Data Protection Notice

SUBJECTS INVOLVED IN DATA PROCESSING

Data Controller and contact details
The Data Controller is the University of Pavia, represented by its legal representative pro tempore, the Rector, with registered office at C.so Strada Nuova 65, IT-27100 Pavia, Registered Electronic Email (REM): amministrazione-centrale@certunipv.it.

Contact details of the Data Protection Officer (DPO)
The Data Protection Officer (DPO) may be contacted at the following email address: privacy@unipv.it.

Under the Article 13 of EU Regulation 679/16, and in compliance with the principle of transparency, we provide the following information in order to ensure full awareness regarding the characteristics and methods of processing of personal data for the purpose of participating in the research project conducted by the University of Pavia: WALK-ITA – Translation, adaptation and Italian validation of the Neighborhood Environment Walkability Scale (NEWS): cross-sectional observational study on the perception of walkability in the adult population (18+)

The general objective of the study is to validate the Neighborhood Environment Walkability Scale (NEWS) questionnaire in the Italian language. In addition, the study aims to investigate the relationship between perceived walkability and quality of life and lifestyle factors among the adult population (≥ 18 years) living in Italy, through a cross-sectional observational design.
The characteristics of the study and its operational procedures are described in detail in the document Consent and Information Sheet for the Project.
under the Article 13 of Regulation (EU) 679/16, with regard to your personal data that will be processed, we inform you as follows.

1. PROCESSING OF SENSITIVE DATA

The sensitive data you provide will be processed according to the principles of lawfulness, fairness, adequacy and in general within the limits established by applicable legislation.
Such data will be collected within the framework of the project entitled:

WALK-ITA – Translation, adaptation and Italian validation of the Neighborhood Environment Walkability Scale (NEWS): cross-sectional observational study on the perception of walkability in the adult population (18+)

Principal Investigator: Dr. Luca Correale.

Data may will be used only in anonymous form and exclusively for scientific and statistical research purposes. Processing will be carried out using electronic tools. All data will be stored in a secure, access-controlled electronic database, designed in accordance with the CRF (Case Report Form) and with integrity, traceability and security criteria required by current regulations.

2. PARTICIPATION IN THE RESEARCH AND RELATED OPERATIONS

If you agree to participate in the research, some of your personal data will be collected through the completion of a questionnaire.
You will be asked to provide information about your gender, weight, height, age (in full years), current address (street, city, province and postal code), education level, occupation, potential presence and type of chronic diseases, any associated functional limitations, perceived neighbourhood walkability (walkability), quality of life and lifestyle (level of physical activity, smoking, eating habits, alcohol consumption, sleep quality).

As a participant, you will receive a unique ID code automatically system generated, which will be used throughout the duration of the study. The link between the ID and the responses will be pseudonymized. No direct identification data will be collected. Personal data without identifying details may be shared with third parties exclusively for research purposes, for example for statistical analysis of results. The collected and archived study data will be retained for five years.

2.1 DISSEMINATION OF RESULTS

Data will be disseminated only in strictly anonymous form, for example through scientific publications, statistical reports or conference presentations.

2.2 STORAGE OF DATA FOR FUTURE RESEARCH ACTIVITIES

Considering that future discoveries may provide unprecedented research opportunities for investigators or enable additional studies related to the aims of the current project, it may be allowed to extend storage of data in non-anonymized form for an additional period of one year after the end of this study for potential future research activities and, if necessary, to contact you again to request, should you agree, new specific consent for new research. If you refuse to consent to the processing described herein, the data will be deleted or anonymized immediately at the end of the retention period indicated in Section 2.

2.3 STORAGE FOR ADMINISTRATIVE PURPOSES

Your data will also be processed for administrative accounting purposes and retained for the time strictly necessary to achieve those purposes, except for the period of ten years required to meet legal, tax and administrative obligations and, potentially, for a longer period, not determinable in advance, as a result of additional legal processing conditions (e.g., legal actions that make processing necessary beyond ten years).

3. LEGAL BASIS AND NATURE OF DATA PROVISION

The legal basis for the processing described above lies in consent, under the Article 6(1)(a) of the Regulation (EU) 2016/679 (General Data Protection Regulation) and, in the case of processing special categories of data, Article 9(2)(a) of the Regulation (EU) 2016/679. Consent for the above purposes is optional, but necessary in order to participate in the research.

However, provision of data for the purposes described in Sections 2 and 2.1 is not mandatory but is essential for the achievement of the stated objectives. Refusal to provide such data will therefore prevent participation in the study. Provision of data for the purposes described in Section 2.2 is optional, not deriving from a legal obligation, but necessary to allow extended retention beyond the conclusion of the present study for future research purposes and, if necessary, to contact you to request new consent. Refusal to provide such data will have the sole consequence of preventing the possibilities described above. Provision of data for the purposes described in Section 2.3 is necessary to comply with statutory administrative record-keeping requirements. In this case, the legal basis can be found in Article 6(1)(c) and (e) of the Regulation (EU) 2016/679. Data will be exclusively disclosed to authorised subjects.

4. DATA SUBJECT RIGHTS

Without prejudice to the limitations on the exercise of data subject rights under Articles 2-undecies and 2-duodecies of the Italian Personal Data Protection Code (Legislative Decree 196/03), as a participant and therefore a data subject, you may exercise the rights recognised and within the limits set out in Articles 15–21 of the Regulation (EU) 2016/679, including the right to request access to personal data, rectification or deletion, restriction of processing, objection to processing and data portability. We also specify that any consent provided by you is freely given and may be withdrawn at any time without disadvantage or prejudice and without affecting the lawfulness of processing based on consent before withdrawal.
Requests regarding the exercise of these rights may be addressed to the Data Controller by contacting:

Dr. Luca Correale
Department of Public Health, Experimental and Forensic Medicine – University of Pavia
Via Forlanini 2, Pavia
Tel. +39 393 5295304
E-mail: luca.correale@unipv.it

In case of complaints, you may contact the Italian Data Protection Authority (Garante per la Protezione dei Dati Personali, Article 77 EU Regulation 2016/679) or the competent judicial authorities (Article 79 EU Regulation 2016/679).