About AI
Research Informatics helps researchers turn data into knowledge. We enable research by providing intuitive tools for discovering and delivering data to researchers, help them to capture data from studies, empower them to perform research using electronic medical records and connect them to data at other institutions. Research Informatics provides support across the entire research lifecycle, from planning and grant development to research dissemination and data archiving.
ADVANCED ANALYTICS
Big Data and Visualization
Our mission is to improve people’s health by helping researchers convert data to knowledge while protecting privacy.
Innovation: We work to bring cutting-edge informatics solutions to researchers that will help them compete for funding and successfully complete their research.
Diversity: We believe that our differences are strengths and value many perspectives.
Excellence: We take pride in delivering quality data.
Authenticity: We are unafraid to speak up if we believe patient privacy is at stake.
Leadership: We actively seek better ways of supporting research and protecting privacy and demonstrate these approaches to others.
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AITools
HERON
HERON
HERON is an integrated clinical data repository with millions of electronic medical records (EMR) records of patient who agree to be contacted for research, socioeconomic data, death data, clinical notes and more. KUMC researchers can build a study cohort with the HERON software and request contact information for patients meeting the criteria for a study who have agreed to be contacted for research or request datasets for retrospective studies.
Green HERON
Green HERON
Green HERON is a highly protected health data analytic space where approved users can work with de-identified electronic medical records. It provides an important tool to work with external partners on research. The analytics space offers a rich set of tools, such as R, SAS, and Python, although others can be added on request.
REDCAp
REDCAp
REDCap (Research Electronic Data Capture) enables rapid project development and provides users with advanced functionality, complete autonomy and control of a project and direct exports to common statistical packages. REDCap surveys and databases are HIPAA compliant and include audit trails.
C3OD
C3OD
C3OD merges data from the electronic medical record, tumor registry, bio-specimen, and data registry, and allows querying through a single unified platform. By centralizing access and maintaining appropriate controls, C3OD allows researchers to obtain detailed information more rapidly about each patient in order to accelerate eligibility screening.
GeoMarker
GeoMarker
According to Children's Mercy Hospital, "GeoMarker is a HIPAA-compliant web application for geocoding addresses. GeoMarker can be used to get the point location (latitude and longitude) for a list of addresses (batch geocoding), aggregate census geographic identifiers, determine drive time to pediatric care centers, determine neighborhood indicators, and obtain composite Area Deprivation Index score for geocoded addresses".
COSMOS
COSMOS
As described by Cosmos by Epic, "Cosmos is a dataset created in collaboration with a community of health systems using Epic and is designed to improve patient care. By combining their data, participating organizations and Epic can make new discoveries and advance medicine. Cosmos also powers tools at the point of care, providing insights to clinicians that are tailored to the patient in front of them."
Electronic Lab Notebook
Electronic Lab Notebook
All Your Research in One Place - Easy to record, organize, analyze, and share experiments and all of your data is accessible wherever you are. This will Improve availability of your data with all your workflows, methods, and findings on one secure and accessible software platform.
- Documentation
- Organization
- Shareability
- Security
Learning Health Network
Learning Health Network
Oracle Learning Health Network, a repository of data on a hundred million patients that's expanding worldwide through a network of diverse health systems for clinical trial recruitment,researcers can accelerate the discovery, development, and deployment of groundbreaking insights and therapies.
- Learn
- Share
- Teach
- Improve
(N3C) National Covid Cohort Collaborative
(N3C) National Covid Cohort Collaborative
The National Center for Advancing Translational Science describes N3C as, "A single database format of patient information from more than 60 health care institutions across the country and make them available for researchers and clinicians. Inside the N3C Data Enclave researchers can study COVID-19 and potential treatments as the pandemic evolves."
Project Assistance
Project Assistance
Research Informatics provides project assistance and support with an hourly fee-for-service for all informatics services. Pricing is provided for each inquiry depending on the complexity and set of fixed time/cost requirements.
AI Spotlight
Biostatistics & Data Science
Biostatistics & Data Science
Research Informatics works with the Department of Biostatistics & Data Science to support and enhance research, service, and educational needs of the University of Kansas Medical Center and its affiliates.
Data Management and Sharing Plans
Data Management and Sharing Plans
Research Informatics has many resources to assist you with Data Management and Sharing Plans. For KUMC Faculty, Staff and Students please visit our internal sharepoint site here.
Data Concierge
Data Concierge
The Data Concierge can assist researchers in drafting data requests, gathering data request specifications, and facilitating communication between researchers and our IT and Informatics staff. If you don't know where to start, feel free to contact the Data Concierge first. We can connect you with the appropriate resources for your research or quality improvement project, regardless of the department responsible.
Consultations & Training
Consultations & Training
Events
Data Management and Sharing Plans
Research Informatics has many resources to assist you with Data Management and Sharing Plans. For KUMC Faculty, Staff and Students please visit our internal sharepoint site here.
Collect data all in one place and develop a well characterized cohort. Build and Design customizable surveys, digital consents, and coordinate study management by viewing the progress of your participants through your study, add new sites, and manage consent documents on our admin panel. Specify admin team roles across sites secured by two-factor authentication. allow your participants to easily answer surveys. For Data Collection and Recruitment Tools. Learn More
Prepare Data by streamlining data science workflows and models with quick access to clean and reliable data. Explore data with interactive visualizations and confidently and securely share code with coauthoring, commenting, automatic versioning, Git integrations, and role-based access controls. Automate experiment tracking and governance and empower your machine learning teams to access, explore, and prepare any type of data at any scale. Learn More
All data is stored in our secure HIPAA-compliant cloud storage. Download clean data in universal formats like csv with your data ready for analysis. We have also implemented the Electronic Lab Note book A secure, cloud based collaborative platform for documentation, organization, shareability and security of your scientific research and data. The digital tool will accelerate research and allow researchers to enjoy the benefits of a centralized, paperless data storage environment. It also aids in lab management, protects Intellectual Property (IP), and offers data management and tracking. At no cost to users' notebooks owned by someone at KUMC and TUKHS may be shared with staff at other institutions of higher education. Learn More
Accelerate your data and AI initiatives with a single point of access for data exploration. Securely access data from other computing platforms using open interfaces, with consistent permissions managed in one place. Automate monitoring, diagnose errors, and uphold data and ML model quality.
The DRP at KUMC is the collective name for our HIPAA-compliant, research cloud infrastructure, which includes a centralized research data lakehouse, built on Databricks, to enable big data handling with Apache Spark and robust performance with Delta Lake. High performance computing, including GPU clusters is available from Microsoft Azure and can be scaled on demand, and machine learning lifecycle management is available from MLFlow. Dedicated research data management staff are available to help ingest new data into the environment, who use a customized version of Data Basin to facilitate and speed complex data ingestion into the lakehouse. Analytics and model building can be performed in Databricks, in Azure, or in the user's on-prem environment.
Research Informatics Group has collaborated with Databricks to provide KUMC and TUKHS Researchers the tools necessary to perform thier work, Each one of our tools is unique and funding may be required depending on which service you request, please contact our dataconcierge@kumc.edu for more questions about custom designs and project assistance.
Research Informatics Group will assist you with building a custom design project, Each one of our tools is unique and funding may be required depending on which service you request, please contact our dataconcierge@kumc.edu for more questions about custom designs and project assistance.
Accessing data may require several steps, depending on deidentified data or identified data and which tools you are using within the platform.
For the DRP you can provide access by filling out this form Request Access Here
It depends, if you are using HERON or C3OD for cohort discovery or feasibility, then no you do not need IRB Approval, when you are ready to request data for use in your project then yes you will need IRB approval. For all other Research Informatics tools an IRB approval may be needed depending on which tool. Please visit our workflow page to gain a better understanding of our process View our Workflow process
AI Steering Committee
Analytic Tools
| Year | Income |
|---|---|
| OMOP | 400k |
| LHN | 600k |
| N3C | 700k |
| COSMOS | 900k |
| GH | 1m ???? |
Analytics
Discover analytical tools provided and supported by our group Research Informatics.
Browse Studies
See what studies are currently enrolling and the results from completed studies
Browse Studies
Coming Soon Under Construction Research Informatics will provide a list of projects who have used and benefited from the DRP.
Partner Connect
Partner Connect
- Data Prep & Transformation
- Machine Learning & Artificial Intelligence
- Data Governance
- Buisness Intelligence & Visualization
- Security
- Data Ingestion
- Semantic Layer
Research Informatics
Research Informatics
AI Education & Training
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the University of Kansas Health System Organized Health Care Arrangement. An “organized health care
arrangement” is (i) a clinically integrated setting in which individuals typically receive health care services from more than one health care provider, or (ii) an organized system of health care in which more thanone health care provider participates. To serve you better, we give you this Notice about our privacypractices and your privacy rights. The Health Insurance Portability and Accountability Act of 1996
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