The Digital Research Platform (DRP) was designed by the Research Informatics Group at The University of Kansas Medical Center to make research more agile, efficient, collaborative, and secure, while providing higher quality data to researchers. Now it's easier to make scientific discoveries!
Research Informatics helps researchers turn data into knowledge. We enable research by providing intuitive tools for discovering and delivering data to researchers, help them to capture data from studies, empower them to perform research using electronic medical records and connect them to data at other institutions. Research Informatics provides support across the entire research lifecycle, from planning and grant development to research dissemination and data archiving.
Innovation: We work to bring cutting-edge informatics solutions to researchers that will help them compete for funding and successfully complete their research.
Diversity: We believe that our differences are strengths and value many perspectives.
Excellence: We take pride in delivering quality data.
Authenticity: We are unafraid to speak up if we believe patient privacy is at stake.
Leadership: We actively seek better ways of supporting research and protecting privacy and demonstrate these approaches to others.
HERON is an integrated clinical data repository with millions of electronic medical records (EMR) records of patient who agree to be contacted for research, socioeconomic data, death data, clinical notes and more. KUMC researchers can build a study cohort with the HERON software and request contact information for patients meeting the criteria for a study who have agreed to be contacted for research or request datasets for retrospective studies.
Green HERON is a highly protected health data analytic space where approved users can work with de-identified electronic medical records. It provides an important tool to work with external partners on research. The analytics space offers a rich set of tools, such as R, SAS, and Python, although others can be added on request.
REDCap (Research Electronic Data Capture) enables rapid project development and provides users with advanced functionality, complete autonomy and control of a project and direct exports to common statistical packages. REDCap surveys and databases are HIPAA compliant and include audit trails.
C3OD merges data from the electronic medical record, tumor registry, bio-specimen, and data registry, and allows querying through a single unified platform. By centralizing access and maintaining appropriate controls, C3OD allows researchers to obtain detailed information more rapidly about each patient in order to accelerate eligibility screening.
According to Children's Mercy Hospital, "GeoMarker is a HIPAA-compliant web application for geocoding addresses. GeoMarker can be used to get the point location (latitude and longitude) for a list of addresses (batch geocoding), aggregate census geographic identifiers, determine drive time to pediatric care centers, determine neighborhood indicators, and obtain composite Area Deprivation Index score for geocoded addresses".
As described by Cosmos by Epic, "Cosmos is a dataset created in collaboration with a community of health systems using Epic and is designed to improve patient care. By combining their data, participating organizations and Epic can make new discoveries and advance medicine. Cosmos also powers tools at the point of care, providing insights to clinicians that are tailored to the patient in front of them."
All Your Research in One Place - Easy to record, organize, analyze, and share experiments and all of your data is accessible wherever you are. This will Improve availability of your data with all your workflows, methods, and findings on one secure and accessible software platform.
Oracle Learning Health Network, a repository of data on a hundred million patients that's expanding worldwide through a network of diverse health systems for clinical trial recruitment,researcers can accelerate the discovery, development, and deployment of groundbreaking insights and therapies.
The National Center for Advancing Translational Science describes N3C as, "A single database format of patient information from more than 60 health care institutions across the country and make them available for researchers and clinicians. Inside the N3C Data Enclave researchers can study COVID-19 and potential treatments as the pandemic evolves."
Research Informatics provides project assistance and support with an hourly fee-for-service for all informatics services. Pricing is provided for each inquiry depending on the complexity and set of fixed time/cost requirements.
Research Informatics works with the Department of Biostatistics & Data Science to support and enhance research, service, and educational needs of the University of Kansas Medical Center and its affiliates.
Research Informatics has many resources to assist you with Data Management and Sharing Plans. For KUMC Faculty, Staff and Students please visit our internal sharepoint site here.
The Data Concierge can assist researchers in drafting data requests, gathering data request specifications, and facilitating communication between researchers and our IT and Informatics staff. If you don't know where to start, feel free to contact the Data Concierge first. We can connect you with the appropriate resources for your research or quality improvement project, regardless of the department responsible.
Research Informatics has many resources to assist you with Data Management and Sharing Plans. For KUMC Faculty, Staff and Students please visit our internal sharepoint site here.
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This Notice describes the privacy practices of the health care providers named below that participate in
the University of Kansas Health System Organized Health Care Arrangement. An “organized health care
arrangement” is (i) a clinically integrated setting in which individuals typically receive health care services from more than one health care provider, or (ii) an organized system of health care in which more thanone health care provider participates. To serve you better, we give you this Notice about our privacypractices and your privacy rights. The Health Insurance Portability and Accountability Act of 1996
(HIPAA) guarantees your privacy rights. Each provider will follow the terms of this Notice. This Notice
applies to our various sites of service. If you ask, we will give you a list of our sites that are subject to this
Notice.