Total
(N=49)
Harris health
(N=49)
knowledge_trial
Not well at all 2 (4.1%) 2 (4.1%)
Not very well 15 (30.6%) 15 (30.6%)
Somewhat well 18 (36.7%) 18 (36.7%)
Very well 12 (24.5%) 12 (24.5%)
Missing 2 (4.1%) 2 (4.1%)
trial_discussed
Yes 15 (30.6%) 15 (30.6%)
No 34 (69.4%) 34 (69.4%)
trial_participation
Yes 4 (8.2%) 4 (8.2%)
No 44 (89.8%) 44 (89.8%)
Missing 1 (2.0%) 1 (2.0%)
trial_experience
Very negative 0 (0%) 0 (0%)
Somewhat negative 0 (0%) 0 (0%)
neutral 0 (0%) 0 (0%)
Somewhat positive 1 (2.0%) 1 (2.0%)
very positive 3 (6.1%) 3 (6.1%)
Missing 45 (91.8%) 45 (91.8%)
trial_importance
Note at all important 0 (0%) 0 (0%)
Not very important 0 (0%) 0 (0%)
Somewhat important 7 (14.3%) 7 (14.3%)
Very important 42 (85.7%) 42 (85.7%)
trial_safety
Not at all safe 0 (0%) 0 (0%)
Not very safe 3 (6.1%) 3 (6.1%)
Somewhat safe 28 (57.1%) 28 (57.1%)
Very safe 15 (30.6%) 15 (30.6%)
Missing 3 (6.1%) 3 (6.1%)
trial_as_trt_option
Not at all often 14 (28.6%) 14 (28.6%)
Not very often 11 (22.4%) 11 (22.4%)
Somewhat often 18 (36.7%) 18 (36.7%)
very often 2 (4.1%) 2 (4.1%)
Missing 4 (8.2%) 4 (8.2%)
trial_care
Mean (SD) 2.27 (0.499) 2.27 (0.499)
Median [Min, Max] 2.00 [1.00, 3.00] 2.00 [1.00, 3.00]
Missing 5 (10.2%) 5 (10.2%)
willing_first_trt
very willing 19 (38.8%) 19 (38.8%)
somewhat willing 18 (36.7%) 18 (36.7%)
not very willing 9 (18.4%) 9 (18.4%)
not at all willing 2 (4.1%) 2 (4.1%)
Missing 1 (2.0%) 1 (2.0%)
willing_addition_to_soc
very willing 14 (28.6%) 14 (28.6%)
somewhat willing 25 (51.0%) 25 (51.0%)
not very willing 3 (6.1%) 3 (6.1%)
not at all willing 2 (4.1%) 2 (4.1%)
Missing 5 (10.2%) 5 (10.2%)
willing_ineffective_soc
very willing 23 (46.9%) 23 (46.9%)
somewhat willing 9 (18.4%) 9 (18.4%)
not very willing 8 (16.3%) 8 (16.3%)
not at all willing 5 (10.2%) 5 (10.2%)
Missing 4 (8.2%) 4 (8.2%)
willing_failed_soc
very willing 18 (36.7%) 18 (36.7%)
somewhat willing 18 (36.7%) 18 (36.7%)
not very willing 5 (10.2%) 5 (10.2%)
not at all willing 5 (10.2%) 5 (10.2%)
Missing 3 (6.1%) 3 (6.1%)
willing_no_soc
very willing 24 (49.0%) 24 (49.0%)
somewhat willing 15 (30.6%) 15 (30.6%)
not very willing 3 (6.1%) 3 (6.1%)
not at all willing 2 (4.1%) 2 (4.1%)
Missing 5 (10.2%) 5 (10.2%)
importance_trt_ease
Very important 27 (55.1%) 27 (55.1%)
Somewhat important 16 (32.7%) 16 (32.7%)
Not very important 1 (2.0%) 1 (2.0%)
Note at all important 1 (2.0%) 1 (2.0%)
Missing 4 (8.2%) 4 (8.2%)
importance_side_effects
Very important 28 (57.1%) 28 (57.1%)
Somewhat important 15 (30.6%) 15 (30.6%)
Not very important 1 (2.0%) 1 (2.0%)
Note at all important 1 (2.0%) 1 (2.0%)
Missing 4 (8.2%) 4 (8.2%)
importance_pain
Very important 29 (59.2%) 29 (59.2%)
Somewhat important 11 (22.4%) 11 (22.4%)
Not very important 5 (10.2%) 5 (10.2%)
Note at all important 0 (0%) 0 (0%)
Missing 4 (8.2%) 4 (8.2%)
importance_qol
Very important 39 (79.6%) 39 (79.6%)
Somewhat important 4 (8.2%) 4 (8.2%)
Not very important 1 (2.0%) 1 (2.0%)
Note at all important 1 (2.0%) 1 (2.0%)
Missing 4 (8.2%) 4 (8.2%)
importance_irb
Very important 35 (71.4%) 35 (71.4%)
Somewhat important 8 (16.3%) 8 (16.3%)
Not very important 0 (0%) 0 (0%)
Note at all important 1 (2.0%) 1 (2.0%)
Missing 5 (10.2%) 5 (10.2%)
importance_leaving_study
Very important 32 (65.3%) 32 (65.3%)
Somewhat important 10 (20.4%) 10 (20.4%)
Not very important 1 (2.0%) 1 (2.0%)
Note at all important 2 (4.1%) 2 (4.1%)
Missing 4 (8.2%) 4 (8.2%)
concern_cost
my biggest concerns 30 (61.2%) 30 (61.2%)
a major concern 11 (22.4%) 11 (22.4%)
somewhat concerned 3 (6.1%) 3 (6.1%)
Would not influence my decision 2 (4.1%) 2 (4.1%)
Missing 3 (6.1%) 3 (6.1%)
concern_visit_freq
my biggest concerns 16 (32.7%) 16 (32.7%)
a major concern 17 (34.7%) 17 (34.7%)
somewhat concerned 6 (12.2%) 6 (12.2%)
Would not influence my decision 6 (12.2%) 6 (12.2%)
Missing 4 (8.2%) 4 (8.2%)
concern_testing_freq
my biggest concerns 12 (24.5%) 12 (24.5%)
a major concern 22 (44.9%) 22 (44.9%)
somewhat concerned 6 (12.2%) 6 (12.2%)
Would not influence my decision 5 (10.2%) 5 (10.2%)
Missing 4 (8.2%) 4 (8.2%)
concern_test_type
my biggest concerns 10 (20.4%) 10 (20.4%)
a major concern 18 (36.7%) 18 (36.7%)
somewhat concerned 10 (20.4%) 10 (20.4%)
Would not influence my decision 7 (14.3%) 7 (14.3%)
Missing 4 (8.2%) 4 (8.2%)
concern_distance
my biggest concerns 16 (32.7%) 16 (32.7%)
a major concern 12 (24.5%) 12 (24.5%)
somewhat concerned 11 (22.4%) 11 (22.4%)
Would not influence my decision 6 (12.2%) 6 (12.2%)
Missing 4 (8.2%) 4 (8.2%)
concern_family_care
my biggest concerns 5 (10.2%) 5 (10.2%)
a major concern 5 (10.2%) 5 (10.2%)
somewhat concerned 9 (18.4%) 9 (18.4%)
Would not influence my decision 26 (53.1%) 26 (53.1%)
Missing 4 (8.2%) 4 (8.2%)
concern_placebo
my biggest concerns 14 (28.6%) 14 (28.6%)
a major concern 14 (28.6%) 14 (28.6%)
somewhat concerned 9 (18.4%) 9 (18.4%)
Would not influence my decision 7 (14.3%) 7 (14.3%)
Missing 5 (10.2%) 5 (10.2%)
concern_study_complexity
my biggest concerns 12 (24.5%) 12 (24.5%)
a major concern 15 (30.6%) 15 (30.6%)
somewhat concerned 16 (32.7%) 16 (32.7%)
Would not influence my decision 2 (4.1%) 2 (4.1%)
Missing 4 (8.2%) 4 (8.2%)
concern_work
my biggest concerns 13 (26.5%) 13 (26.5%)
a major concern 9 (18.4%) 9 (18.4%)
somewhat concerned 9 (18.4%) 9 (18.4%)
Would not influence my decision 14 (28.6%) 14 (28.6%)
Missing 4 (8.2%) 4 (8.2%)
concern_team_contact
my biggest concerns 19 (38.8%) 19 (38.8%)
a major concern 16 (32.7%) 16 (32.7%)
somewhat concerned 5 (10.2%) 5 (10.2%)
Would not influence my decision 5 (10.2%) 5 (10.2%)
Missing 4 (8.2%) 4 (8.2%)
advisors_doctor
A lot 41 (83.7%) 41 (83.7%)
Somewhat 4 (8.2%) 4 (8.2%)
A little 0 (0%) 0 (0%)
Not at all 1 (2.0%) 1 (2.0%)
Missing 3 (6.1%) 3 (6.1%)
advisors_family_friends
A lot 18 (36.7%) 18 (36.7%)
Somewhat 16 (32.7%) 16 (32.7%)
A little 3 (6.1%) 3 (6.1%)
Not at all 8 (16.3%) 8 (16.3%)
Missing 4 (8.2%) 4 (8.2%)
advisors_trial_pts
A lot 22 (44.9%) 22 (44.9%)
Somewhat 12 (24.5%) 12 (24.5%)
A little 7 (14.3%) 7 (14.3%)
Not at all 4 (8.2%) 4 (8.2%)
Missing 4 (8.2%) 4 (8.2%)
advisors_religious_leader
A lot 7 (14.3%) 7 (14.3%)
Somewhat 10 (20.4%) 10 (20.4%)
A little 5 (10.2%) 5 (10.2%)
Not at all 23 (46.9%) 23 (46.9%)
Missing 4 (8.2%) 4 (8.2%)
advisors_tv
A lot 4 (8.2%) 4 (8.2%)
Somewhat 4 (8.2%) 4 (8.2%)
A little 12 (24.5%) 12 (24.5%)
Not at all 25 (51.0%) 25 (51.0%)
Missing 4 (8.2%) 4 (8.2%)
trust_trial_explanation
Yes/Agree 39 (79.6%) 39 (79.6%)
No/Disagree 8 (16.3%) 8 (16.3%)
I dont Know 0 (0%) 0 (0%)
Missing 2 (4.1%) 2 (4.1%)
trust_provider_questions
Yes/Agree 46 (93.9%) 46 (93.9%)
No/Disagree 0 (0%) 0 (0%)
I dont Know 0 (0%) 0 (0%)
Missing 3 (6.1%) 3 (6.1%)
trust_harmful_research
Yes/Agree 26 (53.1%) 26 (53.1%)
No/Disagree 9 (18.4%) 9 (18.4%)
I dont Know 0 (0%) 0 (0%)
Missing 14 (28.6%) 14 (28.6%)
trust_risk_protection
Yes/Agree 41 (83.7%) 41 (83.7%)
No/Disagree 5 (10.2%) 5 (10.2%)
I dont Know 0 (0%) 0 (0%)
Missing 3 (6.1%) 3 (6.1%)
trust_medication
Yes/Agree 13 (26.5%) 13 (26.5%)
No/Disagree 8 (16.3%) 8 (16.3%)
I dont Know 0 (0%) 0 (0%)
Missing 28 (57.1%) 28 (57.1%)
trust_guinea_pig
Yes/Agree 12 (24.5%) 12 (24.5%)
No/Disagree 13 (26.5%) 13 (26.5%)
I dont Know 0 (0%) 0 (0%)
Missing 24 (49.0%) 24 (49.0%)
trust_med_freq
Yes/Agree 9 (18.4%) 9 (18.4%)
No/Disagree 13 (26.5%) 13 (26.5%)
I dont Know 0 (0%) 0 (0%)
Missing 27 (55.1%) 27 (55.1%)
helpful_written_mats
Extremely helpful 38 (77.6%) 38 (77.6%)
Very helpful 3 (6.1%) 3 (6.1%)
Somewhat helpful 3 (6.1%) 3 (6.1%)
Slightly helpful 2 (4.1%) 2 (4.1%)
Not at all helpful 0 (0%) 0 (0%)
Missing 3 (6.1%) 3 (6.1%)
helpful_videos
Extremely helpful 33 (67.3%) 33 (67.3%)
Very helpful 6 (12.2%) 6 (12.2%)
Somewhat helpful 2 (4.1%) 2 (4.1%)
Slightly helpful 2 (4.1%) 2 (4.1%)
Not at all helpful 0 (0%) 0 (0%)
Missing 6 (12.2%) 6 (12.2%)
help_transport
Extremely helpful 28 (57.1%) 28 (57.1%)
Very helpful 10 (20.4%) 10 (20.4%)
Somewhat helpful 8 (16.3%) 8 (16.3%)
Slightly helpful 0 (0%) 0 (0%)
Not at all helpful 1 (2.0%) 1 (2.0%)
Missing 2 (4.1%) 2 (4.1%)
help_insurance
Extremely helpful 37 (75.5%) 37 (75.5%)
Very helpful 7 (14.3%) 7 (14.3%)
Somewhat helpful 2 (4.1%) 2 (4.1%)
Slightly helpful 1 (2.0%) 1 (2.0%)
Not at all helpful 0 (0%) 0 (0%)
Missing 2 (4.1%) 2 (4.1%)
help_housing
Extremely helpful 21 (42.9%) 21 (42.9%)
Very helpful 11 (22.4%) 11 (22.4%)
Somewhat helpful 4 (8.2%) 4 (8.2%)
Slightly helpful 2 (4.1%) 2 (4.1%)
Not at all helpful 9 (18.4%) 9 (18.4%)
Missing 2 (4.1%) 2 (4.1%)
help_child_care
Extremely helpful 9 (18.4%) 9 (18.4%)
Very helpful 6 (12.2%) 6 (12.2%)
Somewhat helpful 4 (8.2%) 4 (8.2%)
Slightly helpful 4 (8.2%) 4 (8.2%)
Not at all helpful 24 (49.0%) 24 (49.0%)
Missing 2 (4.1%) 2 (4.1%)
help_questions
Extremely helpful 29 (59.2%) 29 (59.2%)
Very helpful 12 (24.5%) 12 (24.5%)
Somewhat helpful 4 (8.2%) 4 (8.2%)
Slightly helpful 0 (0%) 0 (0%)
Not at all helpful 2 (4.1%) 2 (4.1%)
Missing 2 (4.1%) 2 (4.1%)
help_language
Extremely helpful 32 (65.3%) 32 (65.3%)
Very helpful 7 (14.3%) 7 (14.3%)
Somewhat helpful 2 (4.1%) 2 (4.1%)
Slightly helpful 1 (2.0%) 1 (2.0%)
Not at all helpful 5 (10.2%) 5 (10.2%)
Missing 2 (4.1%) 2 (4.1%)
help_flex_time
Extremely helpful 32 (65.3%) 32 (65.3%)
Very helpful 10 (20.4%) 10 (20.4%)
Somewhat helpful 1 (2.0%) 1 (2.0%)
Slightly helpful 1 (2.0%) 1 (2.0%)
Not at all helpful 3 (6.1%) 3 (6.1%)
Missing 2 (4.1%) 2 (4.1%)
help_televisits
Extremely helpful 26 (53.1%) 26 (53.1%)
Very helpful 14 (28.6%) 14 (28.6%)
Somewhat helpful 4 (8.2%) 4 (8.2%)
Slightly helpful 1 (2.0%) 1 (2.0%)
Not at all helpful 2 (4.1%) 2 (4.1%)
Missing 2 (4.1%) 2 (4.1%)
help_compensation
Extremely helpful 22 (44.9%) 22 (44.9%)
Very helpful 11 (22.4%) 11 (22.4%)
Somewhat helpful 7 (14.3%) 7 (14.3%)
Slightly helpful 1 (2.0%) 1 (2.0%)
Not at all helpful 6 (12.2%) 6 (12.2%)
Missing 2 (4.1%) 2 (4.1%)