Total
(N=122)
MDACC
(N=100)
Harris health
(N=22)
knowledge_trial
Not well at all 6 (4.9%) 4 (4.0%) 2 (9.1%)
Not very well 70 (57.4%) 55 (55.0%) 15 (68.2%)
Very well 39 (32.0%) 36 (36.0%) 3 (13.6%)
Missing 7 (5.7%) 5 (5.0%) 2 (9.1%)
trial_discussed
Yes 55 (45.1%) 48 (48.0%) 7 (31.8%)
No 64 (52.5%) 49 (49.0%) 15 (68.2%)
Missing 3 (2.5%) 3 (3.0%) 0 (0%)
trial_participation
Yes 26 (21.3%) 24 (24.0%) 2 (9.1%)
No 94 (77.0%) 75 (75.0%) 19 (86.4%)
Missing 2 (1.6%) 1 (1.0%) 1 (4.5%)
trial_experience
Very negative 0 (0%) 0 (0%) 0 (0%)
Somewhat negative 0 (0%) 0 (0%) 0 (0%)
neutral 4 (3.3%) 4 (4.0%) 0 (0%)
Somewhat positive 2 (1.6%) 2 (2.0%) 0 (0%)
very positive 19 (15.6%) 17 (17.0%) 2 (9.1%)
Missing 97 (79.5%) 77 (77.0%) 20 (90.9%)
trial_importance
Note at all important 0 (0%) 0 (0%) 0 (0%)
Not very important 0 (0%) 0 (0%) 0 (0%)
Somewhat important 13 (10.7%) 10 (10.0%) 3 (13.6%)
Very important 107 (87.7%) 88 (88.0%) 19 (86.4%)
Missing 2 (1.6%) 2 (2.0%) 0 (0%)
trial_safety
Not at all safe 0 (0%) 0 (0%) 0 (0%)
Not very safe 4 (3.3%) 2 (2.0%) 2 (9.1%)
Somewhat safe 70 (57.4%) 58 (58.0%) 12 (54.5%)
Very safe 43 (35.2%) 36 (36.0%) 7 (31.8%)
Missing 5 (4.1%) 4 (4.0%) 1 (4.5%)
trial_as_trt_option
Not at all often 21 (17.2%) 16 (16.0%) 5 (22.7%)
Not very often 31 (25.4%) 23 (23.0%) 8 (36.4%)
Somewhat often 37 (30.3%) 31 (31.0%) 6 (27.3%)
very often 27 (22.1%) 26 (26.0%) 1 (4.5%)
Missing 6 (4.9%) 4 (4.0%) 2 (9.1%)
trial_care
Mean (SD) 2.34 (0.531) 2.36 (0.526) 2.26 (0.562)
Median [Min, Max] 2.00 [1.00, 3.00] 2.00 [1.00, 3.00] 2.00 [1.00, 3.00]
Missing 11 (9.0%) 8 (8.0%) 3 (13.6%)
willing_first_trt
very willing 45 (36.9%) 37 (37.0%) 8 (36.4%)
somewhat willing 51 (41.8%) 40 (40.0%) 11 (50.0%)
not very willing 14 (11.5%) 11 (11.0%) 3 (13.6%)
not at all willing 8 (6.6%) 8 (8.0%) 0 (0%)
Missing 4 (3.3%) 4 (4.0%) 0 (0%)
willing_addition_to_soc
very willing 53 (43.4%) 46 (46.0%) 7 (31.8%)
somewhat willing 51 (41.8%) 38 (38.0%) 13 (59.1%)
not very willing 9 (7.4%) 8 (8.0%) 1 (4.5%)
not at all willing 4 (3.3%) 3 (3.0%) 1 (4.5%)
Missing 5 (4.1%) 5 (5.0%) 0 (0%)
willing_ineffective_soc
very willing 61 (50.0%) 50 (50.0%) 11 (50.0%)
somewhat willing 28 (23.0%) 26 (26.0%) 2 (9.1%)
not very willing 17 (13.9%) 12 (12.0%) 5 (22.7%)
not at all willing 8 (6.6%) 5 (5.0%) 3 (13.6%)
Missing 8 (6.6%) 7 (7.0%) 1 (4.5%)
willing_failed_soc
very willing 68 (55.7%) 60 (60.0%) 8 (36.4%)
somewhat willing 30 (24.6%) 23 (23.0%) 7 (31.8%)
not very willing 12 (9.8%) 9 (9.0%) 3 (13.6%)
not at all willing 5 (4.1%) 1 (1.0%) 4 (18.2%)
Missing 7 (5.7%) 7 (7.0%) 0 (0%)
willing_no_soc
very willing 75 (61.5%) 64 (64.0%) 11 (50.0%)
somewhat willing 32 (26.2%) 25 (25.0%) 7 (31.8%)
not very willing 6 (4.9%) 3 (3.0%) 3 (13.6%)
not at all willing 2 (1.6%) 1 (1.0%) 1 (4.5%)
Missing 7 (5.7%) 7 (7.0%) 0 (0%)
importance_trt_ease
Very important 66 (54.1%) 51 (51.0%) 15 (68.2%)
Somewhat important 32 (26.2%) 26 (26.0%) 6 (27.3%)
Not very important 9 (7.4%) 9 (9.0%) 0 (0%)
Note at all important 7 (5.7%) 7 (7.0%) 0 (0%)
Missing 8 (6.6%) 7 (7.0%) 1 (4.5%)
importance_side_effects
Very important 73 (59.8%) 57 (57.0%) 16 (72.7%)
Somewhat important 31 (25.4%) 26 (26.0%) 5 (22.7%)
Not very important 7 (5.7%) 7 (7.0%) 0 (0%)
Note at all important 3 (2.5%) 3 (3.0%) 0 (0%)
Missing 8 (6.6%) 7 (7.0%) 1 (4.5%)
importance_pain
Very important 63 (51.6%) 46 (46.0%) 17 (77.3%)
Somewhat important 37 (30.3%) 33 (33.0%) 4 (18.2%)
Not very important 9 (7.4%) 9 (9.0%) 0 (0%)
Note at all important 4 (3.3%) 4 (4.0%) 0 (0%)
Missing 9 (7.4%) 8 (8.0%) 1 (4.5%)
importance_qol
Very important 98 (80.3%) 78 (78.0%) 20 (90.9%)
Somewhat important 14 (11.5%) 14 (14.0%) 0 (0%)
Not very important 1 (0.8%) 0 (0%) 1 (4.5%)
Note at all important 2 (1.6%) 2 (2.0%) 0 (0%)
Missing 7 (5.7%) 6 (6.0%) 1 (4.5%)
importance_irb
Very important 93 (76.2%) 74 (74.0%) 19 (86.4%)
Somewhat important 15 (12.3%) 13 (13.0%) 2 (9.1%)
Not very important 5 (4.1%) 5 (5.0%) 0 (0%)
Note at all important 2 (1.6%) 2 (2.0%) 0 (0%)
Missing 7 (5.7%) 6 (6.0%) 1 (4.5%)
importance_leaving_study
Very important 80 (65.6%) 65 (65.0%) 15 (68.2%)
Somewhat important 20 (16.4%) 16 (16.0%) 4 (18.2%)
Not very important 9 (7.4%) 8 (8.0%) 1 (4.5%)
Note at all important 4 (3.3%) 3 (3.0%) 1 (4.5%)
Missing 9 (7.4%) 8 (8.0%) 1 (4.5%)
concern_cost
my biggest concerns 47 (38.5%) 32 (32.0%) 15 (68.2%)
a major concern 40 (32.8%) 36 (36.0%) 4 (18.2%)
somewhat concerned 22 (18.0%) 21 (21.0%) 1 (4.5%)
Would not influence my decision 10 (8.2%) 9 (9.0%) 1 (4.5%)
Missing 3 (2.5%) 2 (2.0%) 1 (4.5%)
concern_visit_freq
my biggest concerns 34 (27.9%) 26 (26.0%) 8 (36.4%)
a major concern 36 (29.5%) 29 (29.0%) 7 (31.8%)
somewhat concerned 28 (23.0%) 25 (25.0%) 3 (13.6%)
Would not influence my decision 20 (16.4%) 17 (17.0%) 3 (13.6%)
Missing 4 (3.3%) 3 (3.0%) 1 (4.5%)
concern_testing_freq
my biggest concerns 29 (23.8%) 23 (23.0%) 6 (27.3%)
a major concern 37 (30.3%) 27 (27.0%) 10 (45.5%)
somewhat concerned 31 (25.4%) 28 (28.0%) 3 (13.6%)
Would not influence my decision 21 (17.2%) 19 (19.0%) 2 (9.1%)
Missing 4 (3.3%) 3 (3.0%) 1 (4.5%)
concern_test_type
my biggest concerns 24 (19.7%) 19 (19.0%) 5 (22.7%)
a major concern 27 (22.1%) 21 (21.0%) 6 (27.3%)
somewhat concerned 39 (32.0%) 33 (33.0%) 6 (27.3%)
Would not influence my decision 28 (23.0%) 24 (24.0%) 4 (18.2%)
Missing 4 (3.3%) 3 (3.0%) 1 (4.5%)
concern_distance
my biggest concerns 42 (34.4%) 33 (33.0%) 9 (40.9%)
a major concern 29 (23.8%) 24 (24.0%) 5 (22.7%)
somewhat concerned 24 (19.7%) 19 (19.0%) 5 (22.7%)
Would not influence my decision 23 (18.9%) 21 (21.0%) 2 (9.1%)
Missing 4 (3.3%) 3 (3.0%) 1 (4.5%)
concern_family_care
my biggest concerns 12 (9.8%) 9 (9.0%) 3 (13.6%)
a major concern 11 (9.0%) 9 (9.0%) 2 (9.1%)
somewhat concerned 16 (13.1%) 12 (12.0%) 4 (18.2%)
Would not influence my decision 76 (62.3%) 64 (64.0%) 12 (54.5%)
Missing 7 (5.7%) 6 (6.0%) 1 (4.5%)
concern_placebo
my biggest concerns 28 (23.0%) 21 (21.0%) 7 (31.8%)
a major concern 29 (23.8%) 23 (23.0%) 6 (27.3%)
somewhat concerned 38 (31.1%) 34 (34.0%) 4 (18.2%)
Would not influence my decision 18 (14.8%) 15 (15.0%) 3 (13.6%)
Missing 9 (7.4%) 7 (7.0%) 2 (9.1%)
concern_study_complexity
my biggest concerns 29 (23.8%) 23 (23.0%) 6 (27.3%)
a major concern 31 (25.4%) 25 (25.0%) 6 (27.3%)
somewhat concerned 33 (27.0%) 25 (25.0%) 8 (36.4%)
Would not influence my decision 22 (18.0%) 21 (21.0%) 1 (4.5%)
Missing 7 (5.7%) 6 (6.0%) 1 (4.5%)
concern_work
my biggest concerns 27 (22.1%) 21 (21.0%) 6 (27.3%)
a major concern 20 (16.4%) 16 (16.0%) 4 (18.2%)
somewhat concerned 24 (19.7%) 19 (19.0%) 5 (22.7%)
Would not influence my decision 46 (37.7%) 40 (40.0%) 6 (27.3%)
Missing 5 (4.1%) 4 (4.0%) 1 (4.5%)
concern_team_contact
my biggest concerns 33 (27.0%) 23 (23.0%) 10 (45.5%)
a major concern 38 (31.1%) 33 (33.0%) 5 (22.7%)
somewhat concerned 28 (23.0%) 25 (25.0%) 3 (13.6%)
Would not influence my decision 16 (13.1%) 13 (13.0%) 3 (13.6%)
Missing 7 (5.7%) 6 (6.0%) 1 (4.5%)
advisors_doctor
A lot 104 (85.2%) 84 (84.0%) 20 (90.9%)
Somewhat 7 (5.7%) 7 (7.0%) 0 (0%)
A little 1 (0.8%) 1 (1.0%) 0 (0%)
Not at all 5 (4.1%) 5 (5.0%) 0 (0%)
Missing 5 (4.1%) 3 (3.0%) 2 (9.1%)
advisors_family_friends
A lot 30 (24.6%) 21 (21.0%) 9 (40.9%)
Somewhat 47 (38.5%) 41 (41.0%) 6 (27.3%)
A little 21 (17.2%) 20 (20.0%) 1 (4.5%)
Not at all 16 (13.1%) 12 (12.0%) 4 (18.2%)
Missing 8 (6.6%) 6 (6.0%) 2 (9.1%)
advisors_trial_pts
A lot 45 (36.9%) 34 (34.0%) 11 (50.0%)
Somewhat 42 (34.4%) 37 (37.0%) 5 (22.7%)
A little 17 (13.9%) 13 (13.0%) 4 (18.2%)
Not at all 12 (9.8%) 12 (12.0%) 0 (0%)
Missing 6 (4.9%) 4 (4.0%) 2 (9.1%)
advisors_religious_leader
A lot 10 (8.2%) 8 (8.0%) 2 (9.1%)
Somewhat 26 (21.3%) 20 (20.0%) 6 (27.3%)
A little 25 (20.5%) 22 (22.0%) 3 (13.6%)
Not at all 55 (45.1%) 46 (46.0%) 9 (40.9%)
Missing 6 (4.9%) 4 (4.0%) 2 (9.1%)
advisors_tv
A lot 4 (3.3%) 3 (3.0%) 1 (4.5%)
Somewhat 7 (5.7%) 6 (6.0%) 1 (4.5%)
A little 24 (19.7%) 18 (18.0%) 6 (27.3%)
Not at all 79 (64.8%) 67 (67.0%) 12 (54.5%)
Missing 8 (6.6%) 6 (6.0%) 2 (9.1%)
trust_trial_explanation
Yes/Agree 107 (87.7%) 90 (90.0%) 17 (77.3%)
No/Disagree 12 (9.8%) 8 (8.0%) 4 (18.2%)
I dont Know 0 (0%) 0 (0%) 0 (0%)
Missing 3 (2.5%) 2 (2.0%) 1 (4.5%)
trust_provider_questions
Yes/Agree 119 (97.5%) 98 (98.0%) 21 (95.5%)
No/Disagree 0 (0%) 0 (0%) 0 (0%)
I dont Know 0 (0%) 0 (0%) 0 (0%)
Missing 3 (2.5%) 2 (2.0%) 1 (4.5%)
trust_harmful_research
Yes/Agree 84 (68.9%) 72 (72.0%) 12 (54.5%)
No/Disagree 20 (16.4%) 15 (15.0%) 5 (22.7%)
I dont Know 0 (0%) 0 (0%) 0 (0%)
Missing 18 (14.8%) 13 (13.0%) 5 (22.7%)
trust_risk_protection
Yes/Agree 106 (86.9%) 88 (88.0%) 18 (81.8%)
No/Disagree 8 (6.6%) 5 (5.0%) 3 (13.6%)
I dont Know 0 (0%) 0 (0%) 0 (0%)
Missing 8 (6.6%) 7 (7.0%) 1 (4.5%)
trust_medication
Yes/Agree 36 (29.5%) 29 (29.0%) 7 (31.8%)
No/Disagree 17 (13.9%) 14 (14.0%) 3 (13.6%)
I dont Know 0 (0%) 0 (0%) 0 (0%)
Missing 69 (56.6%) 57 (57.0%) 12 (54.5%)
trust_guinea_pig
Yes/Agree 27 (22.1%) 23 (23.0%) 4 (18.2%)
No/Disagree 27 (22.1%) 21 (21.0%) 6 (27.3%)
I dont Know 0 (0%) 0 (0%) 0 (0%)
Missing 68 (55.7%) 56 (56.0%) 12 (54.5%)
trust_med_freq
Yes/Agree 26 (21.3%) 21 (21.0%) 5 (22.7%)
No/Disagree 21 (17.2%) 17 (17.0%) 4 (18.2%)
I dont Know 0 (0%) 0 (0%) 0 (0%)
Missing 75 (61.5%) 62 (62.0%) 13 (59.1%)
helpful_written_mats
Extremely helpful 81 (66.4%) 63 (63.0%) 18 (81.8%)
Very helpful 24 (19.7%) 23 (23.0%) 1 (4.5%)
Somewhat helpful 7 (5.7%) 6 (6.0%) 1 (4.5%)
Slightly helpful 1 (0.8%) 1 (1.0%) 0 (0%)
Not at all helpful 2 (1.6%) 2 (2.0%) 0 (0%)
Missing 7 (5.7%) 5 (5.0%) 2 (9.1%)
helpful_videos
Extremely helpful 74 (60.7%) 59 (59.0%) 15 (68.2%)
Very helpful 36 (29.5%) 32 (32.0%) 4 (18.2%)
Somewhat helpful 4 (3.3%) 4 (4.0%) 0 (0%)
Slightly helpful 0 (0%) 0 (0%) 0 (0%)
Not at all helpful 1 (0.8%) 1 (1.0%) 0 (0%)
Missing 7 (5.7%) 4 (4.0%) 3 (13.6%)
help_transport
Extremely helpful 55 (45.1%) 43 (43.0%) 12 (54.5%)
Very helpful 25 (20.5%) 21 (21.0%) 4 (18.2%)
Somewhat helpful 23 (18.9%) 18 (18.0%) 5 (22.7%)
Slightly helpful 4 (3.3%) 4 (4.0%) 0 (0%)
Not at all helpful 10 (8.2%) 9 (9.0%) 1 (4.5%)
Missing 5 (4.1%) 5 (5.0%) 0 (0%)
help_insurance
Extremely helpful 86 (70.5%) 67 (67.0%) 19 (86.4%)
Very helpful 24 (19.7%) 21 (21.0%) 3 (13.6%)
Somewhat helpful 7 (5.7%) 7 (7.0%) 0 (0%)
Slightly helpful 0 (0%) 0 (0%) 0 (0%)
Not at all helpful 1 (0.8%) 1 (1.0%) 0 (0%)
Missing 4 (3.3%) 4 (4.0%) 0 (0%)
help_housing
Extremely helpful 59 (48.4%) 50 (50.0%) 9 (40.9%)
Very helpful 23 (18.9%) 18 (18.0%) 5 (22.7%)
Somewhat helpful 16 (13.1%) 14 (14.0%) 2 (9.1%)
Slightly helpful 3 (2.5%) 1 (1.0%) 2 (9.1%)
Not at all helpful 14 (11.5%) 10 (10.0%) 4 (18.2%)
Missing 7 (5.7%) 7 (7.0%) 0 (0%)
help_child_care
Extremely helpful 30 (24.6%) 24 (24.0%) 6 (27.3%)
Very helpful 8 (6.6%) 5 (5.0%) 3 (13.6%)
Somewhat helpful 5 (4.1%) 4 (4.0%) 1 (4.5%)
Slightly helpful 6 (4.9%) 4 (4.0%) 2 (9.1%)
Not at all helpful 59 (48.4%) 49 (49.0%) 10 (45.5%)
Missing 14 (11.5%) 14 (14.0%) 0 (0%)
help_questions
Extremely helpful 70 (57.4%) 56 (56.0%) 14 (63.6%)
Very helpful 38 (31.1%) 32 (32.0%) 6 (27.3%)
Somewhat helpful 7 (5.7%) 6 (6.0%) 1 (4.5%)
Slightly helpful 0 (0%) 0 (0%) 0 (0%)
Not at all helpful 3 (2.5%) 2 (2.0%) 1 (4.5%)
Missing 4 (3.3%) 4 (4.0%) 0 (0%)
help_language
Extremely helpful 67 (54.9%) 52 (52.0%) 15 (68.2%)
Very helpful 18 (14.8%) 17 (17.0%) 1 (4.5%)
Somewhat helpful 6 (4.9%) 5 (5.0%) 1 (4.5%)
Slightly helpful 1 (0.8%) 0 (0%) 1 (4.5%)
Not at all helpful 23 (18.9%) 19 (19.0%) 4 (18.2%)
Missing 7 (5.7%) 7 (7.0%) 0 (0%)
help_flex_time
Extremely helpful 66 (54.1%) 51 (51.0%) 15 (68.2%)
Very helpful 31 (25.4%) 26 (26.0%) 5 (22.7%)
Somewhat helpful 12 (9.8%) 12 (12.0%) 0 (0%)
Slightly helpful 2 (1.6%) 2 (2.0%) 0 (0%)
Not at all helpful 5 (4.1%) 3 (3.0%) 2 (9.1%)
Missing 6 (4.9%) 6 (6.0%) 0 (0%)
help_televisits
Extremely helpful 60 (49.2%) 47 (47.0%) 13 (59.1%)
Very helpful 38 (31.1%) 31 (31.0%) 7 (31.8%)
Somewhat helpful 11 (9.0%) 10 (10.0%) 1 (4.5%)
Slightly helpful 2 (1.6%) 2 (2.0%) 0 (0%)
Not at all helpful 6 (4.9%) 5 (5.0%) 1 (4.5%)
Missing 5 (4.1%) 5 (5.0%) 0 (0%)
help_compensation
Extremely helpful 50 (41.0%) 41 (41.0%) 9 (40.9%)
Very helpful 23 (18.9%) 18 (18.0%) 5 (22.7%)
Somewhat helpful 13 (10.7%) 10 (10.0%) 3 (13.6%)
Slightly helpful 9 (7.4%) 8 (8.0%) 1 (4.5%)
Not at all helpful 21 (17.2%) 17 (17.0%) 4 (18.2%)
Missing 6 (4.9%) 6 (6.0%) 0 (0%)