| 1. Over the past month how itchy and/or painful and/or stinging and/or burning has your vulvar skin felt? |
|
|
|
|
| A little |
26 (51%) |
4 (25%) |
14 (61%) |
8 (67%) |
| A lot |
4 (7.8%) |
0 (0%) |
4 (17%) |
0 (0%) |
| Never |
14 (27%) |
12 (75%) |
2 (8.7%) |
0 (0%) |
| Very much |
7 (14%) |
0 (0%) |
3 (13%) |
4 (33%) |
| 2. Over the past month, how often have you experienced any of the following: pain when urinating, heat intolerance, vaginal discharge, wetness? |
|
|
|
|
| A little |
17 (33%) |
5 (31%) |
8 (35%) |
4 (33%) |
| A lot |
4 (7.8%) |
0 (0%) |
2 (8.7%) |
2 (17%) |
| Never |
20 (39%) |
11 (69%) |
8 (35%) |
1 (8.3%) |
| Very much |
10 (20%) |
0 (0%) |
5 (22%) |
5 (42%) |
| 3. Over the last month how embarrassed or self-conscious have you been because of your vulvar skin symptoms? |
|
|
|
|
| A little |
9 (18%) |
0 (0%) |
6 (26%) |
3 (25%) |
| A lot |
3 (5.9%) |
0 (0%) |
1 (4.3%) |
2 (17%) |
| Never |
31 (61%) |
16 (100%) |
12 (52%) |
3 (25%) |
| Very much |
8 (16%) |
0 (0%) |
4 (17%) |
4 (33%) |
| 4. Over the past month how much has your vulvar skin impacted your body image or sense of self? |
|
|
|
|
| A little |
10 (20%) |
0 (0%) |
7 (30%) |
3 (25%) |
| A lot |
6 (12%) |
0 (0%) |
2 (8.7%) |
4 (33%) |
| Never |
26 (51%) |
16 (100%) |
9 (39%) |
1 (8.3%) |
| Very much |
9 (18%) |
0 (0%) |
5 (22%) |
4 (33%) |
| 5. Over the last month how distressed or anxious have you felt because of your vulvar skin problem? |
|
|
|
|
| A little |
14 (27%) |
1 (6.3%) |
12 (52%) |
1 (8.3%) |
| A lot |
3 (5.9%) |
0 (0%) |
1 (4.3%) |
2 (17%) |
| Never |
23 (45%) |
15 (94%) |
6 (26%) |
2 (17%) |
| Very much |
11 (22%) |
0 (0%) |
4 (17%) |
7 (58%) |
| 6. Over the last month how much has your vulvar skin problem influenced your choice of clothing? |
|
|
|
|
| A little |
6 (12%) |
1 (6.3%) |
4 (17%) |
1 (8.3%) |
| A lot |
9 (18%) |
0 (0%) |
6 (26%) |
3 (25%) |
| Never |
26 (51%) |
15 (94%) |
9 (39%) |
2 (17%) |
| Very much |
10 (20%) |
0 (0%) |
4 (17%) |
6 (50%) |
| 7. Over the last month how much has your vulvar skin problem disturbed your sleep? |
|
|
|
|
| A little |
10 (20%) |
0 (0%) |
5 (22%) |
5 (42%) |
| A lot |
2 (3.9%) |
0 (0%) |
1 (4.3%) |
1 (8.3%) |
| Never |
35 (69%) |
16 (100%) |
14 (61%) |
5 (42%) |
| Very much |
4 (7.8%) |
0 (0%) |
3 (13%) |
1 (8.3%) |
| 8. Over the last month how much has your vulvar skin problem made it difficult for you to go shopping, look after yourself or your family, home and garden? |
|
|
|
|
| A little |
7 (14%) |
0 (0%) |
2 (8.7%) |
5 (42%) |
| A lot |
2 (3.9%) |
0 (0%) |
1 (4.3%) |
1 (8.3%) |
| Never |
40 (78%) |
16 (100%) |
19 (83%) |
5 (42%) |
| Very much |
2 (3.9%) |
0 (0%) |
1 (4.3%) |
1 (8.3%) |
| 9. Over the last month how much has your vulvar skin problem made it difficult for you to attend social or leisure engagements? |
|
|
|
|
| A little |
5 (9.8%) |
0 (0%) |
2 (8.7%) |
3 (25%) |
| A lot |
2 (3.9%) |
0 (0%) |
1 (4.3%) |
1 (8.3%) |
| Never |
40 (78%) |
16 (100%) |
18 (78%) |
6 (50%) |
| Very much |
4 (7.8%) |
0 (0%) |
2 (8.7%) |
2 (17%) |
| 10. Over the last month how much has your vulvar skin problem interfered with your ability to concentrate on work or study? |
|
|
|
|
| A little |
5 (9.8%) |
0 (0%) |
3 (13%) |
2 (17%) |
| A lot |
5 (9.8%) |
0 (0%) |
2 (8.7%) |
3 (25%) |
| Never |
37 (73%) |
16 (100%) |
16 (70%) |
5 (42%) |
| Very much |
4 (7.8%) |
0 (0%) |
2 (8.7%) |
2 (17%) |
| 11. Over the last month how much has your vulvar skin problem created problems with a partner or precluded you from pursuing a romantic relationship? |
|
|
|
|
| A little |
3 (5.9%) |
0 (0%) |
3 (13%) |
0 (0%) |
| A lot |
8 (16%) |
0 (0%) |
4 (17%) |
4 (33%) |
| Never |
29 (57%) |
16 (100%) |
12 (52%) |
1 (8.3%) |
| Very much |
11 (22%) |
0 (0%) |
4 (17%) |
7 (58%) |
| 12. Over the last month how much has your vulvar skin problem interfered with your sex life? |
|
|
|
|
| A little |
5 (9.8%) |
0 (0%) |
4 (17%) |
1 (8.3%) |
| A lot |
7 (14%) |
0 (0%) |
5 (22%) |
2 (17%) |
| Never |
26 (51%) |
16 (100%) |
9 (39%) |
1 (8.3%) |
| Very much |
13 (25%) |
0 (0%) |
5 (22%) |
8 (67%) |
| 13. Over the last month how often have you felt distressed or worried about sex because of your vulvar skin? |
|
|
|
|
| A little |
7 (14%) |
0 (0%) |
5 (22%) |
2 (17%) |
| A lot |
7 (14%) |
0 (0%) |
4 (17%) |
3 (25%) |
| Never |
26 (51%) |
16 (100%) |
9 (39%) |
1 (8.3%) |
| Very much |
11 (22%) |
0 (0%) |
5 (22%) |
6 (50%) |
| 14. How often in the last month have you been worried about long-term health implications of your vulvar skin condition? |
|
|
|
|
| A little |
16 (31%) |
1 (6.3%) |
14 (61%) |
1 (8.3%) |
| A lot |
4 (7.8%) |
0 (0%) |
3 (13%) |
1 (8.3%) |
| Never |
23 (45%) |
15 (94%) |
2 (8.7%) |
6 (50%) |
| Very much |
8 (16%) |
0 (0%) |
4 (17%) |
4 (33%) |
| 15. Over the past month, how much of a problem has the treatment of your vulvar symptoms been? |
|
|
|
|
| A little |
15 (29%) |
0 (0%) |
10 (43%) |
5 (42%) |
| A lot |
5 (9.8%) |
0 (0%) |
3 (13%) |
2 (17%) |
| Never |
29 (57%) |
16 (100%) |
10 (43%) |
3 (25%) |
| Very much |
2 (3.9%) |
0 (0%) |
0 (0%) |
2 (17%) |
| 16. In which stage of menstruation are you? |
|
|
|
|
| Peri-Menopausal |
6 (13%) |
2 (13%) |
2 (8.7%) |
2 (20%) |
| Post-Menopausal |
29 (60%) |
6 (40%) |
20 (87%) |
3 (30%) |
| Pre-Menopausal |
13 (27%) |
7 (47%) |
1 (4.3%) |
5 (50%) |
| 17. How long have you been on topical steroids? |
|
|
|
|
| 0-3 years |
11 (22%) |
1 (6.3%) |
6 (26%) |
4 (33%) |
| 10+ years |
6 (12%) |
0 (0%) |
5 (22%) |
1 (8.3%) |
| 3-5 years |
8 (16%) |
0 (0%) |
8 (35%) |
0 (0%) |
| 5-10 years |
3 (5.9%) |
0 (0%) |
3 (13%) |
0 (0%) |
| I have not been on topical steroids |
23 (45%) |
15 (94%) |
1 (4.3%) |
7 (58%) |
| V2:1. Over the past month how itchy and/or painful and/or stinging and/or burning has your vulvar skin felt? |
|
|
|
|
| A little |
8 (31%) |
2 (18%) |
3 (30%) |
3 (60%) |
| A lot |
4 (15%) |
0 (0%) |
3 (30%) |
1 (20%) |
| Never |
13 (50%) |
9 (82%) |
3 (30%) |
1 (20%) |
| Very much |
1 (3.8%) |
0 (0%) |
1 (10%) |
0 (0%) |
| V2:2. Over the past month, how often have you experienced any of the following: pain when urinating, heat intolerance, vaginal discharge, wetness? |
|
|
|
|
| A little |
6 (24%) |
1 (9.1%) |
2 (22%) |
3 (60%) |
| A lot |
5 (20%) |
1 (9.1%) |
3 (33%) |
1 (20%) |
| Never |
13 (52%) |
9 (82%) |
3 (33%) |
1 (20%) |
| Very much |
1 (4.0%) |
0 (0%) |
1 (11%) |
0 (0%) |
| V2:3. Over the last month how embarrassed or self-conscious have you been because of your vulvar skin symptoms? |
|
|
|
|
| A little |
2 (8.0%) |
0 (0%) |
1 (10%) |
1 (25%) |
| A lot |
4 (16%) |
0 (0%) |
3 (30%) |
1 (25%) |
| Never |
17 (68%) |
11 (100%) |
5 (50%) |
1 (25%) |
| Very much |
2 (8.0%) |
0 (0%) |
1 (10%) |
1 (25%) |
| V2:4. Over the past month how much has your vulvar skin impacted your body image or sense of self? |
|
|
|
|
| A little |
3 (12%) |
0 (0%) |
1 (10%) |
2 (40%) |
| A lot |
3 (12%) |
0 (0%) |
2 (20%) |
1 (20%) |
| Never |
17 (65%) |
11 (100%) |
5 (50%) |
1 (20%) |
| Very much |
3 (12%) |
0 (0%) |
2 (20%) |
1 (20%) |
| V2:5. Over the last month how distressed or anxious have you felt because of your vulvar skin problem? |
|
|
|
|
| A little |
6 (23%) |
0 (0%) |
5 (50%) |
1 (20%) |
| A lot |
2 (7.7%) |
0 (0%) |
1 (10%) |
1 (20%) |
| Never |
15 (58%) |
11 (100%) |
2 (20%) |
2 (40%) |
| Very much |
3 (12%) |
0 (0%) |
2 (20%) |
1 (20%) |
| V2:6. Over the last month how much has your vulvar skin problem influenced your choice of clothing? |
|
|
|
|
| A little |
3 (12%) |
1 (9.1%) |
1 (10%) |
1 (20%) |
| A lot |
1 (3.8%) |
0 (0%) |
1 (10%) |
0 (0%) |
| Never |
18 (69%) |
10 (91%) |
6 (60%) |
2 (40%) |
| Very much |
4 (15%) |
0 (0%) |
2 (20%) |
2 (40%) |
| V2:7. Over the last month how much has your vulvar skin problem disturbed your sleep? |
|
|
|
|
| A little |
6 (23%) |
0 (0%) |
3 (30%) |
3 (60%) |
| Never |
18 (69%) |
11 (100%) |
5 (50%) |
2 (40%) |
| Very much |
2 (7.7%) |
0 (0%) |
2 (20%) |
0 (0%) |
| V2:8. Over the last month how much has your vulvar skin problem made it difficult for you to go shopping, look after yourself or your family, home and garden? |
|
|
|
|
| A little |
2 (7.7%) |
0 (0%) |
1 (10%) |
1 (20%) |
| A lot |
1 (3.8%) |
0 (0%) |
1 (10%) |
0 (0%) |
| Never |
22 (85%) |
11 (100%) |
7 (70%) |
4 (80%) |
| Very much |
1 (3.8%) |
0 (0%) |
1 (10%) |
0 (0%) |
| V2:9. Over the last month how much has your vulvar skin problem made it difficult for you to attend social or leisure engagements? |
|
|
|
|
| A little |
4 (15%) |
0 (0%) |
1 (10%) |
3 (60%) |
| A lot |
1 (3.8%) |
0 (0%) |
1 (10%) |
0 (0%) |
| Never |
20 (77%) |
11 (100%) |
7 (70%) |
2 (40%) |
| Very much |
1 (3.8%) |
0 (0%) |
1 (10%) |
0 (0%) |
| V2:10. Over the last month how much has your vulvar skin problem interfered with your ability to concentrate on work or study? |
|
|
|
|
| A little |
3 (12%) |
0 (0%) |
1 (10%) |
2 (40%) |
| Never |
21 (81%) |
11 (100%) |
8 (80%) |
2 (40%) |
| Very much |
2 (7.7%) |
0 (0%) |
1 (10%) |
1 (20%) |
| V2:11. Over the last month how much has your vulvar skin problem created problems with a partner or precluded you from pursuing a romantic relationship? |
|
|
|
|
| A little |
4 (15%) |
0 (0%) |
1 (10%) |
3 (60%) |
| A lot |
2 (7.7%) |
0 (0%) |
1 (10%) |
1 (20%) |
| Never |
18 (69%) |
11 (100%) |
7 (70%) |
0 (0%) |
| Very much |
2 (7.7%) |
0 (0%) |
1 (10%) |
1 (20%) |
| V2:12. Over the last month how much has your vulvar skin problem interfered with your sex life? |
|
|
|
|
| A lot |
3 (12%) |
0 (0%) |
2 (20%) |
1 (20%) |
| Never |
17 (65%) |
11 (100%) |
5 (50%) |
1 (20%) |
| Very much |
6 (23%) |
0 (0%) |
3 (30%) |
3 (60%) |
| V2:13. Over the last month how often have you felt distressed or worried about sex because of your vulvar skin? |
|
|
|
|
| A little |
2 (7.7%) |
0 (0%) |
1 (10%) |
1 (20%) |
| A lot |
2 (7.7%) |
0 (0%) |
2 (20%) |
0 (0%) |
| Never |
18 (69%) |
11 (100%) |
6 (60%) |
1 (20%) |
| Very much |
4 (15%) |
0 (0%) |
1 (10%) |
3 (60%) |
| V2:14. How often in the last month have you been worried about long-term health implications of your vulvar skin condition? |
|
|
|
|
| A little |
5 (19%) |
0 (0%) |
5 (50%) |
0 (0%) |
| A lot |
3 (12%) |
0 (0%) |
3 (30%) |
0 (0%) |
| Never |
16 (62%) |
11 (100%) |
1 (10%) |
4 (80%) |
| Very much |
2 (7.7%) |
0 (0%) |
1 (10%) |
1 (20%) |
| V2:15. Over the past month, how much of a problem has the treatment of your vulvar symptoms been? |
|
|
|
|
| A little |
5 (19%) |
0 (0%) |
3 (30%) |
2 (40%) |
| A lot |
2 (7.7%) |
0 (0%) |
1 (10%) |
1 (20%) |
| Never |
16 (62%) |
11 (100%) |
4 (40%) |
1 (20%) |
| Very much |
3 (12%) |
0 (0%) |
2 (20%) |
1 (20%) |
| V2:16. In which stage of menstruation are you? |
|
|
|
|
| Peri-Menopausal |
2 (8.7%) |
1 (11%) |
0 (0%) |
1 (20%) |
| Post-Menopausal |
15 (65%) |
5 (56%) |
9 (100%) |
1 (20%) |
| Pre-Menopausal |
6 (26%) |
3 (33%) |
0 (0%) |
3 (60%) |
| V2:17. How long have you been on topical steroids? |
|
|
|
|
| 0-3 years |
4 (15%) |
1 (9.1%) |
2 (20%) |
1 (20%) |
| 10+ years |
5 (19%) |
0 (0%) |
4 (40%) |
1 (20%) |
| 3-5 years |
2 (7.7%) |
0 (0%) |
2 (20%) |
0 (0%) |
| 5-10 years |
1 (3.8%) |
0 (0%) |
1 (10%) |
0 (0%) |
| I have not been on topical steroids |
14 (54%) |
10 (91%) |
1 (10%) |
3 (60%) |