Total
(N=242)
Yes
(N=94)
No
(N=148)
knowledge_trial
Not well at all 4 (1.7%) 0 (0%) 4 (2.7%)
Not very well 21 (8.7%) 4 (4.3%) 17 (11.5%)
Somewhat well 97 (40.1%) 27 (28.7%) 70 (47.3%)
Very well 115 (47.5%) 63 (67.0%) 52 (35.1%)
Missing 5 (2.1%) 0 (0%) 5 (3.4%)
trial_discussed
Yes 142 (58.7%) 85 (90.4%) 57 (38.5%)
No 96 (39.7%) 6 (6.4%) 90 (60.8%)
Missing 4 (1.7%) 3 (3.2%) 1 (0.7%)
trial_participation
Yes 94 (38.8%) 94 (100%) 0 (0%)
No 148 (61.2%) 0 (0%) 148 (100%)
trial_experience
Very negative 2 (0.8%) 2 (2.1%) 0 (0%)
Somewhat negative 2 (0.8%) 2 (2.1%) 0 (0%)
neutral 10 (4.1%) 10 (10.6%) 0 (0%)
Somewhat positive 12 (5.0%) 12 (12.8%) 0 (0%)
very positive 62 (25.6%) 62 (66.0%) 0 (0%)
Missing 154 (63.6%) 6 (6.4%) 148 (100%)
trial_importance
Note at all important 0 (0%) 0 (0%) 0 (0%)
Not very important 0 (0%) 0 (0%) 0 (0%)
Somewhat important 15 (6.2%) 0 (0%) 15 (10.1%)
Very important 226 (93.4%) 94 (100%) 132 (89.2%)
Missing 1 (0.4%) 0 (0%) 1 (0.7%)
trial_safety
Not at all safe 0 (0%) 0 (0%) 0 (0%)
Not very safe 4 (1.7%) 2 (2.1%) 2 (1.4%)
Somewhat safe 146 (60.3%) 49 (52.1%) 97 (65.5%)
Very safe 82 (33.9%) 40 (42.6%) 42 (28.4%)
Missing 10 (4.1%) 3 (3.2%) 7 (4.7%)
trial_as_trt_option
Not at all often 40 (16.5%) 5 (5.3%) 35 (23.6%)
Not very often 64 (26.4%) 17 (18.1%) 47 (31.8%)
Somewhat often 59 (24.4%) 21 (22.3%) 38 (25.7%)
very often 71 (29.3%) 47 (50.0%) 24 (16.2%)
Missing 8 (3.3%) 4 (4.3%) 4 (2.7%)
trial_care
Mean (SD) 2.48 (0.535) 2.58 (0.519) 2.42 (0.537)
Median [Min, Max] 2.00 [1.00, 3.00] 3.00 [1.00, 3.00] 2.00 [1.00, 3.00]
Missing 13 (5.4%) 2 (2.1%) 11 (7.4%)
willing_first_trt
very willing 104 (43.0%) 57 (60.6%) 47 (31.8%)
somewhat willing 86 (35.5%) 24 (25.5%) 62 (41.9%)
not very willing 32 (13.2%) 7 (7.4%) 25 (16.9%)
not at all willing 16 (6.6%) 5 (5.3%) 11 (7.4%)
Missing 4 (1.7%) 1 (1.1%) 3 (2.0%)
willing_addition_to_soc
very willing 126 (52.1%) 63 (67.0%) 63 (42.6%)
somewhat willing 89 (36.8%) 27 (28.7%) 62 (41.9%)
not very willing 16 (6.6%) 3 (3.2%) 13 (8.8%)
not at all willing 4 (1.7%) 1 (1.1%) 3 (2.0%)
Missing 7 (2.9%) 0 (0%) 7 (4.7%)
willing_ineffective_soc
very willing 149 (61.6%) 76 (80.9%) 73 (49.3%)
somewhat willing 47 (19.4%) 10 (10.6%) 37 (25.0%)
not very willing 26 (10.7%) 5 (5.3%) 21 (14.2%)
not at all willing 9 (3.7%) 2 (2.1%) 7 (4.7%)
Missing 11 (4.5%) 1 (1.1%) 10 (6.8%)
willing_failed_soc
very willing 155 (64.0%) 76 (80.9%) 79 (53.4%)
somewhat willing 57 (23.6%) 11 (11.7%) 46 (31.1%)
not very willing 18 (7.4%) 5 (5.3%) 13 (8.8%)
not at all willing 2 (0.8%) 0 (0%) 2 (1.4%)
Missing 10 (4.1%) 2 (2.1%) 8 (5.4%)
willing_no_soc
very willing 180 (74.4%) 80 (85.1%) 100 (67.6%)
somewhat willing 41 (16.9%) 7 (7.4%) 34 (23.0%)
not very willing 5 (2.1%) 2 (2.1%) 3 (2.0%)
not at all willing 5 (2.1%) 1 (1.1%) 4 (2.7%)
Missing 11 (4.5%) 4 (4.3%) 7 (4.7%)
importance_trt_ease
Very important 115 (47.5%) 48 (51.1%) 67 (45.3%)
Somewhat important 78 (32.2%) 27 (28.7%) 51 (34.5%)
Not very important 31 (12.8%) 16 (17.0%) 15 (10.1%)
Note at all important 11 (4.5%) 3 (3.2%) 8 (5.4%)
Missing 7 (2.9%) 0 (0%) 7 (4.7%)
importance_side_effects
Very important 146 (60.3%) 62 (66.0%) 84 (56.8%)
Somewhat important 69 (28.5%) 22 (23.4%) 47 (31.8%)
Not very important 13 (5.4%) 6 (6.4%) 7 (4.7%)
Note at all important 5 (2.1%) 2 (2.1%) 3 (2.0%)
Missing 9 (3.7%) 2 (2.1%) 7 (4.7%)
importance_pain
Very important 115 (47.5%) 52 (55.3%) 63 (42.6%)
Somewhat important 91 (37.6%) 30 (31.9%) 61 (41.2%)
Not very important 16 (6.6%) 8 (8.5%) 8 (5.4%)
Note at all important 9 (3.7%) 3 (3.2%) 6 (4.1%)
Missing 11 (4.5%) 1 (1.1%) 10 (6.8%)
importance_qol
Very important 206 (85.1%) 86 (91.5%) 120 (81.1%)
Somewhat important 26 (10.7%) 7 (7.4%) 19 (12.8%)
Not very important 0 (0%) 0 (0%) 0 (0%)
Note at all important 3 (1.2%) 1 (1.1%) 2 (1.4%)
Missing 7 (2.9%) 0 (0%) 7 (4.7%)
importance_irb
Very important 184 (76.0%) 76 (80.9%) 108 (73.0%)
Somewhat important 39 (16.1%) 14 (14.9%) 25 (16.9%)
Not very important 7 (2.9%) 2 (2.1%) 5 (3.4%)
Note at all important 4 (1.7%) 2 (2.1%) 2 (1.4%)
Missing 8 (3.3%) 0 (0%) 8 (5.4%)
importance_leaving_study
Very important 159 (65.7%) 62 (66.0%) 97 (65.5%)
Somewhat important 47 (19.4%) 16 (17.0%) 31 (20.9%)
Not very important 18 (7.4%) 10 (10.6%) 8 (5.4%)
Note at all important 8 (3.3%) 4 (4.3%) 4 (2.7%)
Missing 10 (4.1%) 2 (2.1%) 8 (5.4%)
concern_cost
my biggest concerns 71 (29.3%) 24 (25.5%) 47 (31.8%)
a major concern 93 (38.4%) 36 (38.3%) 57 (38.5%)
somewhat concerned 61 (25.2%) 26 (27.7%) 35 (23.6%)
Would not influence my decision 14 (5.8%) 8 (8.5%) 6 (4.1%)
Missing 3 (1.2%) 0 (0%) 3 (2.0%)
concern_visit_freq
my biggest concerns 46 (19.0%) 13 (13.8%) 33 (22.3%)
a major concern 74 (30.6%) 19 (20.2%) 55 (37.2%)
somewhat concerned 63 (26.0%) 32 (34.0%) 31 (20.9%)
Would not influence my decision 54 (22.3%) 30 (31.9%) 24 (16.2%)
Missing 5 (2.1%) 0 (0%) 5 (3.4%)
concern_testing_freq
my biggest concerns 38 (15.7%) 11 (11.7%) 27 (18.2%)
a major concern 67 (27.7%) 15 (16.0%) 52 (35.1%)
somewhat concerned 75 (31.0%) 33 (35.1%) 42 (28.4%)
Would not influence my decision 57 (23.6%) 35 (37.2%) 22 (14.9%)
Missing 5 (2.1%) 0 (0%) 5 (3.4%)
concern_test_type
my biggest concerns 36 (14.9%) 9 (9.6%) 27 (18.2%)
a major concern 44 (18.2%) 9 (9.6%) 35 (23.6%)
somewhat concerned 85 (35.1%) 35 (37.2%) 50 (33.8%)
Would not influence my decision 72 (29.8%) 41 (43.6%) 31 (20.9%)
Missing 5 (2.1%) 0 (0%) 5 (3.4%)
concern_distance
my biggest concerns 57 (23.6%) 15 (16.0%) 42 (28.4%)
a major concern 61 (25.2%) 21 (22.3%) 40 (27.0%)
somewhat concerned 57 (23.6%) 22 (23.4%) 35 (23.6%)
Would not influence my decision 62 (25.6%) 36 (38.3%) 26 (17.6%)
Missing 5 (2.1%) 0 (0%) 5 (3.4%)
concern_family_care
my biggest concerns 15 (6.2%) 4 (4.3%) 11 (7.4%)
a major concern 18 (7.4%) 4 (4.3%) 14 (9.5%)
somewhat concerned 26 (10.7%) 9 (9.6%) 17 (11.5%)
Would not influence my decision 174 (71.9%) 74 (78.7%) 100 (67.6%)
Missing 9 (3.7%) 3 (3.2%) 6 (4.1%)
concern_placebo
my biggest concerns 49 (20.2%) 22 (23.4%) 27 (18.2%)
a major concern 67 (27.7%) 28 (29.8%) 39 (26.4%)
somewhat concerned 77 (31.8%) 26 (27.7%) 51 (34.5%)
Would not influence my decision 40 (16.5%) 16 (17.0%) 24 (16.2%)
Missing 9 (3.7%) 2 (2.1%) 7 (4.7%)
concern_study_complexity
my biggest concerns 33 (13.6%) 10 (10.6%) 23 (15.5%)
a major concern 62 (25.6%) 13 (13.8%) 49 (33.1%)
somewhat concerned 85 (35.1%) 36 (38.3%) 49 (33.1%)
Would not influence my decision 54 (22.3%) 34 (36.2%) 20 (13.5%)
Missing 8 (3.3%) 1 (1.1%) 7 (4.7%)
concern_work
my biggest concerns 33 (13.6%) 6 (6.4%) 27 (18.2%)
a major concern 27 (11.2%) 9 (9.6%) 18 (12.2%)
somewhat concerned 46 (19.0%) 22 (23.4%) 24 (16.2%)
Would not influence my decision 129 (53.3%) 54 (57.4%) 75 (50.7%)
Missing 7 (2.9%) 3 (3.2%) 4 (2.7%)
concern_team_contact
my biggest concerns 50 (20.7%) 16 (17.0%) 34 (23.0%)
a major concern 88 (36.4%) 37 (39.4%) 51 (34.5%)
somewhat concerned 64 (26.4%) 24 (25.5%) 40 (27.0%)
Would not influence my decision 33 (13.6%) 16 (17.0%) 17 (11.5%)
Missing 7 (2.9%) 1 (1.1%) 6 (4.1%)
advisors_doctor
A lot 211 (87.2%) 87 (92.6%) 124 (83.8%)
Somewhat 20 (8.3%) 6 (6.4%) 14 (9.5%)
A little 2 (0.8%) 0 (0%) 2 (1.4%)
Not at all 5 (2.1%) 1 (1.1%) 4 (2.7%)
Missing 4 (1.7%) 0 (0%) 4 (2.7%)
advisors_family_friends
A lot 66 (27.3%) 28 (29.8%) 38 (25.7%)
Somewhat 86 (35.5%) 32 (34.0%) 54 (36.5%)
A little 49 (20.2%) 21 (22.3%) 28 (18.9%)
Not at all 33 (13.6%) 12 (12.8%) 21 (14.2%)
Missing 8 (3.3%) 1 (1.1%) 7 (4.7%)
advisors_trial_pts
A lot 72 (29.8%) 24 (25.5%) 48 (32.4%)
Somewhat 93 (38.4%) 32 (34.0%) 61 (41.2%)
A little 50 (20.7%) 24 (25.5%) 26 (17.6%)
Not at all 22 (9.1%) 14 (14.9%) 8 (5.4%)
Missing 5 (2.1%) 0 (0%) 5 (3.4%)
advisors_religious_leader
A lot 21 (8.7%) 4 (4.3%) 17 (11.5%)
Somewhat 45 (18.6%) 16 (17.0%) 29 (19.6%)
A little 50 (20.7%) 18 (19.1%) 32 (21.6%)
Not at all 119 (49.2%) 55 (58.5%) 64 (43.2%)
Missing 7 (2.9%) 1 (1.1%) 6 (4.1%)
advisors_tv
A lot 7 (2.9%) 1 (1.1%) 6 (4.1%)
Somewhat 12 (5.0%) 3 (3.2%) 9 (6.1%)
A little 32 (13.2%) 11 (11.7%) 21 (14.2%)
Not at all 184 (76.0%) 79 (84.0%) 105 (70.9%)
Missing 7 (2.9%) 0 (0%) 7 (4.7%)
trust_trial_explanation
Yes/Agree 224 (92.6%) 90 (95.7%) 134 (90.5%)
No/Disagree 11 (4.5%) 2 (2.1%) 9 (6.1%)
I dont Know 0 (0%) 0 (0%) 0 (0%)
Missing 7 (2.9%) 2 (2.1%) 5 (3.4%)
trust_provider_questions
Yes/Agree 235 (97.1%) 94 (100%) 141 (95.3%)
No/Disagree 1 (0.4%) 0 (0%) 1 (0.7%)
I dont Know 0 (0%) 0 (0%) 0 (0%)
Missing 6 (2.5%) 0 (0%) 6 (4.1%)
trust_harmful_research
Yes/Agree 196 (81.0%) 82 (87.2%) 114 (77.0%)
No/Disagree 27 (11.2%) 8 (8.5%) 19 (12.8%)
I dont Know 0 (0%) 0 (0%) 0 (0%)
Missing 19 (7.9%) 4 (4.3%) 15 (10.1%)
trust_risk_protection
Yes/Agree 218 (90.1%) 87 (92.6%) 131 (88.5%)
No/Disagree 10 (4.1%) 4 (4.3%) 6 (4.1%)
I dont Know 0 (0%) 0 (0%) 0 (0%)
Missing 14 (5.8%) 3 (3.2%) 11 (7.4%)
trust_medication
Yes/Agree 44 (18.2%) 13 (13.8%) 31 (20.9%)
No/Disagree 28 (11.6%) 12 (12.8%) 16 (10.8%)
I dont Know 0 (0%) 0 (0%) 0 (0%)
Missing 170 (70.2%) 69 (73.4%) 101 (68.2%)
trust_guinea_pig
Yes/Agree 32 (13.2%) 10 (10.6%) 22 (14.9%)
No/Disagree 36 (14.9%) 12 (12.8%) 24 (16.2%)
I dont Know 0 (0%) 0 (0%) 0 (0%)
Missing 174 (71.9%) 72 (76.6%) 102 (68.9%)
trust_med_freq
Yes/Agree 28 (11.6%) 6 (6.4%) 22 (14.9%)
No/Disagree 33 (13.6%) 13 (13.8%) 20 (13.5%)
I dont Know 0 (0%) 0 (0%) 0 (0%)
Missing 181 (74.8%) 75 (79.8%) 106 (71.6%)
helpful_written_mats
Extremely helpful 154 (63.6%) 68 (72.3%) 86 (58.1%)
Very helpful 56 (23.1%) 15 (16.0%) 41 (27.7%)
Somewhat helpful 20 (8.3%) 8 (8.5%) 12 (8.1%)
Slightly helpful 1 (0.4%) 0 (0%) 1 (0.7%)
Not at all helpful 4 (1.7%) 1 (1.1%) 3 (2.0%)
Missing 7 (2.9%) 2 (2.1%) 5 (3.4%)
helpful_videos
Extremely helpful 136 (56.2%) 58 (61.7%) 78 (52.7%)
Very helpful 68 (28.1%) 17 (18.1%) 51 (34.5%)
Somewhat helpful 27 (11.2%) 15 (16.0%) 12 (8.1%)
Slightly helpful 1 (0.4%) 1 (1.1%) 0 (0%)
Not at all helpful 3 (1.2%) 1 (1.1%) 2 (1.4%)
Missing 7 (2.9%) 2 (2.1%) 5 (3.4%)
help_transport
Extremely helpful 97 (40.1%) 39 (41.5%) 58 (39.2%)
Very helpful 54 (22.3%) 17 (18.1%) 37 (25.0%)
Somewhat helpful 48 (19.8%) 19 (20.2%) 29 (19.6%)
Slightly helpful 7 (2.9%) 5 (5.3%) 2 (1.4%)
Not at all helpful 28 (11.6%) 11 (11.7%) 17 (11.5%)
Missing 8 (3.3%) 3 (3.2%) 5 (3.4%)
help_insurance
Extremely helpful 169 (69.8%) 67 (71.3%) 102 (68.9%)
Very helpful 51 (21.1%) 21 (22.3%) 30 (20.3%)
Somewhat helpful 13 (5.4%) 3 (3.2%) 10 (6.8%)
Slightly helpful 1 (0.4%) 1 (1.1%) 0 (0%)
Not at all helpful 2 (0.8%) 0 (0%) 2 (1.4%)
Missing 6 (2.5%) 2 (2.1%) 4 (2.7%)
help_housing
Extremely helpful 118 (48.8%) 44 (46.8%) 74 (50.0%)
Very helpful 42 (17.4%) 14 (14.9%) 28 (18.9%)
Somewhat helpful 34 (14.0%) 16 (17.0%) 18 (12.2%)
Slightly helpful 7 (2.9%) 3 (3.2%) 4 (2.7%)
Not at all helpful 30 (12.4%) 13 (13.8%) 17 (11.5%)
Missing 11 (4.5%) 4 (4.3%) 7 (4.7%)
help_child_care
Extremely helpful 33 (13.6%) 7 (7.4%) 26 (17.6%)
Very helpful 13 (5.4%) 4 (4.3%) 9 (6.1%)
Somewhat helpful 14 (5.8%) 8 (8.5%) 6 (4.1%)
Slightly helpful 7 (2.9%) 4 (4.3%) 3 (2.0%)
Not at all helpful 149 (61.6%) 61 (64.9%) 88 (59.5%)
Missing 26 (10.7%) 10 (10.6%) 16 (10.8%)
help_questions
Extremely helpful 141 (58.3%) 57 (60.6%) 84 (56.8%)
Very helpful 73 (30.2%) 29 (30.9%) 44 (29.7%)
Somewhat helpful 15 (6.2%) 4 (4.3%) 11 (7.4%)
Slightly helpful 0 (0%) 0 (0%) 0 (0%)
Not at all helpful 6 (2.5%) 2 (2.1%) 4 (2.7%)
Missing 7 (2.9%) 2 (2.1%) 5 (3.4%)
help_language
Extremely helpful 125 (51.7%) 48 (51.1%) 77 (52.0%)
Very helpful 44 (18.2%) 18 (19.1%) 26 (17.6%)
Somewhat helpful 13 (5.4%) 5 (5.3%) 8 (5.4%)
Slightly helpful 5 (2.1%) 3 (3.2%) 2 (1.4%)
Not at all helpful 43 (17.8%) 13 (13.8%) 30 (20.3%)
Missing 12 (5.0%) 7 (7.4%) 5 (3.4%)
help_flex_time
Extremely helpful 118 (48.8%) 44 (46.8%) 74 (50.0%)
Very helpful 72 (29.8%) 28 (29.8%) 44 (29.7%)
Somewhat helpful 37 (15.3%) 18 (19.1%) 19 (12.8%)
Slightly helpful 3 (1.2%) 1 (1.1%) 2 (1.4%)
Not at all helpful 4 (1.7%) 1 (1.1%) 3 (2.0%)
Missing 8 (3.3%) 2 (2.1%) 6 (4.1%)
help_televisits
Extremely helpful 123 (50.8%) 48 (51.1%) 75 (50.7%)
Very helpful 70 (28.9%) 25 (26.6%) 45 (30.4%)
Somewhat helpful 31 (12.8%) 14 (14.9%) 17 (11.5%)
Slightly helpful 3 (1.2%) 2 (2.1%) 1 (0.7%)
Not at all helpful 7 (2.9%) 2 (2.1%) 5 (3.4%)
Missing 8 (3.3%) 3 (3.2%) 5 (3.4%)
help_compensation
Extremely helpful 84 (34.7%) 32 (34.0%) 52 (35.1%)
Very helpful 45 (18.6%) 20 (21.3%) 25 (16.9%)
Somewhat helpful 44 (18.2%) 14 (14.9%) 30 (20.3%)
Slightly helpful 17 (7.0%) 8 (8.5%) 9 (6.1%)
Not at all helpful 44 (18.2%) 17 (18.1%) 27 (18.2%)
Missing 8 (3.3%) 3 (3.2%) 5 (3.4%)