Total
(N=64)
knowledge_trial
Not well at all 3 (4.7%)
Not very well 35 (54.7%)
Very well 23 (35.9%)
Missing 3 (4.7%)
trial_discussed
Yes 31 (48.4%)
No 30 (46.9%)
Missing 3 (4.7%)
trial_participation
Yes 16 (25.0%)
No 47 (73.4%)
Missing 1 (1.6%)
trial_experience
Very negative 0 (0%)
Somewhat negative 0 (0%)
neutral 1 (1.6%)
Somewhat positive 2 (3.1%)
very positive 12 (18.8%)
Missing 49 (76.6%)
trial_importance
Note at all important 0 (0%)
Not very important 0 (0%)
Somewhat important 4 (6.3%)
Very important 58 (90.6%)
Missing 2 (3.1%)
trial_safety
Not at all safe 0 (0%)
Not very safe 1 (1.6%)
Somewhat safe 37 (57.8%)
Very safe 23 (35.9%)
Missing 3 (4.7%)
trial_as_trt_option
Not at all often 11 (17.2%)
Not very often 16 (25.0%)
Somewhat often 13 (20.3%)
very often 20 (31.3%)
Missing 4 (6.3%)
willing_first_trt
very willing 24 (37.5%)
somewhat willing 25 (39.1%)
not very willing 8 (12.5%)
not at all willing 5 (7.8%)
Missing 2 (3.1%)
willing_addition_to_soc
very willing 30 (46.9%)
somewhat willing 22 (34.4%)
not very willing 6 (9.4%)
not at all willing 2 (3.1%)
Missing 4 (6.3%)
willing_ineffective_soc
very willing 30 (46.9%)
somewhat willing 17 (26.6%)
not very willing 9 (14.1%)
not at all willing 3 (4.7%)
Missing 5 (7.8%)
willing_failed_soc
very willing 35 (54.7%)
somewhat willing 15 (23.4%)
not very willing 8 (12.5%)
not at all willing 1 (1.6%)
Missing 5 (7.8%)
willing_no_soc
very willing 38 (59.4%)
somewhat willing 17 (26.6%)
not very willing 3 (4.7%)
not at all willing 1 (1.6%)
Missing 5 (7.8%)
importance_trt_ease
Very important 29 (45.3%)
Somewhat important 17 (26.6%)
Not very important 8 (12.5%)
Note at all important 6 (9.4%)
Missing 4 (6.3%)
importance_side_effects
Very important 35 (54.7%)
Somewhat important 18 (28.1%)
Not very important 5 (7.8%)
Note at all important 3 (4.7%)
Missing 3 (4.7%)
importance_pain
Very important 27 (42.2%)
Somewhat important 25 (39.1%)
Not very important 4 (6.3%)
Note at all important 4 (6.3%)
Missing 4 (6.3%)
importance_qol
Very important 47 (73.4%)
Somewhat important 11 (17.2%)
Not very important 0 (0%)
Note at all important 2 (3.1%)
Missing 4 (6.3%)
importance_irb
Very important 46 (71.9%)
Somewhat important 8 (12.5%)
Not very important 4 (6.3%)
Note at all important 2 (3.1%)
Missing 4 (6.3%)
importance_leaving_study
Very important 40 (62.5%)
Somewhat important 11 (17.2%)
Not very important 5 (7.8%)
Note at all important 3 (4.7%)
Missing 5 (7.8%)
concern_cost
my biggest concerns 19 (29.7%)
a major concern 22 (34.4%)
somewhat concerned 15 (23.4%)
Would not influence my decision 6 (9.4%)
Missing 2 (3.1%)
concern_visit_freq
my biggest concerns 17 (26.6%)
a major concern 16 (25.0%)
somewhat concerned 18 (28.1%)
Would not influence my decision 11 (17.2%)
Missing 2 (3.1%)
concern_testing_freq
my biggest concerns 13 (20.3%)
a major concern 18 (28.1%)
somewhat concerned 19 (29.7%)
Would not influence my decision 12 (18.8%)
Missing 2 (3.1%)
concern_test_type
my biggest concerns 10 (15.6%)
a major concern 15 (23.4%)
somewhat concerned 21 (32.8%)
Would not influence my decision 16 (25.0%)
Missing 2 (3.1%)
concern_distance
my biggest concerns 21 (32.8%)
a major concern 18 (28.1%)
somewhat concerned 12 (18.8%)
Would not influence my decision 11 (17.2%)
Missing 2 (3.1%)
concern_family_care
my biggest concerns 5 (7.8%)
a major concern 6 (9.4%)
somewhat concerned 11 (17.2%)
Would not influence my decision 39 (60.9%)
Missing 3 (4.7%)
concern_placebo
my biggest concerns 12 (18.8%)
a major concern 14 (21.9%)
somewhat concerned 23 (35.9%)
Would not influence my decision 11 (17.2%)
Missing 4 (6.3%)
concern_study_complexity
my biggest concerns 12 (18.8%)
a major concern 17 (26.6%)
somewhat concerned 17 (26.6%)
Would not influence my decision 14 (21.9%)
Missing 4 (6.3%)
concern_work
my biggest concerns 12 (18.8%)
a major concern 9 (14.1%)
somewhat concerned 13 (20.3%)
Would not influence my decision 28 (43.8%)
Missing 2 (3.1%)
concern_team_contact
my biggest concerns 14 (21.9%)
a major concern 23 (35.9%)
somewhat concerned 17 (26.6%)
Would not influence my decision 7 (10.9%)
Missing 3 (4.7%)
advisors_doctor
A lot 56 (87.5%)
Somewhat 4 (6.3%)
A little 1 (1.6%)
Not at all 2 (3.1%)
Missing 1 (1.6%)
advisors_family_friends
A lot 13 (20.3%)
Somewhat 24 (37.5%)
A little 15 (23.4%)
Not at all 8 (12.5%)
Missing 4 (6.3%)
advisors_trial_pts
A lot 21 (32.8%)
Somewhat 22 (34.4%)
A little 9 (14.1%)
Not at all 8 (12.5%)
Missing 4 (6.3%)
advisors_religious_leader
A lot 6 (9.4%)
Somewhat 8 (12.5%)
A little 14 (21.9%)
Not at all 33 (51.6%)
Missing 3 (4.7%)
advisors_tv
A lot 2 (3.1%)
Somewhat 4 (6.3%)
A little 7 (10.9%)
Not at all 47 (73.4%)
Missing 4 (6.3%)
trust_trial_explanation
Yes/Agree 57 (89.1%)
No/Disagree 5 (7.8%)
I dont Know 0 (0%)
Missing 2 (3.1%)
trust_provider_questions
Yes/Agree 63 (98.4%)
No/Disagree 0 (0%)
I dont Know 0 (0%)
Missing 1 (1.6%)
trust_harmful_research
Yes/Agree 45 (70.3%)
No/Disagree 12 (18.8%)
I dont Know 0 (0%)
Missing 7 (10.9%)
trust_risk_protection
Yes/Agree 56 (87.5%)
No/Disagree 3 (4.7%)
I dont Know 0 (0%)
Missing 5 (7.8%)
trust_medication
Yes/Agree 18 (28.1%)
No/Disagree 7 (10.9%)
I dont Know 0 (0%)
Missing 39 (60.9%)
trust_guinea_pig
Yes/Agree 15 (23.4%)
No/Disagree 11 (17.2%)
I dont Know 0 (0%)
Missing 38 (59.4%)
trust_med_freq
Yes/Agree 12 (18.8%)
No/Disagree 10 (15.6%)
I dont Know 0 (0%)
Missing 42 (65.6%)
helpful_written_mats
Extremely helpful 43 (67.2%)
Very helpful 12 (18.8%)
Somewhat helpful 3 (4.7%)
Slightly helpful 0 (0%)
Not at all helpful 1 (1.6%)
Missing 5 (7.8%)
helpful_videos
Extremely helpful 39 (60.9%)
Very helpful 18 (28.1%)
Somewhat helpful 2 (3.1%)
Slightly helpful 0 (0%)
Not at all helpful 1 (1.6%)
Missing 4 (6.3%)
help_transport
Extremely helpful 29 (45.3%)
Very helpful 16 (25.0%)
Somewhat helpful 11 (17.2%)
Slightly helpful 1 (1.6%)
Not at all helpful 4 (6.3%)
Missing 3 (4.7%)
help_insurance
Extremely helpful 42 (65.6%)
Very helpful 15 (23.4%)
Somewhat helpful 3 (4.7%)
Slightly helpful 0 (0%)
Not at all helpful 1 (1.6%)
Missing 3 (4.7%)
help_housing
Extremely helpful 34 (53.1%)
Very helpful 11 (17.2%)
Somewhat helpful 10 (15.6%)
Slightly helpful 0 (0%)
Not at all helpful 4 (6.3%)
Missing 5 (7.8%)
help_child_care
Extremely helpful 16 (25.0%)
Very helpful 3 (4.7%)
Somewhat helpful 3 (4.7%)
Slightly helpful 2 (3.1%)
Not at all helpful 31 (48.4%)
Missing 9 (14.1%)
help_questions
Extremely helpful 36 (56.3%)
Very helpful 19 (29.7%)
Somewhat helpful 5 (7.8%)
Slightly helpful 0 (0%)
Not at all helpful 1 (1.6%)
Missing 3 (4.7%)
help_language
Extremely helpful 35 (54.7%)
Very helpful 11 (17.2%)
Somewhat helpful 5 (7.8%)
Slightly helpful 0 (0%)
Not at all helpful 8 (12.5%)
Missing 5 (7.8%)
help_flex_time
Extremely helpful 34 (53.1%)
Very helpful 16 (25.0%)
Somewhat helpful 8 (12.5%)
Slightly helpful 2 (3.1%)
Not at all helpful 0 (0%)
Missing 4 (6.3%)
help_televisits
Extremely helpful 31 (48.4%)
Very helpful 20 (31.3%)
Somewhat helpful 7 (10.9%)
Slightly helpful 0 (0%)
Not at all helpful 2 (3.1%)
Missing 4 (6.3%)
help_compensation
Extremely helpful 26 (40.6%)
Very helpful 7 (10.9%)
Somewhat helpful 7 (10.9%)
Slightly helpful 6 (9.4%)
Not at all helpful 14 (21.9%)
Missing 4 (6.3%)