SUCCESS

OCRIO

The biomedical informatics methods and tools we have developed allow our research collaborators and clients to store, integrate, query, analyze and visualize complex data sets. We work closely with The University of Kansas Health System in making clinical data available for research purposes.

You can choose your level of involvement, from self-service cohort identification or database creation to asking our experts to do it for you, or anywhere in between.

Access Requests & Provisioning

The first step is to ensure only the right individuals have access to the right resources, access request unifies governance, provisioning and compliance.

Documents and Forms

Second, complete the regulatory documents for the evaluation and tracking of ethical and procedural conduct of clinical research.

Login Credentials

Third, to use HERON or C3OD complete the required training by visiting the Citi Program Page once complete, see your status here.

  • HERON Login Credentials

    Check mark(s) missing in the upper right corner under "Login Credentials" indicate a missing requirement. The requirements to access HERON are as follows: You are a qualified KUMC faculty member or sponsored by a KUMC faculty member. You are up-to-date on your Human Subjects Training. You have signed the system access agreement.

    The HERON Data Use Agreement must be signed by all study team members before extracted data can be released. Our records show Citi Biomedical Research completed 2022-02-28 13:03:32 expires 2025-02-27 13:03:32. Search HERON to find the number of KUMC patients who meet inclusion/exclusion criteria Useful for grant applications and feasibility counts.

Learn

View tutorials, lessons, manuals, or attend lunch and learns.

Electronic Medical Record Use

View the policy for accessing research data and patient contact information.

Integrating Redcap Projects

Understand how REDCap can be used to enrich your HERON Projects

RESOURCES & TOOLS


Analytics

Charts
Year Income
OMOP 400k
LHN 600k
N3C 700k
COSMOS 900k
GH 1m
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These free-text notes include physician and nursing notes, radiology, and pathology reports. Prior to bringing in a note type, the notes are de-identified. There are two steps in our de-identification framework: notes de-identification and notes adjudication. The notes de-identification step removes all identifiable information such as names of patients, locations, identification numbers, dates, and age above 90 in order to meet HIPAA Safe Harbor criteria. During notes adjudication, notes are audited to ensure PHI removal and the note de-identification performance was evaluated before releasing.
We offer Natural Language Processing (NLP) support for information extraction from the free-text clinical notes on a project basis (funding required). Please contact misupport@kumc.edu for inquiry.

HERON

REDCap

C3OD

Services

Research Informatics helps researchers turn data into knowledge. We enable research by providing intuitive tools for discovering and delivering data to researchers, help them to capture data from studies, empower them to perform research using electronic medical records and connect them to data at other institutions. Research Informatics provides support across the entire research lifecycle, from planning and grant development to research dissemination and data archiving.
— Office of the OCRIO

ADVANCED ANALYTICS

Big Data and Visualization

Our mission is to improve people's health by helping researchers convert data to knowledge while protecting privacy.

Innovation: We work to bring cutting-edge informatics solutions to researchers that will help them compete for funding and successfully complete their research.

Diversity: We believe that our differences are strengths and value many perspectives.

Excellence: We take pride in delivering quality data.

Authenticity: We are unafraid to speak up if we believe patient privacy is at stake.

Leadership: We actively seek better ways of supporting research and protecting privacy and demonstrate these approaches to others.

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© 2023 The University of Kansas prohibits discrimination on the basis of race, color, ethnicity, religion, sex, national origin, age, ancestry, disability, status as a veteran, sexual orientation, marital status, parental status, gender identity, gender expression, and genetic information in the university's programs and activities. Retaliation is also prohibited by university policy. Inquiries regarding our non-discrimination policies should be directed to the Associate Vice Chancellor for the Office of Civil Rights and Title IX, civilrights@ku.edu, Room 1082, Dole Human Development Center, 1000 Sunnyside Avenue, Lawrence, KS 66045, 785-864-6414, 711 TTY.

This Notice describes the privacy practices of the health care providers named below that participate in the University of Kansas Health System Organized Health Care Arrangement. An “organized health care arrangement” is (i) a clinically integrated setting in which individuals typically receive health care services from more than one health care provider, or (ii) an organized system of health care in which more thanone health care provider participates. To serve you better, we give you this Notice about our privacypractices and your privacy rights. The Health Insurance Portability and Accountability Act of 1996 (HIPAA) guarantees your privacy rights. Each provider will follow the terms of this Notice. This Notice applies to our various sites of service. If you ask, we will give you a list of our sites that are subject to this Notice.