Total (N=122) |
MDACC (N=100) |
Harris health (N=22) |
|
---|---|---|---|
knowledge_trial | |||
Not well at all | 6 (4.9%) | 4 (4.0%) | 2 (9.1%) |
Not very well | 70 (57.4%) | 55 (55.0%) | 15 (68.2%) |
Very well | 39 (32.0%) | 36 (36.0%) | 3 (13.6%) |
Missing | 7 (5.7%) | 5 (5.0%) | 2 (9.1%) |
trial_discussed | |||
Yes | 55 (45.1%) | 48 (48.0%) | 7 (31.8%) |
No | 64 (52.5%) | 49 (49.0%) | 15 (68.2%) |
Missing | 3 (2.5%) | 3 (3.0%) | 0 (0%) |
trial_participation | |||
Yes | 26 (21.3%) | 24 (24.0%) | 2 (9.1%) |
No | 94 (77.0%) | 75 (75.0%) | 19 (86.4%) |
Missing | 2 (1.6%) | 1 (1.0%) | 1 (4.5%) |
trial_experience | |||
Very negative | 0 (0%) | 0 (0%) | 0 (0%) |
Somewhat negative | 0 (0%) | 0 (0%) | 0 (0%) |
neutral | 4 (3.3%) | 4 (4.0%) | 0 (0%) |
Somewhat positive | 2 (1.6%) | 2 (2.0%) | 0 (0%) |
very positive | 19 (15.6%) | 17 (17.0%) | 2 (9.1%) |
Missing | 97 (79.5%) | 77 (77.0%) | 20 (90.9%) |
trial_importance | |||
Note at all important | 0 (0%) | 0 (0%) | 0 (0%) |
Not very important | 0 (0%) | 0 (0%) | 0 (0%) |
Somewhat important | 13 (10.7%) | 10 (10.0%) | 3 (13.6%) |
Very important | 107 (87.7%) | 88 (88.0%) | 19 (86.4%) |
Missing | 2 (1.6%) | 2 (2.0%) | 0 (0%) |
trial_safety | |||
Not at all safe | 0 (0%) | 0 (0%) | 0 (0%) |
Not very safe | 4 (3.3%) | 2 (2.0%) | 2 (9.1%) |
Somewhat safe | 70 (57.4%) | 58 (58.0%) | 12 (54.5%) |
Very safe | 43 (35.2%) | 36 (36.0%) | 7 (31.8%) |
Missing | 5 (4.1%) | 4 (4.0%) | 1 (4.5%) |
trial_as_trt_option | |||
Not at all often | 21 (17.2%) | 16 (16.0%) | 5 (22.7%) |
Not very often | 31 (25.4%) | 23 (23.0%) | 8 (36.4%) |
Somewhat often | 37 (30.3%) | 31 (31.0%) | 6 (27.3%) |
very often | 27 (22.1%) | 26 (26.0%) | 1 (4.5%) |
Missing | 6 (4.9%) | 4 (4.0%) | 2 (9.1%) |
trial_care | |||
Mean (SD) | 2.34 (0.531) | 2.36 (0.526) | 2.26 (0.562) |
Median [Min, Max] | 2.00 [1.00, 3.00] | 2.00 [1.00, 3.00] | 2.00 [1.00, 3.00] |
Missing | 11 (9.0%) | 8 (8.0%) | 3 (13.6%) |
willing_first_trt | |||
very willing | 45 (36.9%) | 37 (37.0%) | 8 (36.4%) |
somewhat willing | 51 (41.8%) | 40 (40.0%) | 11 (50.0%) |
not very willing | 14 (11.5%) | 11 (11.0%) | 3 (13.6%) |
not at all willing | 8 (6.6%) | 8 (8.0%) | 0 (0%) |
Missing | 4 (3.3%) | 4 (4.0%) | 0 (0%) |
willing_addition_to_soc | |||
very willing | 53 (43.4%) | 46 (46.0%) | 7 (31.8%) |
somewhat willing | 51 (41.8%) | 38 (38.0%) | 13 (59.1%) |
not very willing | 9 (7.4%) | 8 (8.0%) | 1 (4.5%) |
not at all willing | 4 (3.3%) | 3 (3.0%) | 1 (4.5%) |
Missing | 5 (4.1%) | 5 (5.0%) | 0 (0%) |
willing_ineffective_soc | |||
very willing | 61 (50.0%) | 50 (50.0%) | 11 (50.0%) |
somewhat willing | 28 (23.0%) | 26 (26.0%) | 2 (9.1%) |
not very willing | 17 (13.9%) | 12 (12.0%) | 5 (22.7%) |
not at all willing | 8 (6.6%) | 5 (5.0%) | 3 (13.6%) |
Missing | 8 (6.6%) | 7 (7.0%) | 1 (4.5%) |
willing_failed_soc | |||
very willing | 68 (55.7%) | 60 (60.0%) | 8 (36.4%) |
somewhat willing | 30 (24.6%) | 23 (23.0%) | 7 (31.8%) |
not very willing | 12 (9.8%) | 9 (9.0%) | 3 (13.6%) |
not at all willing | 5 (4.1%) | 1 (1.0%) | 4 (18.2%) |
Missing | 7 (5.7%) | 7 (7.0%) | 0 (0%) |
willing_no_soc | |||
very willing | 75 (61.5%) | 64 (64.0%) | 11 (50.0%) |
somewhat willing | 32 (26.2%) | 25 (25.0%) | 7 (31.8%) |
not very willing | 6 (4.9%) | 3 (3.0%) | 3 (13.6%) |
not at all willing | 2 (1.6%) | 1 (1.0%) | 1 (4.5%) |
Missing | 7 (5.7%) | 7 (7.0%) | 0 (0%) |
importance_trt_ease | |||
Very important | 66 (54.1%) | 51 (51.0%) | 15 (68.2%) |
Somewhat important | 32 (26.2%) | 26 (26.0%) | 6 (27.3%) |
Not very important | 9 (7.4%) | 9 (9.0%) | 0 (0%) |
Note at all important | 7 (5.7%) | 7 (7.0%) | 0 (0%) |
Missing | 8 (6.6%) | 7 (7.0%) | 1 (4.5%) |
importance_side_effects | |||
Very important | 73 (59.8%) | 57 (57.0%) | 16 (72.7%) |
Somewhat important | 31 (25.4%) | 26 (26.0%) | 5 (22.7%) |
Not very important | 7 (5.7%) | 7 (7.0%) | 0 (0%) |
Note at all important | 3 (2.5%) | 3 (3.0%) | 0 (0%) |
Missing | 8 (6.6%) | 7 (7.0%) | 1 (4.5%) |
importance_pain | |||
Very important | 63 (51.6%) | 46 (46.0%) | 17 (77.3%) |
Somewhat important | 37 (30.3%) | 33 (33.0%) | 4 (18.2%) |
Not very important | 9 (7.4%) | 9 (9.0%) | 0 (0%) |
Note at all important | 4 (3.3%) | 4 (4.0%) | 0 (0%) |
Missing | 9 (7.4%) | 8 (8.0%) | 1 (4.5%) |
importance_qol | |||
Very important | 98 (80.3%) | 78 (78.0%) | 20 (90.9%) |
Somewhat important | 14 (11.5%) | 14 (14.0%) | 0 (0%) |
Not very important | 1 (0.8%) | 0 (0%) | 1 (4.5%) |
Note at all important | 2 (1.6%) | 2 (2.0%) | 0 (0%) |
Missing | 7 (5.7%) | 6 (6.0%) | 1 (4.5%) |
importance_irb | |||
Very important | 93 (76.2%) | 74 (74.0%) | 19 (86.4%) |
Somewhat important | 15 (12.3%) | 13 (13.0%) | 2 (9.1%) |
Not very important | 5 (4.1%) | 5 (5.0%) | 0 (0%) |
Note at all important | 2 (1.6%) | 2 (2.0%) | 0 (0%) |
Missing | 7 (5.7%) | 6 (6.0%) | 1 (4.5%) |
importance_leaving_study | |||
Very important | 80 (65.6%) | 65 (65.0%) | 15 (68.2%) |
Somewhat important | 20 (16.4%) | 16 (16.0%) | 4 (18.2%) |
Not very important | 9 (7.4%) | 8 (8.0%) | 1 (4.5%) |
Note at all important | 4 (3.3%) | 3 (3.0%) | 1 (4.5%) |
Missing | 9 (7.4%) | 8 (8.0%) | 1 (4.5%) |
concern_cost | |||
my biggest concerns | 47 (38.5%) | 32 (32.0%) | 15 (68.2%) |
a major concern | 40 (32.8%) | 36 (36.0%) | 4 (18.2%) |
somewhat concerned | 22 (18.0%) | 21 (21.0%) | 1 (4.5%) |
Would not influence my decision | 10 (8.2%) | 9 (9.0%) | 1 (4.5%) |
Missing | 3 (2.5%) | 2 (2.0%) | 1 (4.5%) |
concern_visit_freq | |||
my biggest concerns | 34 (27.9%) | 26 (26.0%) | 8 (36.4%) |
a major concern | 36 (29.5%) | 29 (29.0%) | 7 (31.8%) |
somewhat concerned | 28 (23.0%) | 25 (25.0%) | 3 (13.6%) |
Would not influence my decision | 20 (16.4%) | 17 (17.0%) | 3 (13.6%) |
Missing | 4 (3.3%) | 3 (3.0%) | 1 (4.5%) |
concern_testing_freq | |||
my biggest concerns | 29 (23.8%) | 23 (23.0%) | 6 (27.3%) |
a major concern | 37 (30.3%) | 27 (27.0%) | 10 (45.5%) |
somewhat concerned | 31 (25.4%) | 28 (28.0%) | 3 (13.6%) |
Would not influence my decision | 21 (17.2%) | 19 (19.0%) | 2 (9.1%) |
Missing | 4 (3.3%) | 3 (3.0%) | 1 (4.5%) |
concern_test_type | |||
my biggest concerns | 24 (19.7%) | 19 (19.0%) | 5 (22.7%) |
a major concern | 27 (22.1%) | 21 (21.0%) | 6 (27.3%) |
somewhat concerned | 39 (32.0%) | 33 (33.0%) | 6 (27.3%) |
Would not influence my decision | 28 (23.0%) | 24 (24.0%) | 4 (18.2%) |
Missing | 4 (3.3%) | 3 (3.0%) | 1 (4.5%) |
concern_distance | |||
my biggest concerns | 42 (34.4%) | 33 (33.0%) | 9 (40.9%) |
a major concern | 29 (23.8%) | 24 (24.0%) | 5 (22.7%) |
somewhat concerned | 24 (19.7%) | 19 (19.0%) | 5 (22.7%) |
Would not influence my decision | 23 (18.9%) | 21 (21.0%) | 2 (9.1%) |
Missing | 4 (3.3%) | 3 (3.0%) | 1 (4.5%) |
concern_family_care | |||
my biggest concerns | 12 (9.8%) | 9 (9.0%) | 3 (13.6%) |
a major concern | 11 (9.0%) | 9 (9.0%) | 2 (9.1%) |
somewhat concerned | 16 (13.1%) | 12 (12.0%) | 4 (18.2%) |
Would not influence my decision | 76 (62.3%) | 64 (64.0%) | 12 (54.5%) |
Missing | 7 (5.7%) | 6 (6.0%) | 1 (4.5%) |
concern_placebo | |||
my biggest concerns | 28 (23.0%) | 21 (21.0%) | 7 (31.8%) |
a major concern | 29 (23.8%) | 23 (23.0%) | 6 (27.3%) |
somewhat concerned | 38 (31.1%) | 34 (34.0%) | 4 (18.2%) |
Would not influence my decision | 18 (14.8%) | 15 (15.0%) | 3 (13.6%) |
Missing | 9 (7.4%) | 7 (7.0%) | 2 (9.1%) |
concern_study_complexity | |||
my biggest concerns | 29 (23.8%) | 23 (23.0%) | 6 (27.3%) |
a major concern | 31 (25.4%) | 25 (25.0%) | 6 (27.3%) |
somewhat concerned | 33 (27.0%) | 25 (25.0%) | 8 (36.4%) |
Would not influence my decision | 22 (18.0%) | 21 (21.0%) | 1 (4.5%) |
Missing | 7 (5.7%) | 6 (6.0%) | 1 (4.5%) |
concern_work | |||
my biggest concerns | 27 (22.1%) | 21 (21.0%) | 6 (27.3%) |
a major concern | 20 (16.4%) | 16 (16.0%) | 4 (18.2%) |
somewhat concerned | 24 (19.7%) | 19 (19.0%) | 5 (22.7%) |
Would not influence my decision | 46 (37.7%) | 40 (40.0%) | 6 (27.3%) |
Missing | 5 (4.1%) | 4 (4.0%) | 1 (4.5%) |
concern_team_contact | |||
my biggest concerns | 33 (27.0%) | 23 (23.0%) | 10 (45.5%) |
a major concern | 38 (31.1%) | 33 (33.0%) | 5 (22.7%) |
somewhat concerned | 28 (23.0%) | 25 (25.0%) | 3 (13.6%) |
Would not influence my decision | 16 (13.1%) | 13 (13.0%) | 3 (13.6%) |
Missing | 7 (5.7%) | 6 (6.0%) | 1 (4.5%) |
advisors_doctor | |||
A lot | 104 (85.2%) | 84 (84.0%) | 20 (90.9%) |
Somewhat | 7 (5.7%) | 7 (7.0%) | 0 (0%) |
A little | 1 (0.8%) | 1 (1.0%) | 0 (0%) |
Not at all | 5 (4.1%) | 5 (5.0%) | 0 (0%) |
Missing | 5 (4.1%) | 3 (3.0%) | 2 (9.1%) |
advisors_family_friends | |||
A lot | 30 (24.6%) | 21 (21.0%) | 9 (40.9%) |
Somewhat | 47 (38.5%) | 41 (41.0%) | 6 (27.3%) |
A little | 21 (17.2%) | 20 (20.0%) | 1 (4.5%) |
Not at all | 16 (13.1%) | 12 (12.0%) | 4 (18.2%) |
Missing | 8 (6.6%) | 6 (6.0%) | 2 (9.1%) |
advisors_trial_pts | |||
A lot | 45 (36.9%) | 34 (34.0%) | 11 (50.0%) |
Somewhat | 42 (34.4%) | 37 (37.0%) | 5 (22.7%) |
A little | 17 (13.9%) | 13 (13.0%) | 4 (18.2%) |
Not at all | 12 (9.8%) | 12 (12.0%) | 0 (0%) |
Missing | 6 (4.9%) | 4 (4.0%) | 2 (9.1%) |
advisors_religious_leader | |||
A lot | 10 (8.2%) | 8 (8.0%) | 2 (9.1%) |
Somewhat | 26 (21.3%) | 20 (20.0%) | 6 (27.3%) |
A little | 25 (20.5%) | 22 (22.0%) | 3 (13.6%) |
Not at all | 55 (45.1%) | 46 (46.0%) | 9 (40.9%) |
Missing | 6 (4.9%) | 4 (4.0%) | 2 (9.1%) |
advisors_tv | |||
A lot | 4 (3.3%) | 3 (3.0%) | 1 (4.5%) |
Somewhat | 7 (5.7%) | 6 (6.0%) | 1 (4.5%) |
A little | 24 (19.7%) | 18 (18.0%) | 6 (27.3%) |
Not at all | 79 (64.8%) | 67 (67.0%) | 12 (54.5%) |
Missing | 8 (6.6%) | 6 (6.0%) | 2 (9.1%) |
trust_trial_explanation | |||
Yes/Agree | 107 (87.7%) | 90 (90.0%) | 17 (77.3%) |
No/Disagree | 12 (9.8%) | 8 (8.0%) | 4 (18.2%) |
I dont Know | 0 (0%) | 0 (0%) | 0 (0%) |
Missing | 3 (2.5%) | 2 (2.0%) | 1 (4.5%) |
trust_provider_questions | |||
Yes/Agree | 119 (97.5%) | 98 (98.0%) | 21 (95.5%) |
No/Disagree | 0 (0%) | 0 (0%) | 0 (0%) |
I dont Know | 0 (0%) | 0 (0%) | 0 (0%) |
Missing | 3 (2.5%) | 2 (2.0%) | 1 (4.5%) |
trust_harmful_research | |||
Yes/Agree | 84 (68.9%) | 72 (72.0%) | 12 (54.5%) |
No/Disagree | 20 (16.4%) | 15 (15.0%) | 5 (22.7%) |
I dont Know | 0 (0%) | 0 (0%) | 0 (0%) |
Missing | 18 (14.8%) | 13 (13.0%) | 5 (22.7%) |
trust_risk_protection | |||
Yes/Agree | 106 (86.9%) | 88 (88.0%) | 18 (81.8%) |
No/Disagree | 8 (6.6%) | 5 (5.0%) | 3 (13.6%) |
I dont Know | 0 (0%) | 0 (0%) | 0 (0%) |
Missing | 8 (6.6%) | 7 (7.0%) | 1 (4.5%) |
trust_medication | |||
Yes/Agree | 36 (29.5%) | 29 (29.0%) | 7 (31.8%) |
No/Disagree | 17 (13.9%) | 14 (14.0%) | 3 (13.6%) |
I dont Know | 0 (0%) | 0 (0%) | 0 (0%) |
Missing | 69 (56.6%) | 57 (57.0%) | 12 (54.5%) |
trust_guinea_pig | |||
Yes/Agree | 27 (22.1%) | 23 (23.0%) | 4 (18.2%) |
No/Disagree | 27 (22.1%) | 21 (21.0%) | 6 (27.3%) |
I dont Know | 0 (0%) | 0 (0%) | 0 (0%) |
Missing | 68 (55.7%) | 56 (56.0%) | 12 (54.5%) |
trust_med_freq | |||
Yes/Agree | 26 (21.3%) | 21 (21.0%) | 5 (22.7%) |
No/Disagree | 21 (17.2%) | 17 (17.0%) | 4 (18.2%) |
I dont Know | 0 (0%) | 0 (0%) | 0 (0%) |
Missing | 75 (61.5%) | 62 (62.0%) | 13 (59.1%) |
helpful_written_mats | |||
Extremely helpful | 81 (66.4%) | 63 (63.0%) | 18 (81.8%) |
Very helpful | 24 (19.7%) | 23 (23.0%) | 1 (4.5%) |
Somewhat helpful | 7 (5.7%) | 6 (6.0%) | 1 (4.5%) |
Slightly helpful | 1 (0.8%) | 1 (1.0%) | 0 (0%) |
Not at all helpful | 2 (1.6%) | 2 (2.0%) | 0 (0%) |
Missing | 7 (5.7%) | 5 (5.0%) | 2 (9.1%) |
helpful_videos | |||
Extremely helpful | 74 (60.7%) | 59 (59.0%) | 15 (68.2%) |
Very helpful | 36 (29.5%) | 32 (32.0%) | 4 (18.2%) |
Somewhat helpful | 4 (3.3%) | 4 (4.0%) | 0 (0%) |
Slightly helpful | 0 (0%) | 0 (0%) | 0 (0%) |
Not at all helpful | 1 (0.8%) | 1 (1.0%) | 0 (0%) |
Missing | 7 (5.7%) | 4 (4.0%) | 3 (13.6%) |
help_transport | |||
Extremely helpful | 55 (45.1%) | 43 (43.0%) | 12 (54.5%) |
Very helpful | 25 (20.5%) | 21 (21.0%) | 4 (18.2%) |
Somewhat helpful | 23 (18.9%) | 18 (18.0%) | 5 (22.7%) |
Slightly helpful | 4 (3.3%) | 4 (4.0%) | 0 (0%) |
Not at all helpful | 10 (8.2%) | 9 (9.0%) | 1 (4.5%) |
Missing | 5 (4.1%) | 5 (5.0%) | 0 (0%) |
help_insurance | |||
Extremely helpful | 86 (70.5%) | 67 (67.0%) | 19 (86.4%) |
Very helpful | 24 (19.7%) | 21 (21.0%) | 3 (13.6%) |
Somewhat helpful | 7 (5.7%) | 7 (7.0%) | 0 (0%) |
Slightly helpful | 0 (0%) | 0 (0%) | 0 (0%) |
Not at all helpful | 1 (0.8%) | 1 (1.0%) | 0 (0%) |
Missing | 4 (3.3%) | 4 (4.0%) | 0 (0%) |
help_housing | |||
Extremely helpful | 59 (48.4%) | 50 (50.0%) | 9 (40.9%) |
Very helpful | 23 (18.9%) | 18 (18.0%) | 5 (22.7%) |
Somewhat helpful | 16 (13.1%) | 14 (14.0%) | 2 (9.1%) |
Slightly helpful | 3 (2.5%) | 1 (1.0%) | 2 (9.1%) |
Not at all helpful | 14 (11.5%) | 10 (10.0%) | 4 (18.2%) |
Missing | 7 (5.7%) | 7 (7.0%) | 0 (0%) |
help_child_care | |||
Extremely helpful | 30 (24.6%) | 24 (24.0%) | 6 (27.3%) |
Very helpful | 8 (6.6%) | 5 (5.0%) | 3 (13.6%) |
Somewhat helpful | 5 (4.1%) | 4 (4.0%) | 1 (4.5%) |
Slightly helpful | 6 (4.9%) | 4 (4.0%) | 2 (9.1%) |
Not at all helpful | 59 (48.4%) | 49 (49.0%) | 10 (45.5%) |
Missing | 14 (11.5%) | 14 (14.0%) | 0 (0%) |
help_questions | |||
Extremely helpful | 70 (57.4%) | 56 (56.0%) | 14 (63.6%) |
Very helpful | 38 (31.1%) | 32 (32.0%) | 6 (27.3%) |
Somewhat helpful | 7 (5.7%) | 6 (6.0%) | 1 (4.5%) |
Slightly helpful | 0 (0%) | 0 (0%) | 0 (0%) |
Not at all helpful | 3 (2.5%) | 2 (2.0%) | 1 (4.5%) |
Missing | 4 (3.3%) | 4 (4.0%) | 0 (0%) |
help_language | |||
Extremely helpful | 67 (54.9%) | 52 (52.0%) | 15 (68.2%) |
Very helpful | 18 (14.8%) | 17 (17.0%) | 1 (4.5%) |
Somewhat helpful | 6 (4.9%) | 5 (5.0%) | 1 (4.5%) |
Slightly helpful | 1 (0.8%) | 0 (0%) | 1 (4.5%) |
Not at all helpful | 23 (18.9%) | 19 (19.0%) | 4 (18.2%) |
Missing | 7 (5.7%) | 7 (7.0%) | 0 (0%) |
help_flex_time | |||
Extremely helpful | 66 (54.1%) | 51 (51.0%) | 15 (68.2%) |
Very helpful | 31 (25.4%) | 26 (26.0%) | 5 (22.7%) |
Somewhat helpful | 12 (9.8%) | 12 (12.0%) | 0 (0%) |
Slightly helpful | 2 (1.6%) | 2 (2.0%) | 0 (0%) |
Not at all helpful | 5 (4.1%) | 3 (3.0%) | 2 (9.1%) |
Missing | 6 (4.9%) | 6 (6.0%) | 0 (0%) |
help_televisits | |||
Extremely helpful | 60 (49.2%) | 47 (47.0%) | 13 (59.1%) |
Very helpful | 38 (31.1%) | 31 (31.0%) | 7 (31.8%) |
Somewhat helpful | 11 (9.0%) | 10 (10.0%) | 1 (4.5%) |
Slightly helpful | 2 (1.6%) | 2 (2.0%) | 0 (0%) |
Not at all helpful | 6 (4.9%) | 5 (5.0%) | 1 (4.5%) |
Missing | 5 (4.1%) | 5 (5.0%) | 0 (0%) |
help_compensation | |||
Extremely helpful | 50 (41.0%) | 41 (41.0%) | 9 (40.9%) |
Very helpful | 23 (18.9%) | 18 (18.0%) | 5 (22.7%) |
Somewhat helpful | 13 (10.7%) | 10 (10.0%) | 3 (13.6%) |
Slightly helpful | 9 (7.4%) | 8 (8.0%) | 1 (4.5%) |
Not at all helpful | 21 (17.2%) | 17 (17.0%) | 4 (18.2%) |
Missing | 6 (4.9%) | 6 (6.0%) | 0 (0%) |