 2594
REACTIONS_PER_YEAR_POST_DIAGNOSIS 2594
RESPONDENT_ID 2594
START_DATE 2594
YEAR 2594
AGS_SYMPTOMS 2591
WILLINGNESS_TO_USE_HEART_VALVE 2587
COMORBID_DIAGNOSIS 2578
EMOTIONAL_BEHAVIORAL 2576
GASTROINTESTINAL 2575
SKIN 2571
EASE_OF_IDENTIFYING_OTC_MEDICATIONS 2569
EASE_OF_IDENTIFYING_RX_MEDICATIONS 2569
EASE_OF_IDENTIFYING_VACCINES 2566
RESPIRATORY 2562
MAMMAL_INGREDIENT_REACTION 2558
AGE_AT_FIRST_ALLERGIC_REACTIONS 2553
CARDIOVASCULAR 2549
ACCESS_INFORMATION 2535
INDICATE_YOUR_WILLINGNESS_TO_USE_PRESCRIPTION_MEDICATIONS_WITH_MAMMAL_INGREDIENTS_THAT_HAVE_HAD_THE_ALPHA_GAL_CARBOHYDRATE_REMOVED_AND_VERIFIED_TO_BE_ALPHA_GAL_FREE 2509
USE_OF_GMO_PRODUCTS 2509
WILLINGNESS_TO_CONSUME_MODIFIED_MEAT_PRODUCTS 2509
NERVOUS_SYSTEM 2505
MOTOR 2466
TYPE_OF_HEALTHCARE_PROVIDER_DIAGNOSIS 2362
FINANCIAL_IMPACTS_OF_AGS 2347
MENTAL_HEALTH_CONCERNS 2343
AGE_RANGE 2317
GENDER 2312
ZIP_CODE 2291
HOUSEHOLD_INCOME 2272
RACE 2269
ADDITIONAL_TB_DIAGNOSIS 2257
EDUCATION 2257
ETHNICITY 2248
OTHER_THERAPIES_TO_REDUCES_REACTIONS 2198
IGE_LEVEL_FIRST_AGS_BLOOD_TEST_CLEAN 1787
ADDITIONAL_COMMENTS 1665
IGE_LEVEL_FIRST_AGS_BLOOD_TEST 1646
DATE_RECENT_AGS_BLOOD_TEST_OTHER 982
MEDICAL_INTERVENTIONS_FOR_ALPHA_GAL_SYNDROME_OTHER 570
EXPOSED_OTHER 538
ADDITIONAL_TB_DIAGNOSIS_OTHER 432
ADDITIONAL_ALLERGIES_OTHER 410
OUTGROWN_OR_TOLERANT_COMMENTS 395
MENTAL_HEALTH_CONCERNS_OTHER 374
GASTROINTESTINAL_OTHER 267
SKIN_OTHER 263
TYPE_OF_HEALTHCARE_PROVIDER_DIAGNOSIS_OTHER 232
CARDIOVASCULAR_OTHER 222
MOTOR_OTHER 208
EMOTIONAL_BEHAVIORAL_OTHER 168
NERVOUS_SYSTEM_OTHER 165
RESPIRATORY_OTHER 149
NUMBER_REACTIONS_PRIOR_TO_DIAGNOSIS 39
DATE_FIRST_AGS_BLOOD_TEST 0
DATE_RECENT_AGS_BLOOD_TEST 0

Date Range 12/19-12/24

START_DATE ranges from 2019-12-14 to 2024-12-27