Row

Total 80+ Normal or Super

300

SuperAgers

208 (69%)

Currently Active

130 (43%)

Autopsies/Death

79/120 (66%)

Row

Cohorts & Consents

N

%

Participants 80+ & Normal Control or Super

300

100%

Consented to ADRC

297

99%

Consented to R01 or U19

202

68.01%

Consented U19

60

29.7%

Consented R01

142

70.3%

Consented Only to ADRC

95

31.99%

Not Consented to ADRC

3

1%

Consented R01

3

100%

Cohorts & Consents

Row

Subtypes

N

%

Participants 80+ & Normal Control or Super

300

100%

Super

208

69.33%

Consented to R01 or U19

146

70.19%

Consented U19

42

28.77%

Consented R01

104

71.23%

Consented Only to ADRC

62

29.81%

Normal

83

27.67%

Consented to R01 or U19

56

67.47%

Consented U19

18

32.14%

Consented R01

38

67.86%

Consented Only to ADRC

27

32.53%

Unknown

9

3%

Consented to R01 or U19

3

33.33%

Consented R01

3

100%

Consented Only to ADRC

6

66.67%

Row

Status

N

%

Participants 80+ & Normal Control or Super

300

100%

Actively Followed

130

43.33%

Consented to R01 or U19

99

76.15%

Consented U19

53

53.54%

Consented R01

46

46.46%

Consented Only to ADRC

31

23.85%

Deceased

120

40%

Consented to R01 or U19

77

64.17%

Consented U19

4

5.19%

Consented R01

73

94.81%

Consented Only to ADRC

43

35.83%

Discontinued

46

15.33%

Consented to R01 or U19

25

54.35%

Consented U19

3

12%

Consented R01

22

88%

Consented Only to ADRC

21

45.65%

Deaths

N

%

Deceased Participants

120

100%

Deceased With Autopsy

79

65.83%

Consented to R01 or U19

50

63.29%

Consented U19

2

4%

Consented R01

48

96%

Consented Only to ADRC

29

36.71%

Deceased Without Autopsy

41

34.17%

Consented to R01 or U19

27

65.85%

Consented U19

2

7.41%

Consented R01

25

92.59%

Consented Only to ADRC

14

34.15%

Row

Demographics

Total

USG

N

%

N

%

Participants 80+ & Normal Control or Super

300

100%

63

100%

Female

207

69%

50

79.37%

Consented to R01 or U19

142

68.6%

33

66%

Consented U19

43

30.28%

10

30.3%

Consented R01

99

69.72%

23

69.7%

Consented Only to ADRC

65

31.4%

17

34%

Male

93

31%

13

20.63%

Consented to R01 or U19

63

67.74%

7

53.85%

Consented U19

17

26.98%

2

28.57%

Consented R01

46

73.02%

5

71.43%

Consented Only to ADRC

30

32.26%

6

46.15%

Row

Participation

N

%

Consented to R01 or U19

205

100%

Active on Sept 1, 2023

118

57.56%

Completed Visit Since or Currently Scheduled

96

81.36%

Consented U19

49

51.04%

Consented R01

47

48.96%

Discontinued Since

3

2.54%

Consented U19

2

66.67%

Consented R01

1

33.33%

Deceased Since

9

7.63%

Consented U19

3

33.33%

Consented R01

6

66.67%

Pursuing Visit Scheduling

10

8.47%

Consented U19

5

50%

Consented R01

5

50%

Inactive Before Sept 1, 2023

87

42.44%

Row

Participant Feedback

N

%

Consented to R01 or U19 & Active on Sept 1, 2023

118

100%

Contacted

42

35.59%

Consented U19

26

61.9%

Confusion about transition

4

15.38%

Confusion about transition & Preference for NU

2

7.69%

No clear concerns, agreed to NUSAP

16

61.54%

No clear concerns, agreed to NUSAP & No clear concerns, agreed to NUSAP

1

3.85%

Preference for NU

2

7.69%

Wants to participate in both, agreed to NUSAP

1

3.85%

Consented R01

16

38.1%

Confusion about transition

2

12.5%

No clear concerns, agreed to NUSAP

3

18.75%

Preference for NU

2

12.5%

Wants to participate in both, agreed to NUSAP

2

12.5%

Confusion about brain donation

2

12.5%

Confusion about transition & Confusion about transition

1

6.25%

Confusion about transition & Confusion about transition & Confusion about transition

2

12.5%

Confusion about transition & No clear concerns

1

100%

Confusion about transition & No clear concerns, agreed to NUSAP

1

100%

Not Contacted

76

64.41%

Consented U19

33

43.42%

Consented R01

43

56.58%