Chronic Pain Study Codebook

Survey Variable Name Question
Demographic Data surveyID Participant ID
Demographic Data date.finish Survey Timestamp
Demographic Data ID Study ID
Demographic Data visit Visit number
Demographic Data date.start Date and time
Demographic Data age What is your current age, in years?
Demographic Data sex What is your sex?
Demographic Data ethnicity What is your ethnicity?
Demographic Data race What is your race?
Demographic Data ed What is the highest grade you completed?
Demographic Data empoy Please check the one item that best describes your current employment status.
Demographic Data salary What is the total annual income of your household?
Demographic Data married What is your current partnership status?
Demographic Data house.size Including yourself, how many people live in your house?
Demographic Data tx What is your pain diagnosis?
Demographic Data sx.length For how long have you experienced pain symptoms?
Demographic Data tx.length For how many years have you been treated for your pain?
SF36 SF_36.1 1. In general, would you say your health is:
SF36 SF_36.2 2. Compared to one year ago, how would you rate your health in general now?
SF36 SF_36.3 a. Vigorous activities, such as running, lifting heavy objects, participating in strenuous sports
SF36 SF_36.4 b. Moderate activities, such as moving a table, pushing a vacuum cleaner, bowling, or playing golf
SF36 SF_36.5 c. Lifting or carrying groceries
SF36 SF_36.6 d. Climbing several flights of stairs
SF36 SF_36.7 e. Climbing one flight of stairs
SF36 SF_36.8 f. Bending, kneeling, or stooping
SF36 SF_36.9 g. Walking more than a mile
SF36 SF_36.10 h. Walking several hundred yards
SF36 SF_36.11 i. Walking one hundred yards
SF36 SF_36.12 J. Bathing or dressing yourself
SF36 SF_36.13 a. Cut down on the amount of time you spent on work or other activities
SF36 SF_36.14 b. Accomplished less than you would like
SF36 SF_36.15 c. Were limited in the kind of work or other activities
SF36 SF_36.16 d. Had difficulty performing the work or other activities (for example, it took extra effort)
SF36 SF_36.17 a. Cut down on the amount of time you spent on work or other activities
SF36 SF_36.18 b. Accomplished less than you would like
SF36 SF_36.19 c. Did work or other activities less carefully than usual
SF36 SF_36.20 6. During the past 4 weeks, to what extent has your physical health or emotional problems interfered with your normal social activities with family, friends, neighbors, or groups?
SF36 SF_36.21 7. How much bodily pain have you had during the past 4 weeks?
SF36 SF_36.22 8. During the past 4 weeks, how much did pain interfere with your normal work (including both work outside the home and housework)?
SF36 SF_36.23 a. Did you feel full of life?
SF36 SF_36.24 b. Have you been very nervous?
SF36 SF_36.25 c. Have you felt so down in the dumps that nothing could cheer you up?
SF36 SF_36.26 d. Have you felt calm and peaceful?
SF36 SF_36.27 e. Did you have a lot of energy?
SF36 SF_36.28 f. Have you felt downhearted and depressed?
SF36 SF_36.29 g. Did you feel worn out?
SF36 SF_36.30 h. Have you been happy?
SF36 SF_36.31 i. Did you feel tired?
SF36 SF_36.32 10. During the past 4 weeks, how much of the time has your physical health or emotional problems interfered with your social activities (like visiting with friends, relatives, etc.)?
SF36 SF_36.33 a. I seem to get sick a little easier than other people
SF36 SF_36.34 b. I am as healthy as anybody I know
SF36 SF_36.35 c. I expect my health to get worse
SF36 SF_36.36 d. My health is excellent
SF-MPQ MPQ.1 Throbbing pain
SF-MPQ MPQ.2 Shooting pain
SF-MPQ MPQ.3 Stabbing Pain
SF-MPQ MPQ.4 Sharp pain
SF-MPQ MPQ.5 Gnawing pain
SF-MPQ MPQ.6 Cramping pain
SF-MPQ MPQ.7 Hot-burning pain
SF-MPQ MPQ.8 Aching pain
SF-MPQ MPQ.9 Heavy pain
SF-MPQ MPQ.10 Tender
SF-MPQ MPQ.11 Splitting pain
SF-MPQ MPQ.12 Tiring-exhausting
SF-MPQ MPQ.13 Sickening
SF-MPQ MPQ.14 Fearful
SF-MPQ MPQ.15 Punishing-cruel
SF-MPQ MPQ.16 Electric-shock pain
SF-MPQ MPQ.17 Cold-freezing pain
SF-MPQ MPQ.18 Piercing
SF-MPQ MPQ.19 Pain caused by light touch
SF-MPQ MPQ.20 Itching
SF-MPQ MPQ.21 Tingling or ‘pins and needles’
SF-MPQ MPQ.22 Numbness
ACE: See Violence ACE.1.1 Before you were 18, did you witness any violence between your parents, guardians or caretakers? For example, screaming, swearing, hitting, beating, kicking, biting, slapping, or shoving; or using a knife, gun or other object to harm the other person?
ACE: See Violence ACE.1.2 How severe was this parental violence?
ACE: See Violence ACE.1.3 How frequently did this violence occur?
ACE: See Violence ACE.1.4 At approximately what age do you first remember witnessing this violence?
ACE: See Violence ACE.1.5 Looking back now, how much of an impact did witnessing this violence have on you before you were 18?
ACE: See Violence ACE.1.6 How would you describe the impact of witnessing this violence on your life before you were 18?
ACE: See Violence ACE.1.7 How much of an impact does witnessing this violence continue to have on your life now?
ACE: See Violence ACE.1.8 How would you describe the impact of witnessing this violence on your life now?
ACE: Physically Harmed ACE.2.1 Before you were 18, were you physically harmed by a parent, guardian or caregiver? For example, were you severely spanked, pushed, grabbed, shoved, slapped, had something thrown at you, or hit so hard that you had marks or injuries?
ACE: Physically Harmed ACE.2.2 How severe was the physical harm?
ACE: Physically Harmed ACE.2.3 How frequently did this physical harm occur?
ACE: Physically Harmed ACE.2.4 At approximately what age do you first remember experiencing this physical harm?
ACE: Physically Harmed ACE.2.5 Looking back now, how much of an impact did this physical harm have on you before you were 18?
ACE: Physically Harmed ACE.2.6 How would you describe the impact of this physical harm on your life before you were 18?
ACE: Physically Harmed ACE.2.7 How much of an impact does this physical harm continue to have on your life now?
ACE: Physically Harmed ACE.2.8 How would you describe the impact of this physical harm on your life now?
ACE: Sexual Abuse ACE.3.1 Before you were 18, did you have any unwanted sexual experiences? For example, did anyone touch you in a sexual way, or make you touch them; or make you do sexual things or watch sexual things; or actually have oral, anal, or vaginal intercourse with you when you did not want to?
ACE: Sexual Abuse ACE.3.2 How severe were these unwanted sexual experience(s)?
ACE: Sexual Abuse ACE.3.3 How frequently did these unwanted sexual experience(s) occur?
ACE: Sexual Abuse ACE.3.4 At approximately what age do you first remember having unwanted sexual experience(s)?
ACE: Sexual Abuse ACE.3.5 Looking back now, how much of an impact did these unwanted sexual experience(s) have on you while you were growing up?
ACE: Sexual Abuse ACE.3.6 How would you describe the impact of these unwanted sexual experience(s) have on your life while you were growing up?
ACE: Sexual Abuse ACE.3.7 How much of an impact do these unwanted sexual experience(s) continue to have on your life now?
ACE: Sexual Abuse ACE.3.8 How would you describe the impact of these unwanted sexual experience(s) on your life now?
ACE: Verbal/Psychlogical Abuse ACE.4.1 Before you were 18, did you experience any emotional/psychological mistreatment? For example did your parents or guardians swear at you, insult you or put you down, ridicule you, terrorize you (lock you in a closet), deny you food or water, or make you feel ashamed or guilty?
ACE: Verbal/Psychlogical Abuse ACE.4.2 How severe was the emotional/psychological mistreatment?
ACE: Verbal/Psychlogical Abuse ACE.4.3 How frequently did the emotional/psychological mistreatment occur?
ACE: Verbal/Psychlogical Abuse ACE.4.4 At approximately what age do you first remember experiencing emotional/psychological mistreatment?
ACE: Verbal/Psychlogical Abuse ACE.4.5 Looking back now, how much of an impact did this emotional/psychological mistreatment have on you before you were 18?
ACE: Verbal/Psychlogical Abuse ACE.4.6 How would you describe the impact of this emotional/psychological mistreatment on your life before you were 18?
ACE: Verbal/Psychlogical Abuse ACE.4.7 How much of an impact does this emotional/psychological mistreatment continue to have on your life now?
ACE: Verbal/Psychlogical Abuse ACE.4.8 How would you describe the impact of this emotional/psychological mistreatment on your life now?
ACE: Emotional Neglect ACE.5.1 Before you were 18, were you emotionally neglected? For example, did you parents, caregivers or guardians treat you as if they did not care about you, forgot about you or left you alone for long periods of time?
ACE: Emotional Neglect ACE.5.2 How severe was the emotional neglect?
ACE: Emotional Neglect ACE.5.3 How frequently did the emotional neglect occur?
ACE: Emotional Neglect ACE.5.4 At approximately what age do you first remember experiencing this emotional neglect?
ACE: Emotional Neglect ACE.5.5 Looking back now, how much of an impact did this emotional neglect have on you before you were 18?
ACE: Emotional Neglect ACE.5.6 How would you describe the impact of this emotional neglect on your life before you were 18?
ACE: Emotional Neglect ACE.5.7 How much of an impact does this emotional neglect continue to have on your life now?
ACE: Emotional Neglect ACE.5.8 How would you describe the impact of this emotional neglect on your life now?
ACE: Physical Neglect ACE.6.1 Before you were 18, were you physically neglected? For example, did you parents, caregivers or guardians fail to provide you with basic needs like food, water, adequate clothing or shelter?
ACE: Physical Neglect ACE.6.2 How severe was the physical neglect?
ACE: Physical Neglect ACE.6.3 How frequently did the physical neglect occur?
ACE: Physical Neglect ACE.6.4 At approximately what age do you first remember experiencing this physical neglect?
ACE: Physical Neglect ACE.6.5 Looking back now, how much of an impact did this physical neglect have on you before you were 18?
ACE: Physical Neglect ACE.6.6 How would you describe the impact of this physical neglect on your life before you were 18?
ACE: Physical Neglect ACE.6.7 How much of an impact does this physical neglect continue to have on your life now?
ACE: Physical Neglect ACE.6.8 How would you describe the impact of this physical neglect on your life now?
CSQ CSQ.1 When I feel pain I try to feel distant from the pain, almost as if the pain was in somebody else’s body.
CSQ CSQ.2 When I feel pain I try to think of something pleasant.
CSQ CSQ.3 When I feel pain it’s terrible and I feel it’s never going to get any better.
CSQ CSQ.4 When I feel pain I tell myself to be brave and carry on despite the pain.
CSQ CSQ.5 When I feel pain I tell myself that I can overcome the pain.
CSQ CSQ.6 When I feel pain it’s awful and I feel that it overwhelms me.
CSQ CSQ.7 When I feel pain I feel my life isn’t worth living.
CSQ CSQ.8 When I feel pain I pray to God it won’t last long.
CSQ CSQ.9 When I feel pain I try not to think of it as my body, but rather as something separate from me.
CSQ CSQ.10 When I feel pain I don’t think about the pain.
CSQ CSQ.11 When I feel pain I tell myself I can’t let the pain stand in the way of what I have to do.
CSQ CSQ.12 When I feel pain I don’t pay any attention to it.
CSQ CSQ.13 When I feel pain I pretend it’s not there.
CSQ CSQ.14 When I feel pain I worry all the time about whether it will end.
CSQ CSQ.15 When I feel pain I replay in my mind pleasant experiences in the past.
CSQ CSQ.16 When I feel pain I think of people I enjoy doing things with.
CSQ CSQ.17 When I feel pain I pray for the pain to stop.
CSQ CSQ.18 When I feel pain I imagine that the pain is outside of my body.
CSQ CSQ.19 When I feel pain I just go on as if nothing happened.
CSQ CSQ.20 When I feel pain although it hurts, I just keep going.
CSQ CSQ.21 When I feel pain I feel I can’t stand it anymore.
CSQ CSQ.22 When I feel pain I ignore it.
CSQ CSQ.23 When I feel pain I rely on my faith in God.
CSQ CSQ.24 When I feel pain I feel like I can’t go on.
CSQ CSQ.25 When I feel pain I think of things I enjoy doing.
CSQ CSQ.26 When I feel pain I do something I enjoy, such as watching TV or listening to music.
CSQ CSQ.27 When I feel pain I pretend it’s not a part of me.
HSCL10 HSCL.1 Suddenly scared for no reason
HSCL10 HSCL.2 Feeling fearful
HSCL10 HSCL.3 Faintness, dizziness or weakness
HSCL10 HSCL.4 Nervousness or shakiness inside
HSCL10 HSCL.5 Heart pounding hard or racing
HSCL10 HSCL.6 Trembling
HSCL10 HSCL.7 Feeling tense or keyed up
HSCL10 HSCL.8 Headaches
HSCL10 HSCL.9 Spells of terror or panic
HSCL10 HSCL.10 Feeling restless, can’t sit still
BPI BPI.1 Throughout our lives, most of us had pain from time to time (such as minor headaches, sprains, and toothaches). Have you had pain other than these everyday kinds of pain today?
BPI BPI.2 On the diagram above, select the areas where you feel pain. Check all that apply. (choice=A)
BPI BPI.3 On the diagram above, select the areas where you feel pain. Check all that apply. (choice=B)
BPI BPI.4 On the diagram above, select the areas where you feel pain. Check all that apply. (choice=C)
BPI BPI.5 On the diagram above, select the areas where you feel pain. Check all that apply. (choice=D)
BPI BPI.6 On the diagram above, select the areas where you feel pain. Check all that apply. (choice=E)
BPI BPI.7 On the diagram above, select the areas where you feel pain. Check all that apply. (choice=F)
BPI BPI.8 On the diagram above, select the areas where you feel pain. Check all that apply. (choice=G)
BPI BPI.9 On the diagram above, select the areas where you feel pain. Check all that apply. (choice=H)
BPI BPI.10 On the diagram above, select the areas where you feel pain. Check all that apply. (choice=I)
BPI BPI.11 On the diagram above, select the areas where you feel pain. Check all that apply. (choice=J)
BPI BPI.12 On the diagram above, select the areas where you feel pain. Check all that apply. (choice=K)
BPI BPI.13 On the diagram above, select the areas where you feel pain. Check all that apply. (choice=L)
BPI BPI.14 From the same diagram above, select the area that hurts the most.
BPI BPI.15 Please rate your pain by indicating the number that best describes your pain at its WORST in the last 24 hours.
BPI BPI.16 Please rate your pain by indicating the one number that best describes your pain at its LEAST in the last 24 hours.
BPI BPI.17 Please rate your pain by indicating the one number that best describes your pain on the AVERAGE.
BPI BPI.18 Please rate your pain by indicating the one number that tells how much pain you have RIGHT NOW.
BPI BPI.19 What treatments or medications are you receiving for your pain?
BPI BPI.20 In the last 24 hours, how much relief have pain treatments or medications provided? Please indicated the one percentage that most shows how much RELIEF you have received.
BPI BPI.21 A. General Activity
BPI BPI.22 B. Mood
BPI BPI.23 C. Walking Ability
BPI BPI.24 D. Normal Work (includes both work outside the home and housework)
BPI BPI.25 E. Relations with other people
BPI BPI.26 F. Sleep
BPI BPI.27 G. Enjoyment of life
Complete Complete?