Total (N=242) |
Yes (N=94) |
No (N=148) |
|
---|---|---|---|
knowledge_trial | |||
Not well at all | 4 (1.7%) | 0 (0%) | 4 (2.7%) |
Not very well | 21 (8.7%) | 4 (4.3%) | 17 (11.5%) |
Somewhat well | 97 (40.1%) | 27 (28.7%) | 70 (47.3%) |
Very well | 115 (47.5%) | 63 (67.0%) | 52 (35.1%) |
Missing | 5 (2.1%) | 0 (0%) | 5 (3.4%) |
trial_discussed | |||
Yes | 142 (58.7%) | 85 (90.4%) | 57 (38.5%) |
No | 96 (39.7%) | 6 (6.4%) | 90 (60.8%) |
Missing | 4 (1.7%) | 3 (3.2%) | 1 (0.7%) |
trial_participation | |||
Yes | 94 (38.8%) | 94 (100%) | 0 (0%) |
No | 148 (61.2%) | 0 (0%) | 148 (100%) |
trial_experience | |||
Very negative | 2 (0.8%) | 2 (2.1%) | 0 (0%) |
Somewhat negative | 2 (0.8%) | 2 (2.1%) | 0 (0%) |
neutral | 10 (4.1%) | 10 (10.6%) | 0 (0%) |
Somewhat positive | 12 (5.0%) | 12 (12.8%) | 0 (0%) |
very positive | 62 (25.6%) | 62 (66.0%) | 0 (0%) |
Missing | 154 (63.6%) | 6 (6.4%) | 148 (100%) |
trial_importance | |||
Note at all important | 0 (0%) | 0 (0%) | 0 (0%) |
Not very important | 0 (0%) | 0 (0%) | 0 (0%) |
Somewhat important | 15 (6.2%) | 0 (0%) | 15 (10.1%) |
Very important | 226 (93.4%) | 94 (100%) | 132 (89.2%) |
Missing | 1 (0.4%) | 0 (0%) | 1 (0.7%) |
trial_safety | |||
Not at all safe | 0 (0%) | 0 (0%) | 0 (0%) |
Not very safe | 4 (1.7%) | 2 (2.1%) | 2 (1.4%) |
Somewhat safe | 146 (60.3%) | 49 (52.1%) | 97 (65.5%) |
Very safe | 82 (33.9%) | 40 (42.6%) | 42 (28.4%) |
Missing | 10 (4.1%) | 3 (3.2%) | 7 (4.7%) |
trial_as_trt_option | |||
Not at all often | 40 (16.5%) | 5 (5.3%) | 35 (23.6%) |
Not very often | 64 (26.4%) | 17 (18.1%) | 47 (31.8%) |
Somewhat often | 59 (24.4%) | 21 (22.3%) | 38 (25.7%) |
very often | 71 (29.3%) | 47 (50.0%) | 24 (16.2%) |
Missing | 8 (3.3%) | 4 (4.3%) | 4 (2.7%) |
trial_care | |||
Mean (SD) | 2.48 (0.535) | 2.58 (0.519) | 2.42 (0.537) |
Median [Min, Max] | 2.00 [1.00, 3.00] | 3.00 [1.00, 3.00] | 2.00 [1.00, 3.00] |
Missing | 13 (5.4%) | 2 (2.1%) | 11 (7.4%) |
willing_first_trt | |||
very willing | 104 (43.0%) | 57 (60.6%) | 47 (31.8%) |
somewhat willing | 86 (35.5%) | 24 (25.5%) | 62 (41.9%) |
not very willing | 32 (13.2%) | 7 (7.4%) | 25 (16.9%) |
not at all willing | 16 (6.6%) | 5 (5.3%) | 11 (7.4%) |
Missing | 4 (1.7%) | 1 (1.1%) | 3 (2.0%) |
willing_addition_to_soc | |||
very willing | 126 (52.1%) | 63 (67.0%) | 63 (42.6%) |
somewhat willing | 89 (36.8%) | 27 (28.7%) | 62 (41.9%) |
not very willing | 16 (6.6%) | 3 (3.2%) | 13 (8.8%) |
not at all willing | 4 (1.7%) | 1 (1.1%) | 3 (2.0%) |
Missing | 7 (2.9%) | 0 (0%) | 7 (4.7%) |
willing_ineffective_soc | |||
very willing | 149 (61.6%) | 76 (80.9%) | 73 (49.3%) |
somewhat willing | 47 (19.4%) | 10 (10.6%) | 37 (25.0%) |
not very willing | 26 (10.7%) | 5 (5.3%) | 21 (14.2%) |
not at all willing | 9 (3.7%) | 2 (2.1%) | 7 (4.7%) |
Missing | 11 (4.5%) | 1 (1.1%) | 10 (6.8%) |
willing_failed_soc | |||
very willing | 155 (64.0%) | 76 (80.9%) | 79 (53.4%) |
somewhat willing | 57 (23.6%) | 11 (11.7%) | 46 (31.1%) |
not very willing | 18 (7.4%) | 5 (5.3%) | 13 (8.8%) |
not at all willing | 2 (0.8%) | 0 (0%) | 2 (1.4%) |
Missing | 10 (4.1%) | 2 (2.1%) | 8 (5.4%) |
willing_no_soc | |||
very willing | 180 (74.4%) | 80 (85.1%) | 100 (67.6%) |
somewhat willing | 41 (16.9%) | 7 (7.4%) | 34 (23.0%) |
not very willing | 5 (2.1%) | 2 (2.1%) | 3 (2.0%) |
not at all willing | 5 (2.1%) | 1 (1.1%) | 4 (2.7%) |
Missing | 11 (4.5%) | 4 (4.3%) | 7 (4.7%) |
importance_trt_ease | |||
Very important | 115 (47.5%) | 48 (51.1%) | 67 (45.3%) |
Somewhat important | 78 (32.2%) | 27 (28.7%) | 51 (34.5%) |
Not very important | 31 (12.8%) | 16 (17.0%) | 15 (10.1%) |
Note at all important | 11 (4.5%) | 3 (3.2%) | 8 (5.4%) |
Missing | 7 (2.9%) | 0 (0%) | 7 (4.7%) |
importance_side_effects | |||
Very important | 146 (60.3%) | 62 (66.0%) | 84 (56.8%) |
Somewhat important | 69 (28.5%) | 22 (23.4%) | 47 (31.8%) |
Not very important | 13 (5.4%) | 6 (6.4%) | 7 (4.7%) |
Note at all important | 5 (2.1%) | 2 (2.1%) | 3 (2.0%) |
Missing | 9 (3.7%) | 2 (2.1%) | 7 (4.7%) |
importance_pain | |||
Very important | 115 (47.5%) | 52 (55.3%) | 63 (42.6%) |
Somewhat important | 91 (37.6%) | 30 (31.9%) | 61 (41.2%) |
Not very important | 16 (6.6%) | 8 (8.5%) | 8 (5.4%) |
Note at all important | 9 (3.7%) | 3 (3.2%) | 6 (4.1%) |
Missing | 11 (4.5%) | 1 (1.1%) | 10 (6.8%) |
importance_qol | |||
Very important | 206 (85.1%) | 86 (91.5%) | 120 (81.1%) |
Somewhat important | 26 (10.7%) | 7 (7.4%) | 19 (12.8%) |
Not very important | 0 (0%) | 0 (0%) | 0 (0%) |
Note at all important | 3 (1.2%) | 1 (1.1%) | 2 (1.4%) |
Missing | 7 (2.9%) | 0 (0%) | 7 (4.7%) |
importance_irb | |||
Very important | 184 (76.0%) | 76 (80.9%) | 108 (73.0%) |
Somewhat important | 39 (16.1%) | 14 (14.9%) | 25 (16.9%) |
Not very important | 7 (2.9%) | 2 (2.1%) | 5 (3.4%) |
Note at all important | 4 (1.7%) | 2 (2.1%) | 2 (1.4%) |
Missing | 8 (3.3%) | 0 (0%) | 8 (5.4%) |
importance_leaving_study | |||
Very important | 159 (65.7%) | 62 (66.0%) | 97 (65.5%) |
Somewhat important | 47 (19.4%) | 16 (17.0%) | 31 (20.9%) |
Not very important | 18 (7.4%) | 10 (10.6%) | 8 (5.4%) |
Note at all important | 8 (3.3%) | 4 (4.3%) | 4 (2.7%) |
Missing | 10 (4.1%) | 2 (2.1%) | 8 (5.4%) |
concern_cost | |||
my biggest concerns | 71 (29.3%) | 24 (25.5%) | 47 (31.8%) |
a major concern | 93 (38.4%) | 36 (38.3%) | 57 (38.5%) |
somewhat concerned | 61 (25.2%) | 26 (27.7%) | 35 (23.6%) |
Would not influence my decision | 14 (5.8%) | 8 (8.5%) | 6 (4.1%) |
Missing | 3 (1.2%) | 0 (0%) | 3 (2.0%) |
concern_visit_freq | |||
my biggest concerns | 46 (19.0%) | 13 (13.8%) | 33 (22.3%) |
a major concern | 74 (30.6%) | 19 (20.2%) | 55 (37.2%) |
somewhat concerned | 63 (26.0%) | 32 (34.0%) | 31 (20.9%) |
Would not influence my decision | 54 (22.3%) | 30 (31.9%) | 24 (16.2%) |
Missing | 5 (2.1%) | 0 (0%) | 5 (3.4%) |
concern_testing_freq | |||
my biggest concerns | 38 (15.7%) | 11 (11.7%) | 27 (18.2%) |
a major concern | 67 (27.7%) | 15 (16.0%) | 52 (35.1%) |
somewhat concerned | 75 (31.0%) | 33 (35.1%) | 42 (28.4%) |
Would not influence my decision | 57 (23.6%) | 35 (37.2%) | 22 (14.9%) |
Missing | 5 (2.1%) | 0 (0%) | 5 (3.4%) |
concern_test_type | |||
my biggest concerns | 36 (14.9%) | 9 (9.6%) | 27 (18.2%) |
a major concern | 44 (18.2%) | 9 (9.6%) | 35 (23.6%) |
somewhat concerned | 85 (35.1%) | 35 (37.2%) | 50 (33.8%) |
Would not influence my decision | 72 (29.8%) | 41 (43.6%) | 31 (20.9%) |
Missing | 5 (2.1%) | 0 (0%) | 5 (3.4%) |
concern_distance | |||
my biggest concerns | 57 (23.6%) | 15 (16.0%) | 42 (28.4%) |
a major concern | 61 (25.2%) | 21 (22.3%) | 40 (27.0%) |
somewhat concerned | 57 (23.6%) | 22 (23.4%) | 35 (23.6%) |
Would not influence my decision | 62 (25.6%) | 36 (38.3%) | 26 (17.6%) |
Missing | 5 (2.1%) | 0 (0%) | 5 (3.4%) |
concern_family_care | |||
my biggest concerns | 15 (6.2%) | 4 (4.3%) | 11 (7.4%) |
a major concern | 18 (7.4%) | 4 (4.3%) | 14 (9.5%) |
somewhat concerned | 26 (10.7%) | 9 (9.6%) | 17 (11.5%) |
Would not influence my decision | 174 (71.9%) | 74 (78.7%) | 100 (67.6%) |
Missing | 9 (3.7%) | 3 (3.2%) | 6 (4.1%) |
concern_placebo | |||
my biggest concerns | 49 (20.2%) | 22 (23.4%) | 27 (18.2%) |
a major concern | 67 (27.7%) | 28 (29.8%) | 39 (26.4%) |
somewhat concerned | 77 (31.8%) | 26 (27.7%) | 51 (34.5%) |
Would not influence my decision | 40 (16.5%) | 16 (17.0%) | 24 (16.2%) |
Missing | 9 (3.7%) | 2 (2.1%) | 7 (4.7%) |
concern_study_complexity | |||
my biggest concerns | 33 (13.6%) | 10 (10.6%) | 23 (15.5%) |
a major concern | 62 (25.6%) | 13 (13.8%) | 49 (33.1%) |
somewhat concerned | 85 (35.1%) | 36 (38.3%) | 49 (33.1%) |
Would not influence my decision | 54 (22.3%) | 34 (36.2%) | 20 (13.5%) |
Missing | 8 (3.3%) | 1 (1.1%) | 7 (4.7%) |
concern_work | |||
my biggest concerns | 33 (13.6%) | 6 (6.4%) | 27 (18.2%) |
a major concern | 27 (11.2%) | 9 (9.6%) | 18 (12.2%) |
somewhat concerned | 46 (19.0%) | 22 (23.4%) | 24 (16.2%) |
Would not influence my decision | 129 (53.3%) | 54 (57.4%) | 75 (50.7%) |
Missing | 7 (2.9%) | 3 (3.2%) | 4 (2.7%) |
concern_team_contact | |||
my biggest concerns | 50 (20.7%) | 16 (17.0%) | 34 (23.0%) |
a major concern | 88 (36.4%) | 37 (39.4%) | 51 (34.5%) |
somewhat concerned | 64 (26.4%) | 24 (25.5%) | 40 (27.0%) |
Would not influence my decision | 33 (13.6%) | 16 (17.0%) | 17 (11.5%) |
Missing | 7 (2.9%) | 1 (1.1%) | 6 (4.1%) |
advisors_doctor | |||
A lot | 211 (87.2%) | 87 (92.6%) | 124 (83.8%) |
Somewhat | 20 (8.3%) | 6 (6.4%) | 14 (9.5%) |
A little | 2 (0.8%) | 0 (0%) | 2 (1.4%) |
Not at all | 5 (2.1%) | 1 (1.1%) | 4 (2.7%) |
Missing | 4 (1.7%) | 0 (0%) | 4 (2.7%) |
advisors_family_friends | |||
A lot | 66 (27.3%) | 28 (29.8%) | 38 (25.7%) |
Somewhat | 86 (35.5%) | 32 (34.0%) | 54 (36.5%) |
A little | 49 (20.2%) | 21 (22.3%) | 28 (18.9%) |
Not at all | 33 (13.6%) | 12 (12.8%) | 21 (14.2%) |
Missing | 8 (3.3%) | 1 (1.1%) | 7 (4.7%) |
advisors_trial_pts | |||
A lot | 72 (29.8%) | 24 (25.5%) | 48 (32.4%) |
Somewhat | 93 (38.4%) | 32 (34.0%) | 61 (41.2%) |
A little | 50 (20.7%) | 24 (25.5%) | 26 (17.6%) |
Not at all | 22 (9.1%) | 14 (14.9%) | 8 (5.4%) |
Missing | 5 (2.1%) | 0 (0%) | 5 (3.4%) |
advisors_religious_leader | |||
A lot | 21 (8.7%) | 4 (4.3%) | 17 (11.5%) |
Somewhat | 45 (18.6%) | 16 (17.0%) | 29 (19.6%) |
A little | 50 (20.7%) | 18 (19.1%) | 32 (21.6%) |
Not at all | 119 (49.2%) | 55 (58.5%) | 64 (43.2%) |
Missing | 7 (2.9%) | 1 (1.1%) | 6 (4.1%) |
advisors_tv | |||
A lot | 7 (2.9%) | 1 (1.1%) | 6 (4.1%) |
Somewhat | 12 (5.0%) | 3 (3.2%) | 9 (6.1%) |
A little | 32 (13.2%) | 11 (11.7%) | 21 (14.2%) |
Not at all | 184 (76.0%) | 79 (84.0%) | 105 (70.9%) |
Missing | 7 (2.9%) | 0 (0%) | 7 (4.7%) |
trust_trial_explanation | |||
Yes/Agree | 224 (92.6%) | 90 (95.7%) | 134 (90.5%) |
No/Disagree | 11 (4.5%) | 2 (2.1%) | 9 (6.1%) |
I dont Know | 0 (0%) | 0 (0%) | 0 (0%) |
Missing | 7 (2.9%) | 2 (2.1%) | 5 (3.4%) |
trust_provider_questions | |||
Yes/Agree | 235 (97.1%) | 94 (100%) | 141 (95.3%) |
No/Disagree | 1 (0.4%) | 0 (0%) | 1 (0.7%) |
I dont Know | 0 (0%) | 0 (0%) | 0 (0%) |
Missing | 6 (2.5%) | 0 (0%) | 6 (4.1%) |
trust_harmful_research | |||
Yes/Agree | 196 (81.0%) | 82 (87.2%) | 114 (77.0%) |
No/Disagree | 27 (11.2%) | 8 (8.5%) | 19 (12.8%) |
I dont Know | 0 (0%) | 0 (0%) | 0 (0%) |
Missing | 19 (7.9%) | 4 (4.3%) | 15 (10.1%) |
trust_risk_protection | |||
Yes/Agree | 218 (90.1%) | 87 (92.6%) | 131 (88.5%) |
No/Disagree | 10 (4.1%) | 4 (4.3%) | 6 (4.1%) |
I dont Know | 0 (0%) | 0 (0%) | 0 (0%) |
Missing | 14 (5.8%) | 3 (3.2%) | 11 (7.4%) |
trust_medication | |||
Yes/Agree | 44 (18.2%) | 13 (13.8%) | 31 (20.9%) |
No/Disagree | 28 (11.6%) | 12 (12.8%) | 16 (10.8%) |
I dont Know | 0 (0%) | 0 (0%) | 0 (0%) |
Missing | 170 (70.2%) | 69 (73.4%) | 101 (68.2%) |
trust_guinea_pig | |||
Yes/Agree | 32 (13.2%) | 10 (10.6%) | 22 (14.9%) |
No/Disagree | 36 (14.9%) | 12 (12.8%) | 24 (16.2%) |
I dont Know | 0 (0%) | 0 (0%) | 0 (0%) |
Missing | 174 (71.9%) | 72 (76.6%) | 102 (68.9%) |
trust_med_freq | |||
Yes/Agree | 28 (11.6%) | 6 (6.4%) | 22 (14.9%) |
No/Disagree | 33 (13.6%) | 13 (13.8%) | 20 (13.5%) |
I dont Know | 0 (0%) | 0 (0%) | 0 (0%) |
Missing | 181 (74.8%) | 75 (79.8%) | 106 (71.6%) |
helpful_written_mats | |||
Extremely helpful | 154 (63.6%) | 68 (72.3%) | 86 (58.1%) |
Very helpful | 56 (23.1%) | 15 (16.0%) | 41 (27.7%) |
Somewhat helpful | 20 (8.3%) | 8 (8.5%) | 12 (8.1%) |
Slightly helpful | 1 (0.4%) | 0 (0%) | 1 (0.7%) |
Not at all helpful | 4 (1.7%) | 1 (1.1%) | 3 (2.0%) |
Missing | 7 (2.9%) | 2 (2.1%) | 5 (3.4%) |
helpful_videos | |||
Extremely helpful | 136 (56.2%) | 58 (61.7%) | 78 (52.7%) |
Very helpful | 68 (28.1%) | 17 (18.1%) | 51 (34.5%) |
Somewhat helpful | 27 (11.2%) | 15 (16.0%) | 12 (8.1%) |
Slightly helpful | 1 (0.4%) | 1 (1.1%) | 0 (0%) |
Not at all helpful | 3 (1.2%) | 1 (1.1%) | 2 (1.4%) |
Missing | 7 (2.9%) | 2 (2.1%) | 5 (3.4%) |
help_transport | |||
Extremely helpful | 97 (40.1%) | 39 (41.5%) | 58 (39.2%) |
Very helpful | 54 (22.3%) | 17 (18.1%) | 37 (25.0%) |
Somewhat helpful | 48 (19.8%) | 19 (20.2%) | 29 (19.6%) |
Slightly helpful | 7 (2.9%) | 5 (5.3%) | 2 (1.4%) |
Not at all helpful | 28 (11.6%) | 11 (11.7%) | 17 (11.5%) |
Missing | 8 (3.3%) | 3 (3.2%) | 5 (3.4%) |
help_insurance | |||
Extremely helpful | 169 (69.8%) | 67 (71.3%) | 102 (68.9%) |
Very helpful | 51 (21.1%) | 21 (22.3%) | 30 (20.3%) |
Somewhat helpful | 13 (5.4%) | 3 (3.2%) | 10 (6.8%) |
Slightly helpful | 1 (0.4%) | 1 (1.1%) | 0 (0%) |
Not at all helpful | 2 (0.8%) | 0 (0%) | 2 (1.4%) |
Missing | 6 (2.5%) | 2 (2.1%) | 4 (2.7%) |
help_housing | |||
Extremely helpful | 118 (48.8%) | 44 (46.8%) | 74 (50.0%) |
Very helpful | 42 (17.4%) | 14 (14.9%) | 28 (18.9%) |
Somewhat helpful | 34 (14.0%) | 16 (17.0%) | 18 (12.2%) |
Slightly helpful | 7 (2.9%) | 3 (3.2%) | 4 (2.7%) |
Not at all helpful | 30 (12.4%) | 13 (13.8%) | 17 (11.5%) |
Missing | 11 (4.5%) | 4 (4.3%) | 7 (4.7%) |
help_child_care | |||
Extremely helpful | 33 (13.6%) | 7 (7.4%) | 26 (17.6%) |
Very helpful | 13 (5.4%) | 4 (4.3%) | 9 (6.1%) |
Somewhat helpful | 14 (5.8%) | 8 (8.5%) | 6 (4.1%) |
Slightly helpful | 7 (2.9%) | 4 (4.3%) | 3 (2.0%) |
Not at all helpful | 149 (61.6%) | 61 (64.9%) | 88 (59.5%) |
Missing | 26 (10.7%) | 10 (10.6%) | 16 (10.8%) |
help_questions | |||
Extremely helpful | 141 (58.3%) | 57 (60.6%) | 84 (56.8%) |
Very helpful | 73 (30.2%) | 29 (30.9%) | 44 (29.7%) |
Somewhat helpful | 15 (6.2%) | 4 (4.3%) | 11 (7.4%) |
Slightly helpful | 0 (0%) | 0 (0%) | 0 (0%) |
Not at all helpful | 6 (2.5%) | 2 (2.1%) | 4 (2.7%) |
Missing | 7 (2.9%) | 2 (2.1%) | 5 (3.4%) |
help_language | |||
Extremely helpful | 125 (51.7%) | 48 (51.1%) | 77 (52.0%) |
Very helpful | 44 (18.2%) | 18 (19.1%) | 26 (17.6%) |
Somewhat helpful | 13 (5.4%) | 5 (5.3%) | 8 (5.4%) |
Slightly helpful | 5 (2.1%) | 3 (3.2%) | 2 (1.4%) |
Not at all helpful | 43 (17.8%) | 13 (13.8%) | 30 (20.3%) |
Missing | 12 (5.0%) | 7 (7.4%) | 5 (3.4%) |
help_flex_time | |||
Extremely helpful | 118 (48.8%) | 44 (46.8%) | 74 (50.0%) |
Very helpful | 72 (29.8%) | 28 (29.8%) | 44 (29.7%) |
Somewhat helpful | 37 (15.3%) | 18 (19.1%) | 19 (12.8%) |
Slightly helpful | 3 (1.2%) | 1 (1.1%) | 2 (1.4%) |
Not at all helpful | 4 (1.7%) | 1 (1.1%) | 3 (2.0%) |
Missing | 8 (3.3%) | 2 (2.1%) | 6 (4.1%) |
help_televisits | |||
Extremely helpful | 123 (50.8%) | 48 (51.1%) | 75 (50.7%) |
Very helpful | 70 (28.9%) | 25 (26.6%) | 45 (30.4%) |
Somewhat helpful | 31 (12.8%) | 14 (14.9%) | 17 (11.5%) |
Slightly helpful | 3 (1.2%) | 2 (2.1%) | 1 (0.7%) |
Not at all helpful | 7 (2.9%) | 2 (2.1%) | 5 (3.4%) |
Missing | 8 (3.3%) | 3 (3.2%) | 5 (3.4%) |
help_compensation | |||
Extremely helpful | 84 (34.7%) | 32 (34.0%) | 52 (35.1%) |
Very helpful | 45 (18.6%) | 20 (21.3%) | 25 (16.9%) |
Somewhat helpful | 44 (18.2%) | 14 (14.9%) | 30 (20.3%) |
Slightly helpful | 17 (7.0%) | 8 (8.5%) | 9 (6.1%) |
Not at all helpful | 44 (18.2%) | 17 (18.1%) | 27 (18.2%) |
Missing | 8 (3.3%) | 3 (3.2%) | 5 (3.4%) |